Does anybody know what this is?: Hi Everyone, This... - LUPUS UK

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Does anybody know what this is?

Hnewman2 profile image
9 Replies

Hi Everyone,

This is quite random but for around 6 weeks maybe longer I've had a rough, raised patch of skin on the top of my foot. It's discoloured to a dark brown/red colour and about the size of a £2 coin

I also have two smaller ones on the other foot.

I can't seem to figure out what this could be and I'm not sure if it's worth mentioning to my Dr? I'm sure it's nothing worth making an appointment for? It's definitely not from friction as the shoes I wear don't touch the part of my feet where the rash/area is.

I'd really appreciate if you know what this could be?

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Hnewman2 profile image
Hnewman2
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9 Replies
Tiras profile image
Tiras

👣👣👣👣👣👣👣👣👣👣👣👣👣

Hi Hnewman;

This looks like some of the places on my foot/feet I was diagnosed about 4 years ago with SLE. Because of the rashes/blisters I have had to go barefoot for 2 plus years, no shoes what so ever. If I wear shoes. They will rub on the rashes/blisters and rub them raw and they will start bleeding in just a few minutes.

That is what mine looked like when it started. This doesn't mean it will be the same for you? Just remember lupus is different for all of us, but yet the same. That doesn't make sence, but then neither does lupus!

Go to my profile page, and you can see my photos of my foot.

Let me know how you do. I have 3 prescriptions that the doctor has given me. They are creams to use. Let me know and I will send you the names of them to tell your doctor.

Wishing you and your family the best!

👣👣👣👣👣👣Tiras👣👣👣👣👣

LeopardGizmo profile image
LeopardGizmo

Six weeks is a long time for that to be there. You don't say what your auto-immune disorder is, but my father had these on the fronts of his feet and along his shins. For him (not necessarily for you) it was one of the symptoms of his scleroderma. Scleroderma is an autoimmune illnessclosely related to lupus.

DEFINITELY worth a trip to the doctor -- I should think you'd want to see your rheumatologist with it.

Hnewman2 profile image
Hnewman2 in reply toLeopardGizmo

Hi thank you for your response! I'm very new to the whole autoimmune illness thing. I've been diagnosed temporarily with UCTD white awaiting further results but I'm sure from my symptoms that's it's lupus. I also have positive antipholosiphid antibodies and possible blood clots that I'm waiting for scans to see if they are present. If so then I also have APS. My next appointment with my Rhuemy is 7th Feb do you think it's fine to wait for that or should I see my GP before?

Thanks

LeopardGizmo profile image
LeopardGizmo in reply toHnewman2

Your GP can probably prescribe something to use topically, & that might help. But only a rheumatologist will be able to tell you if it's linked to the rest of your autoimmune issues.

I get these (I have sle, dle) but it's my lymphoedema nurse that used to moan at me for it :)

Do you happen to sit in a kneeling position ever? That's when I get mine, (if they are the same thing) they don't hurt, just slightly rough and a different colour. Moisturizing and refraining from sitting on your upturned feet/ankles should sort it out...if it's the same thing (if it's worrying you tho, don't be put off of asking a doctor) x

Hnewman2 profile image
Hnewman2 in reply to

Hi thanks for your response! After lots of googling I've seen that they could be callouses but I don't ever sit on my ankles and they are in different places on my feet so I don't think it's that. I've tried exfoliating and almost every type of moisturiser but they won't go away!

Mean-time profile image
Mean-time

Scleroderma? It's part of the many manifestations of mixed connective tissue disease, which is so difficult to diagnose as so many tests come up negative. So frustrating because we can have all the physical components and no scientific proof..."mixed bag", pardon the pun😏

Hnewman2 profile image
Hnewman2 in reply toMean-time

Haha, you're so right it seems so difficult to diagnose any of these illnesses easily! It sounds like it could be localised scleroderma however I've read that with scleroderma the patches are flat and smooth but mine are rough and hardened so I'm not sure? Guess it's just another thing to show the Rhuemy! Thanks for your reply

DentalLoser profile image
DentalLoser

Hello. I have Primary Sjogren's and like many autoimmune disorders, there seem to be symptoms of others, such as Psoriasis.Desonide 0.05% cream helps mine but has become absurdly expensive(USA). My rashes are more circular and on right arm and in past two serious spots on each lower leg diagnosed as Patch Psoriasis, which led my Rheumo to suspect S.L.E. underlying my Sjogren's, which, fortunately, was ruled out. You definitely need a diagnosis from perhaps both a Dermatologist & a Rheum to, hopefully, rule out Scleroderma, an unlikely but far more serious diagnosis. Good luck, Basil/alias Dental Loser in USA

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