Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,833 members • 28,172 posts

All posts for June 2014

ana bloods

I seem to remember someone saying ANA is blood test fro lupus?is that so?if it is then I have lupus.in my rheumy sletter from 2012 to my gp it clearly states...

I seem to remember someone saying ANA is blood test fro lupus?is that so?if it i...

anbuma

•10 years ago

33 Replies

Anyone had these treatments for heart inflammation and fluid on heart?

At the moment, I have pericarditis and fluid in the sac around my heart. The doc has suggested a couple of options. Firstly, I could take anti-inflammatories...

At the moment, I have pericarditis and fluid in the sac around my heart. The doc...

Lucy74

•10 years ago

7 Replies

Sjoregons syndrome

Sorry if it's spelt wrong. I went to the Dr today for my chronic ear pain. I've had it for a couple months now. But Wednesday I traveled over the pass and...

Sorry if it's spelt wrong. I went to the Dr today for my chronic ear pain. I've...

HeatherMOttwell

•10 years ago

5 Replies

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Hi, after 6 years gave been diagnosed by the rheumatologist as having seronegative lupus, hydroxychloroquine seems to be helping, any other

People with this diagnosis?

chandlermandy

•10 years ago

1 Reply

I was diagnosed with discod lupus about 2 years ago what is the best medication to use for this it affects my face , arms , chest , hands .

mafia1972

•10 years ago

9 Replies

Transplant Optimisation Trial - the fall out

Hi - just thought I'd share this, I wrote it to explain to a relative what was happening. I know it is more about my transplant than the Lupus, but someone...

Hi - just thought I'd share this, I wrote it to explain to a relative what was h...

Hidden

•10 years ago

21 Replies

Not sure what area symptoms lie

Been having problems with my muscles at least it feel like my muscles. Very weak painful muscles in fron tof arm pit that connect to breast tissue area. They...

Been having problems with my muscles at least it feel like my muscles. Very weak...

yorkshiregirl44

•10 years ago

5 Replies

Something good

My blue badge just arrived and bathroom equipment arrives tomorrow ,so I can get out of bath with out undoing all the good work the hot water has done :-) x

My blue badge just arrived and bathroom equipment arrives tomorrow ,so I can get...

Shadows-walker

•10 years ago

2 Replies

Feeling faint

Normally I love summer (I know, but I am furrein, and heat therefore is welcome for me!). I'm out in it slathered in sunblock, barbecuing for England and...

Normally I love summer (I know, but I am furrein, and heat therefore is welcome ...

Silvergilt

•10 years ago

8 Replies

Can anyone help

My sister is having pain in all joints also a rash on her face made worse by the sun. Her recent blood tests shoe esr 14 range 1-14 Rheumatoid factor 20 range...

My sister is having pain in all joints also a rash on her face made worse by the...

yorkshiregirl44

•10 years ago

11 Replies

worried about trying methotrexate.

Hi all i have been taking azathioprine for nearly 2 yrs. I had a flare up which started a month ago and had a depo medrone steroid 2 weeks ago which didn't...

Hi all i have been taking azathioprine for nearly 2 yrs. I had a flare up which ...

ush1401

•10 years ago

16 Replies

Had a phone call From occupational health this afternoon looks like I am going to be let go !

Hi thought keep you all up to date don't quite know what to do , she was very nice but as she said I am very unwell and won't be ready to go to work in the...

Hi thought keep you all up to date don't quite know what to do , she was very ni...

Shadows-walker

•10 years ago

23 Replies

Not a question just an update

In November I was diagnosed with dvt in my left leg, in February I was diagnosed with Hughs, in May after further blood tests and me being in really bad pain I...

In November I was diagnosed with dvt in my left leg, in February I was diagnosed...

bevjane74

•10 years ago

1 Reply

whats happening

cant get connected using my android pad hope its sorted soon with the arthritis and lack of feeling in my fingers much prefer using it than this laptop g

cant get connected using my android pad hope its sorted soon with the arthritis ...

farmerfester

•10 years ago

1 Reply

My daughter has lupus . . She is moving to england and will be going to leeds for care.Is there a Lupus specialist in Leeds.?

lindahe

•10 years ago

1 Reply

Does rainy, humid weather affect pain?

I feel like connective tissue bad on rainy, or cloudy, humid days. Anyone else notice this?

I feel like connective tissue bad on rainy, or cloudy, humid days. Anyone else n...

Natura

•10 years ago

27 Replies

What Do You Think?

I am a 23 year old female. I have lots of symptoms pointing to Lupus. In fact the Dr. believes it's the route to all of my problems. Now, I am aware I may just...

I am a 23 year old female. I have lots of symptoms pointing to Lupus. In fact th...

HeatherMOttwell

•10 years ago

16 Replies

Well finaly starting to get some answers!

Had a letter off rhummie telling me and GP I have undifferentiated conective tissue desease , sjorgrens, raynaulds, fibro and chronic farptigue . He has not...

Had a letter off rhummie telling me and GP I have undifferentiated conective tis...

Shadows-walker

•10 years ago

8 Replies

Mycophenolate mofetil

I am taking mycophenolate and have been for 5 months, working great for lupus and managed to reduced pred to 5mg which is a miracle for me, going to keep...

I am taking mycophenolate and have been for 5 months, working great for lupus an...

joannebond360

•10 years ago

8 Replies

Foot ulcers

I have had chronic foot ulcers for some while now causing considerable pain and discomfort. I have tried every type of dressing and finally using one which...

I have had chronic foot ulcers for some while now causing considerable pain and ...

dzagotskillz74

•10 years ago

4 Replies

I have SLE, diagnosed in April 2000. I have no-one looking after me for my Lupus. What blood tests should I be having if any, and how often?

I have a kidney transplant, this is due to Lupus 'killing off' my kidneys, eye troubles - light sensitivity and multiple episodes over many years of scleritis,...

I have a kidney transplant, this is due to Lupus 'killing off' my kidneys, eye t...

MandaM

•10 years ago

3 Replies

Is this normal: Methotrexate and bad, bad constipation

I'm sorry... this is embarrassing but about the 3rd week of MTX (13th week now) I stopped being able to go reg. it only happens once a week and it's terrible...

I'm sorry... this is embarrassing but about the 3rd week of MTX (13th week now) ...

pen727

•10 years ago

19 Replies

All new to this!

Hi am all new 2 all this. I have just been told I have lupus, my rash has cleared up but everything else just seems to be getting worse my kidneys ain't good,...

Hi am all new 2 all this. I have just been told I have lupus, my rash has cleare...

Ruth_lderry

•10 years ago

4 Replies

How can I accept having lupus?

I've just had my bloods taken and 2 of my family members have been diagnosed, I'm wanting to know how bad this could be andany help or tips on how to cope with...

I've just had my bloods taken and 2 of my family members have been diagnosed, I'...

shell2138

•10 years ago

8 Replies

My jaw hurts like crazy it hurts in my ear as well hurts when I open my jaw and chew idk what it iss

Blehh

realest_hunniie_707

•10 years ago

5 Replies

Has anyone had a diagnosis of prurigo nodularis with the SLE?

Hidden

•10 years ago

Be the first to reply

Hey, does anyone have any advice /experience re creams/meds to help with lupus sun rash :-(

Got really caught out yesterday. Not sun block but anything to help after the rash has appeared? I already take hydrochloroquine. Thanks any help would be...

Got really caught out yesterday. Not sun block but anything to help after the ra...

Bexs18

•10 years ago

13 Replies

Not sure if it is a bad flare or not

For the last three days i have been wiped out with a fever hot and cold mostly cold want to know if this is start of bad flare so week and have the usually...

For the last three days i have been wiped out with a fever hot and cold mostly c...

Limerick5

•10 years ago

3 Replies

A thoughtful petition

Thyroid UK have started a call to action regarding this petition. Many of us with Lupus or Hughes or a mixture of things struggle with allergies, for those...

Thyroid UK have started a call to action regarding this petition. Many of us wi...

MaryF

•10 years ago

Be the first to reply

Multiple sclerosis

Do anyone get feeling of jelly like numbness in legs I'm currently waiting for a mri I've been very ill for yrs I have lupus and a lot of other health...

Do anyone get feeling of jelly like numbness in legs I'm currently waiting for a...

trueblood3

•10 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2014

ana bloods

Anyone had these treatments for heart inflammation and fluid on heart?

Sjoregons syndrome

Hi, after 6 years gave been diagnosed by the rheumatologist as having seronegative lupus, hydroxychloroquine seems to be helping, any other

I was diagnosed with discod lupus about 2 years ago what is the best medication to use for this it affects my face , arms , chest , hands .

Transplant Optimisation Trial - the fall out

Not sure what area symptoms lie

Something good

Feeling faint

Can anyone help

worried about trying methotrexate.

Had a phone call From occupational health this afternoon looks like I am going to be let go !

Not a question just an update

whats happening

My daughter has lupus . . She is moving to england and will be going to leeds for care.Is there a Lupus specialist in Leeds.?

Does rainy, humid weather affect pain?

What Do You Think?

Well finaly starting to get some answers!

Mycophenolate mofetil

Foot ulcers

I have SLE, diagnosed in April 2000. I have no-one looking after me for my Lupus. What blood tests should I be having if any, and how often?

Is this normal: Methotrexate and bad, bad constipation

All new to this!

How can I accept having lupus?

My jaw hurts like crazy it hurts in my ear as well hurts when I open my jaw and chew idk what it iss

Has anyone had a diagnosis of prurigo nodularis with the SLE?

Hey, does anyone have any advice /experience re creams/meds to help with lupus sun rash :-(

Not sure if it is a bad flare or not

A thoughtful petition

Multiple sclerosis

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