Hi all! I've come here after going through a long list of possible problems, my doctors have thought of everything from OCD & Anxiety to Diabetes. I am still undiagnosed, but my new doctor (best one so far) believes Lupus (SLE) may be a possibility, she has also discovered that I have Polycystic Ovaries and some mysterious fluid on my pelvis, could be endometriosis.
So I was hoping someone would be able to give me advice on getting a diagnosis and how they managed to get diagnosed. Maybe even some tips for the doctors office? I'm a 21 year old woman and I've had these symptoms for 4-5 years, they flare up and leave, but the fatigue and weakness, nausea, confusion and pain is pretty constant.
-Vomiting (sudden and violent and followed by shakes)
-Brain fog, inability to concentrate
-Confusion & memory loss
-Eye floaters & seeing yellow and black spots and outlines shapes constantly
-Numbness in legs and arms and fingers
-Very cold hands & feet (blue finger nails and hands lock from cold)
-Constant thirst (I need to drink 4 litres of water a day and still thirsty)
-Dizzy and fatigued after basic activity (flight of stairs, standing up)
-Shortness of breath
-Underweight, can't gain weight
-Low blood sugar (I'm getting anything from 2.7 mmol/L - 3.9 mmol/L regularly after eating)
-Swollen and red lymph nodes, protrude from body, but no infection.
-Joint pain, stiffness, swelling & seizing up so I cant walk or bend
-Chest pain when deep breaths taken
-Pain and tightness along spine
-Neck stiffness (upper neck and very specific pain inside skull)
--Dry eyes (Eye doctor says they are dry and damaged from quickly evaporating tears)
-Constantly runny nose
-Very prone to catching bad chest & sinus infections (12 month long chest infection caused bruised sternum last year)
As you can see these symptoms are long and vague! Any advice greatly appreciated.
I have a chest xray & an ANA blood test next week. Thank you all!! xx