Anyone got good pain relief from fibromyalgia?

[BetsieBoo]

I'm struggling to get fibro pain under control.. I treat lupus pain with oral morph and tramsdol but this is not working for my fibro pain.

I'd be really grateful for any help please

[goldengirl101]

I feel for you, know exactly what you're going through! Have you tried Hydroxychloroquine (Plaquenil)? i have Lupus, Sjogrens syndrome, APS & fibro .... I take Plaquenil & Methotrexate. I also have to take 210 mg of MST (tablets), Oramorph which I have to take a very high dose 30ml every four hrs! I also have Dihydrocodeine, Tramadol, gabapentin. Do you take Amitriptyline? I take them for muscle relaxant. I have to take venlafaxine (antidepressant) not because my illness but because of the 2 major strokes I had a few yrs ago! I hope some of this makes sense to you. I'm sorry if it seems a bit jumbled! I hope you can manage to get something sorted out for your pain! I know how awful the pain can be at times! Talk it over with your consultant or your GP & explain how bad it is for you, I'm sure they will be understanding! Good luck with it.

[Hidden]

Consult with your doctor/s about optional Rx treatments.

Many Fibromyalgia patients are prescribed and have relieve with Rx Pregabalin / Lyrica or Rx Gabapentin - but these might not be appropriate Rxs for your individual situation.

I'm certain the Fibromyalgia effected members will chime in soon with their valued experience.

How wonderful if one of them worked for you!

FYI : Tramadol does come in extended release form (called Tramadol ER) which for some patients works better than the non extended release form. Tramadol ER available in once a day dose of 100mg, 200mg, and 300mg. Rather remarkable stuff.

Take care.

[BetsieBoo]

Thank you for replying I appreciate the advise. I've tried most of your suggestions but not as a combo - will talk to docs next appt. what I really need is something to take on a bad day, like you'd take a paracetamol for a headache! I am at a very high dose of oral morph 60mls per 4hours without much relief - I've become so tolerant over the past 15 years. I went to a pain clinic which was a waste of time. They were more interested in lowering my dose of opioids (which I understand) rather than helping with pain relief.

I do have a fentanyl patch (more opioid) and used to have fentanyl lollipops which were great but it cost the nhs so much they, apparently, are only for cancer patients now.

***Nouska, Can I ask you to explain what Rx treatment is please, that's something new to me.***

Again thank you both for replying.

[SuzyB]

Hi I try to stick to Naproxen & Tramadol as they allow me to still come to work and my brain to work as clearly as possible. I have MCTD & Fibro and have sometimes had to resort to butrans patches. The downside is they make me a bit of a space cadet so driving is a no no...

[helentad]

Hi, I was recommended to use Bu-Trans Patches by the pain clinic. I started on 5mg and am now on 10 mg. you put it on the top of your arm and wear for 7 days changing at the same time every week. As it releases a constant source of morphine in a low dose it is used alongside tramadol and paracetemol. Ask your pain clinic or reumy.

Hope it helps Helen