Just wondered what everyone's thoughts/feelings were about hydroxychloroquine? I was on it for more or less 25 years then developed a skin problem all over my body (sebhoerric keratosis) I was referred to a skin specialist who suggested stopping hydroxychloroquine, which I did, however nothing changed. I was then told at a hospital appt some 18 months later that although my bloods were ok I should go back on it as it helped lupus patients with cardiovascular problems (I so far don't have any)! I went back on it but have now developed macular degeneration in one eye so although hydroxychloroquine hasn't caused this, I'm cautious so stopped it on agreement with my rheumatologist. I had an appt yesterday and saw a different doctor who I felt was trying to bully me into starting it again, but couldn't explain, in my case why? Just wondered what others experience was (sorry for the long post)!!!!
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