Hi, new to the site and would appreciate any information you can give me.
I was diagnosed SLE in November 2011 after having a bad year and positive dsDNA, ANA and high Plasma Viscosity blood results amongst others. Have had a number of vasculitis attacks on my legs over the past two and a half years, one of which was particularly bad. This involved a purple rash from my waist to my toes and affected my eyes which were very red and sore and had to be bathed open as the lids had stuck together. My GP wrote to the Rheumatologist and asked could steroids be prescribed for short term use when I had vasculitis, which was refused. I am on no treatment.
At that time I lived in a different area and I now have a new Rheumatologist. From what he says I gather that he doesn't think I have SLE because I don't have organ involvement and my bloods were fine when he checked them.
I have had 15 previous years of problems, a positive SLE diagnosis, positive bloods, many other symptoms of fatigue, joint pain, mouth ulcers, arthritis etc., (which I am still having), and was of the understanding that that was enough for a diagnosis, am I wrong? Previous Consultant was satisfied.
Hope someone out there can shed some light on this for me.