just a quick update; I saw my my rhuemmy yesterday and was ready for a battle to get answers and not to be disbelieved again. I waited an hour over my apt time and surprised to her response! I was firm but not rude and had written my list of all whats happened since I last saw her in march 13 (appts cancelled and changed by hospital) she actually listened and didn't butt in or speak over me or tutt.......she heard me......I sounded like I was reeling off things from the generation game conveyor belt as I knew she would be in a hurry to get rid of me and make up lost time! im surprised that she could understand what I was saying as my speech was slurred and jumbled I explained that I have basically been left on my own as 3 GP's I saw hadn't a clue what lupus was and that I was very angry at waiting 11 months to see her when I had been so poorly.
she agreed and said I can go to the hospital and request an apt with her at reception should this happen again.....shes never offered me that before!
then she said ive fibromyalga (spelt wrong) as the cronic fatigue isn't just lupus as my blood tests have been a steady level and don't indicate a flare?? she gave me 2 steroid jabs in each butt cheek which are sore and bit lumpy today waiting for that to kick in she sent me for an xray to check my heart and lungs as im short of breathe,i see her again in may to get results.
I have posted a q on here reguarding the fibromyalga. she gave me Dekristol (vit D) 20,000units 3 times a week to help with fatigue as I have to avoid the sun all year round as best I can.
she give me Duloxetine for the fatigue,pain and mild anti-depressant for fibromyalga.
I am still in shock that she heard me, believed me and helped me.........I did admit that I don't live I exsist and that im at my lowest and never want another year like last year.
I just wanted to say that I feel an inkling of hope again
fingers crossed the meds work I actually smiled as I left the hospital x