Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,002 members • 28,325 posts

All posts for February 2014

Doe's anyone suffer from Avascular Necrosis.

gazzasoens

•10 years ago

12 Replies

hi I joined this so I could find someone with lupus and that could understand the way I feel, I am 18 years old and got diagnosed at 15.

wanting some one to talk to that understands

kayleyburge

•10 years ago

15 Replies

LDN-low dose naltrexone- Has anyone tried it?....if so opinions please!

Hello .....Has anyone tried this drug, and if so please could you let me know how it is going, I have decided to give it a go (I have a friend with MS who has...

Hello .....Has anyone tried this drug, and if so please could you let me know ho...

bam1993

•10 years ago

7 Replies

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Pip refused scored 7 out of 8 points.

I applied for pip august 2013 I finally got my reply today, they refused my claim, they gave me a break down of my needs and said I scored 7 points..the dwp...

I applied for pip august 2013 I finally got my reply today, they refused my clai...

jeevan05

•10 years ago

5 Replies

finally saw my rhuemmy!

hello everyone, just a quick update; I saw my my rhuemmy yesterday and was ready for a battle to get answers and not to be disbelieved again. I waited an hour...

hello everyone, just a quick update; I saw my my rhuemmy yesterday and was read...

caninecrazy

•10 years ago

16 Replies

fibromyagla

hello everyone, I saw my rhuemmy yesterday and was told I now have fibromyalga (sorry probably misspelt it) can anyone shed some light on this for me please...

hello everyone, I saw my rhuemmy yesterday and was told I now have fibromyalga ...

caninecrazy

•10 years ago

3 Replies

Painful pea size lump under left armpit?

I've had a painful armpit for probably 6-7 weeks. Sometimes I can feel a very small pea size lump. Any ideas? Lately my hair loss got worse and so has my...

I've had a painful armpit for probably 6-7 weeks. Sometimes I can feel a very sm...

behappy1

•10 years ago

8 Replies

should I contact rheumatologists secretary

I have an appointment with rheumatologist on 15th march should I email them with details of my medical history and experiences with drs since I last saw him

I have an appointment with rheumatologist on 15th march should I email them with...

anbuma

•10 years ago

9 Replies

Hydroxychloroquine

Just wondered what everyone's thoughts/feelings were about hydroxychloroquine? I was on it for more or less 25 years then developed a skin problem all over my...

Just wondered what everyone's thoughts/feelings were about hydroxychloroquine? ...

Sallyk21

•10 years ago

17 Replies

What does low C3 level in blood test mean?

Just received my latest blood results over the phone and been told that my C3 level is below normal so need to come into the surgery on Monday morning to see...

Just received my latest blood results over the phone and been told that my C3 le...

Belee

•10 years ago

8 Replies

Feeling very lowe and emotional this week. Dry skin pain shooting in my fingers.

Hi all iv been. Very ratty this week, just thought I was coping really well with (lupus but the down side is I'm not deepdown, its very hard to explain your...

Hi all iv been. Very ratty this week, just thought I was coping really well with...

jeevan05

•10 years ago

7 Replies

c4 blood results

Hi there all still a very confused person with my rhuemy My gp done set of bloods he says my c4 is low at 0.17 and rhuemy says it is perfectly normal as she...

Hi there all still a very confused person with my rhuemy My gp done set of blood...

farah1

•10 years ago

9 Replies

Confused! :/

Hi, I am new to this forum and hoping for a bit of advice. I am getting very concerned that the symptoms I have had for the last two years could be due to...

Hi, I am new to this forum and hoping for a bit of advice. I am getting very con...

linz84

•10 years ago

32 Replies

Another pointless appointment...

I feel like I'm wasting my life trying to convince people there is something wrong with me, yet I've never given anyone cause for doubting me in the past!...

I feel like I'm wasting my life trying to convince people there is something wro...

Hidden

•10 years ago

13 Replies

Why am i constantly tired

I am so fed up no energy feel awful and so tired is there anything i could take to help? I am on so much medication been told i can not stop any of it, I have...

I am so fed up no energy feel awful and so tired is there anything i could take ...

rlupus

•10 years ago

6 Replies

Well exit the methotrexate and enter the leflunomide.

Hi all....just an update as some of you know I was starting to struggle with methotrexate. At my rheumy appointment today the consultant recommended...

Hi all....just an update as some of you know I was starting to struggle with met...

mstr

•10 years ago

20 Replies

Telling my son - should I and how do I?

My son is 9, has learning difficulties (nothing drastic hes about a year - 2 years behind his class mates, he is catching up) and has a very slow weak memory...

My son is 9, has learning difficulties (nothing drastic hes about a year - 2 yea...

kazp

•10 years ago

3 Replies

New member with an ankle question!

Hi there. I have undifferentiated connective tissue disease and not Lupus so I hope its ok to post on here. I've been having trouble with my ankles for a...

Hi there. I have undifferentiated connective tissue disease and not Lupus so I h...

Shadowgirl

•10 years ago

1 Reply

I've got discoid sle. Now got bronchitis. Anyone else had it andhow long will it take to get better?

Got antibiotics and inhaler from dr. Not got asthma.Feel rotten. High temp. Painful chest. Coughing.Pushed myself in work last week with a cold! Stopped...

Got antibiotics and inhaler from dr. Not got asthma.Feel rotten. High temp. Pai...

keep-on-going

•10 years ago

3 Replies

Fed up

Does anyone else just get to the point where they can't be bothered anymore. I'm so fed up with having to deal with all the complicated systems of lupus....

Does anyone else just get to the point where they can't be bothered anymore. I'm...

Clairebear

•10 years ago

18 Replies

rheumatology

after a year of trying finally got an appointment with rheumy downside is it s not unitl march

after a year of trying finally got an appointment with rheumy downside is it s n...

anbuma

•10 years ago

4 Replies

bizarre and worrying symptoms ...can anyone shed light?

Hi, I am rather bothered about some strange symptoms I have been getting. I realise my health conditions make the situation more than a little complicated...

Hi, I am rather bothered about some strange symptoms I have been getting. I rea...

bestbuddy

•10 years ago

7 Replies

What to expect from an ESA assessment?

I Have never had an assessment before by ESA and would like to know what to expect from it what would happen during the assessment? how do they assess you? and...

I Have never had an assessment before by ESA and would like to know what to expe...

Danielle2419

•10 years ago

2 Replies

Does anyone have any tips for widespread itching, especially scalp?

I know I shouldn't scratch, but I'm all for clawing my skin red raw. I'm seeing the Rheumy tomorrow so it's probably no bad thing my rashes are bad since it's...

I know I shouldn't scratch, but I'm all for clawing my skin red raw. I'm seeing ...

Hidden

•10 years ago

25 Replies

Severe UTI - what should I do?

Hi guys. I'm new to this lupus journey, and whilst I regularly have UTI's (always a week before my period is due), the one I am having now is the worst yet. I...

Hi guys. I'm new to this lupus journey, and whilst I regularly have UTI's (alway...

Bonnie39

•10 years ago

21 Replies

brain involvment

I suffered a TIA ,(mine stroke ) about 6 months ago and since then i have been having headaches, sharp shooting pains in my head, strange sensations on my head...

I suffered a TIA ,(mine stroke ) about 6 months ago and since then i have been h...

mojo

•10 years ago

7 Replies

I'm worried about telling people how I really feed in case I lose my job.

I was diagnosed with Lupus then told it may be connective tissue disorder, then Lupus...I wish they would confirm it. I get so tired at work that I have...

I was diagnosed with Lupus then told it may be connective tissue disorder, then...

Tassiewoo

•10 years ago

24 Replies

Lumbar puncture and hip pain?

Has anyone who had a lumbar puncture experienced hip/top of legs pain afterwards? I had it done 10 days ago and initially suffered with some lower back pain,...

Has anyone who had a lumbar puncture experienced hip/top of legs pain afterwards...

Purpletop

•10 years ago

23 Replies

lupus,insomnia,hypothyroid etc

Im so confused... I have mild lupus and Im hypothyroid...I was sleeping like 10 hours before. My thyroids been bouncing around a little lately, but mostly to...

Im so confused... I have mild lupus and Im hypothyroid...I was sleeping like 10...

dgleds

•10 years ago

Be the first to reply

Getting More Exposure for Lupus: Thanks, Kelly Simpkin, for being brave enough to go public!

I was delighted when my mother-in-law rang just now to tell me about a piece in the Mail on Sunday (and Mail Online): Kelly Simpkin, the beautiful, glamorous...

I was delighted when my mother-in-law rang just now to tell me about a piece in ...

Carcrashgal

•10 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2014

Doe's anyone suffer from Avascular Necrosis.

hi I joined this so I could find someone with lupus and that could understand the way I feel, I am 18 years old and got diagnosed at 15.

LDN-low dose naltrexone- Has anyone tried it?....if so opinions please!

Pip refused scored 7 out of 8 points.

finally saw my rhuemmy!

fibromyagla

Painful pea size lump under left armpit?

should I contact rheumatologists secretary

Hydroxychloroquine

What does low C3 level in blood test mean?

Feeling very lowe and emotional this week. Dry skin pain shooting in my fingers.

c4 blood results

Confused! :/

Another pointless appointment...

Why am i constantly tired

Well exit the methotrexate and enter the leflunomide.

Telling my son - should I and how do I?

New member with an ankle question!

I've got discoid sle. Now got bronchitis. Anyone else had it andhow long will it take to get better?

Fed up

rheumatology

bizarre and worrying symptoms ...can anyone shed light?

What to expect from an ESA assessment?

Does anyone have any tips for widespread itching, especially scalp?

Severe UTI - what should I do?

brain involvment

I'm worried about telling people how I really feed in case I lose my job.

Lumbar puncture and hip pain?

lupus,insomnia,hypothyroid etc

Getting More Exposure for Lupus: Thanks, Kelly Simpkin, for being brave enough to go public!

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