I have just (19th Dec) been diagnosed with Lupus (SLE specifically) and I am finding it hard to digest and come to terms with it. I just wanted to get some support with dealing with questions and concerns with family members and work when you first tell them that you have it.
Also I have a sense of feeling of not trusting my body, for example not being confident to hold things because my fingers are really inflamed and painful at times. i have experiencing hair loss, blurred vision and blood shot eyes, feeling really hot (burning) in random places on my body. (does any one else get these?) and also afraid of things getting worse.
How do you guys manage this, and deal with symptoms? Is there anything I should look out for.