ANY MALES WITH LUPUS/SLE, SJOGREN'S OR UNDIFFERENTIATED CONNECTIVE TISSUE DISEASE?

[RupertW-SUMS]

There was a great response to the invite for interviewees for zoom or email interviews for the Swansea University Medical School diagnostic journeys study; and the interviews have been incredibly helpful.

We are not too far off the total number of interviewees we need at this stage. But have had very few interviews with males. From the literature, and my own experience, I think that being male can impact on the diagnostic journey (sometimes for better and sometimes for worse). And also males tend to have different symptom patterns.

It would be great therefore to be able to interview on zoom or via email some more guys, so as to help ensure that their experiences are represented. Though we would still very much like to interview others as well.

If you are a guy with SLE, Sjögren’s or UCTD

So if you are a guy with lupus/SLE, Sjögren’s or UCTD and might be interested in being interviewed, please see the information on the link at bottom of this post and/or see the Lupus UK short article about the study.

If you know guys with SLE, Sjögren’s or UCTD

And if you know any guys with SLE, Sjögren’s or UCTD (maybe in your local lupus, Sjögren’s or other support group) could you please pass on this information and see if they might be interested in being interviewed.

Study information

Link to info about study and how to take part:

swansea.onlinesurveys.ac.uk...

Lupus UK article about the study:

lupusuk.org.uk/diagnostic-j...

Thanks for any help you can give on this and thanks to those who have been interviewed already.

[GottaAsk]

do you have to be in UK!? Sorry just ran into this. I am from USA living in Switzerland but diagnosed UCTD with scleroderma and Lupus overlap onset. Have been at this for a couple years now and definitely would fit your study if you’re open to a little outside UK English speakers.