I have been struggling without a concrete diagnoses for a little over four years now, but my doctor is hedging his bets on Behcet's. I don't have any eye or gastro symptoms (yet), which is why he's hesitant to make it official. However, despite clear Behcet's symptoms (mouth/genital ulcers), I'm worried he might be going down the wrong path based on the pain aspect. Everything I read about Behcet's suggests my pain should be in my joints, but it's not. I have pain all over. It feels like every nerve in my body is firing; I ache all over, it hurts to even touch my skin, and it's my muscles more than my joints that cause the most pain. It seems more like how fibromyalgia pain is described. Except fibro doesn't come with ulcers!
Anyone else here experience pain like I'm describing? Not that Behcet's is an easy diagnosis, but I feel like my doc might be ignoring significant differences in pain presentation because of my other symptoms. Unless widespread fibro-like pain is also common in Behcet's, but just not the literature? Help!