Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,833 members • 28,173 posts

All posts for January 2013

National radio awareness of Lupus

Lupus awareness got some air time on UK Radio 2 today. Here's the link to the programme on iplayer it starts about 1:08 hrs in...

Lupus awareness got some air time on UK Radio 2 today. Here's the link to the p...

fabwheelie

•11 years ago

10 Replies

Does anyone have problems with their eyes? I've had lupus and APS for over 30 years and never had any issues with my eyes till now.

Woke up just before Christmas with a slight blurring in my left eye which didn't go away. Ended up being diagnosed with choroidal neovascular membrane which...

Woke up just before Christmas with a slight blurring in my left eye which didn't...

Delila

•11 years ago

7 Replies

At the moment life is so bad, no sleep for 4 nights, just can't stop hurting. Even the telly is garbage, (the humax box and the dvd

Both packed up within days of each other. The highlight of my life is that 'Friends' advert with Harvey and rabbit. Blinding! Even makes me smile when I'm...

Both packed up within days of each other. The highlight of my life is that 'Frie...

jayniey

•11 years ago

7 Replies

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Radio 2 Now

Hi all, Jeremy Vine is now covering Lupus on todays programme. It's very interesting = thought everyone might like to know to tune in.

Hi all, Jeremy Vine is now covering Lupus on todays programme. It's very intere...

mstr

•11 years ago

10 Replies

In a flare with some new symptoms....

I've just gone into a flare. I had a steroid injection just before Christmas. I always flare when the injection wears off. My new symptoms are terrible,...

I've just gone into a flare. I had a steroid injection just before Christmas. I ...

purple-lou

•11 years ago

5 Replies

have i got lupus just want to know ,easier to kick ass when you it's name

had problems for years but just going to fast forward to last few years.lived in spain for 4yrs.wasn't well for a while stomache tender,feeling weak,hardly...

had problems for years but just going to fast forward to last few years.lived in...

letslaugh63

•11 years ago

9 Replies

Hi everyone, Has anyone been to a ESA tribunal?

I am still waiting for the date to attend mine. It would be helpful If I could get some idea of what happens at the appeal interview, as I am feeling quite...

I am still waiting for the date to attend mine. It would be helpful If I could g...

field

•11 years ago

7 Replies

Any answers gratefully received.

I was first told I had lupus about 14 years ago went through all the initial process of medication and tests. At that time I saw a leading lupus professor who...

I was first told I had lupus about 14 years ago went through all the initial pro...

BetsieBoo

•11 years ago

8 Replies

Looking for fellow Cryoglobulinemia sufferers :-)

I have SLE and secondary mixed Cryoglobulinemia vasculitis and was wandering if anyone else has been diagnosed with Cryo as well as it's pretty rare. The aim...

I have SLE and secondary mixed Cryoglobulinemia vasculitis and was wandering if ...

helsnz34

•11 years ago

2 Replies

With the scandal of Staffordshire in the News again and all our healthcare at stake

Please take the time to sign this petition and pass it on. I need help with this, it will only take off if people can gain signatures for it. Thank you....

Please take the time to sign this petition and pass it on. I need help with this...

MaryF

•11 years ago

4 Replies

Does Plaquenil affect your temperament?

Hi, guys. Am looking hopefully to get an answer or at least maybe some guidance. After 10 of being dx with SLE, i took things into my own hands and got...

Hi, guys. Am looking hopefully to get an answer or at least maybe some guidanc...

MandieR

•11 years ago

11 Replies

Lupus "Like" syndrome with APS, newly diagnosed

Hello everybody, I've mainly been posting on the Hughes Syndrome blogs, but I have been diagnosed with APS and Lupus "Like" Syndrome. I've also been...

Hello everybody, I've mainly been posting on the Hughes Syndrome blogs, but I ha...

anniesensi

•11 years ago

6 Replies

Skin

I used to have lovely, smooth, white skin. Since being diagnosed with SLE and taking medication, the quality of my skin has changed dramatically: I have small...

I used to have lovely, smooth, white skin. Since being diagnosed with SLE and t...

Purpletop

•11 years ago

21 Replies

ESA assessment

Hi everyone, i have been on disability for a few years. I have Lupus, auto immune hepatitis, Sjogrens and Fibromyalgia. I also have other things going on. Lung...

Hi everyone, i have been on disability for a few years. I have Lupus, auto immun...

jacqueline121

•11 years ago

17 Replies

Chest pain

I wondered if anyone else suffers with chest pain and tightness ? Mine is driving me mad at the mo'!!! Been such a busy time and now I feel so ill I don't know...

I wondered if anyone else suffers with chest pain and tightness ? Mine is drivin...

Olibop

•11 years ago

17 Replies

Cold Turkey!

Happy 2013 to you all. I am new to this blog site, came in search of you all because I needed some like-minded folks to chat to. I have lupus, but despite...

Happy 2013 to you all. I am new to this blog site, came in search of you all bec...

Helly72

•11 years ago

10 Replies

Light at the end of the tunnel

Been diagnosed with Lupus for over 20 years, am in my 41st year now. Plodded on as best I could until 2002 as I had spondylilothesis, with was repaired with a...

Been diagnosed with Lupus for over 20 years, am in my 41st year now. Plodded on...

poole_odyssey

•11 years ago

1 Reply

Had enough

I'm 23 and have been diagnosed with Lupus just over a year. I had a breakdown today. I feel like I am getting worse and worse, Today I have a migraine my hip...

I'm 23 and have been diagnosed with Lupus just over a year. I had a breakdown to...

XliddybX

•11 years ago

13 Replies

Adrenal Fatigue

Has anyone ever been diagnosed with this alongside other ailments..eg Lupus, Fibromyalgia etc. Was doing some internet surfing about the latter the other day...

Has anyone ever been diagnosed with this alongside other ailments..eg Lupus, Fib...

jamg3916

•11 years ago

7 Replies

Lupus and general anaesthetic

I need to have more investigations done that can be done without anaesthetic but which will be uncomfortable rather than painful. I can opt for GA but don't...

I need to have more investigations done that can be done without anaesthetic but...

DaleDiva

•11 years ago

4 Replies

Topic of the Month: December - Fatigue

Fatigue is one of the most common symptoms of lupus and it is often described by lupus patients as one of the most debilitating. For some people with lupus,...

Fatigue is one of the most common symptoms of lupus and it is often described by...

Paul_Howard

Partner•11 years ago

19 Replies

Does anyone follow a specific diet to treat lupus, raynauds and sjorgrens

Niokke

•11 years ago

8 Replies

Does anyone have homeopathy to treat lupus, raynauds and sjorgrens

Niokke

•11 years ago

6 Replies

Does anyone have Addison's disease as well as LUPUS?

Sarajane13

•11 years ago

6 Replies

How many of us take regular exercise?????? This doesnt include walking to the fridge several times a day. heehee .

lemonface

•11 years ago

11 Replies

Lupus and Leukaemia

I have Lupus and am now recovering from treatment fo Leukaemia. Has anyone experience of these two conditions together? Thanks

I have Lupus and am now recovering from treatment fo Leukaemia. Has anyone exper...

Dutch

•11 years ago

3 Replies

Anyone living in the London area? Meetup and get out :)

Hiya lovies, New Year, New me! Anyone living in the London area? I live in the Oval and it would be lovely to meet up and get out or if you can not...

Hiya lovies, New Year, New me! Anyone living in the London area? I live...

shyandsmiley

•11 years ago

35 Replies

Dry cracked skin .......

Do any of you suffer from this ? my hands are dreadful this year, not with the raynaulds but with cracked skin, its awful awful ....... the skin on my heels...

Do any of you suffer from this ? my hands are dreadful this year, not with the r...

jemmyjemjem

•11 years ago

11 Replies

new relationship...when do you tell them you have lupus?

My marriage of 23yrs has come to an end because he doesnt believe i am ill and thinks im lazy and that he's carrying me. he gets physically and mentally...

My marriage of 23yrs has come to an end because he doesnt believe i am ill and t...

sharonleane

•11 years ago

18 Replies

Having really rough time. Isn't 2013 wonderful! Just been diagnosed with pulmonary hypertension to add to the list.

Pulmonary hypertension, severe COPD, Marfan, Lupus, Ehlers-Danlos, left side paralysis (including diaphragm), +++ Still, I should be grateful, if I didn't get...

Pulmonary hypertension, severe COPD, Marfan, Lupus, Ehlers-Danlos, left side par...

jayniey

•11 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2013

National radio awareness of Lupus

Does anyone have problems with their eyes? I've had lupus and APS for over 30 years and never had any issues with my eyes till now.

At the moment life is so bad, no sleep for 4 nights, just can't stop hurting. Even the telly is garbage, (the humax box and the dvd

Radio 2 Now

In a flare with some new symptoms....

have i got lupus just want to know ,easier to kick ass when you it's name

Hi everyone, Has anyone been to a ESA tribunal?

Any answers gratefully received.

Looking for fellow Cryoglobulinemia sufferers :-)

With the scandal of Staffordshire in the News again and all our healthcare at stake

Does Plaquenil affect your temperament?

Lupus "Like" syndrome with APS, newly diagnosed

Skin

ESA assessment

Chest pain

Cold Turkey!

Light at the end of the tunnel

Had enough

Adrenal Fatigue

Lupus and general anaesthetic

Topic of the Month: December - Fatigue

Does anyone follow a specific diet to treat lupus, raynauds and sjorgrens

Does anyone have homeopathy to treat lupus, raynauds and sjorgrens

Does anyone have Addison's disease as well as LUPUS?

How many of us take regular exercise?????? This doesnt include walking to the fridge several times a day. heehee .

Lupus and Leukaemia

Anyone living in the London area? Meetup and get out :)

Dry cracked skin .......

new relationship...when do you tell them you have lupus?

Having really rough time. Isn't 2013 wonderful! Just been diagnosed with pulmonary hypertension to add to the list.

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