Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,179 members•28,518 posts

All posts for September 2024

Broccoli Sprout Extract / Sulforaphane

Hi everyone, I’m reaching out for some help. I was diagnosed with SLE five years ago and have been seeing my rheumatologist regularly. My blood tests indicate...

Hi everyone, I’m reaching out for some help. I was diagnosed with SLE five year...

FEEL-THE-BLUE

•28 days ago

2 Replies

letter following appt

Hi All, I recently saw my rheumatologist for my yearly review. I received a letter with my blood and urine test results. It says O/E urine dip Tr protein....

Hi All, I recently saw my rheumatologist for my yearly review. I received a le...

RA_123

•28 days ago

2 Replies

Women's health

It seems the government is now focusing on women's health but I feel they have forgotten about auto immune conditions that predominantly affect women...

It seems the government is now focusing on women's health but I feel they have f...

catblue1865

•29 days ago

1 Reply

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Seeking diagnose

Hi I'm on the waiting list at a specialist centre for last attempt at an overall diagnoses. I've had at least 4 conditions separately diagnosed and have typed...

Hi I'm on the waiting list at a specialist centre for last attempt at an overall...

catblue1865

•29 days ago

2 Replies

Just curious, has anyone been diagnosed with COPD since being diagnosed with Lupus?

I was first diagnosed with asthma, but my lung function has dropped so quickly, it was changed to asthma/COPD. I have never smoked in my life. I am just...

I was first diagnosed with asthma, but my lung function has dropped so quickly, ...

Willow7733

•1 month ago

6 Replies

Possible Lupus?

I've recently had a panel of bloods including FBC, Auto Immune panels, Thyroid ( I have thyroid disease) and others following a GP visit about multiple mouth...

I've recently had a panel of bloods including FBC, Auto Immune panels, Thyroid ...

Femme1

•1 month ago

7 Replies

Anyone take Saphnelo infusions? Would love to hear feedback...

Going to try the Saphnelo infusions.... has anyone had experience with this? Similar to Benlysta but not as much research out yet... thanks.

Going to try the Saphnelo infusions.... has anyone had experience with this? Sim...

amberb444

•1 month ago

1 Reply

Require a Lupus Specialist

Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bits chopped out of my vagina and body. Please I am now desperate. I am look for...

Hello can anybody help. I am looking for a lupus specialist. Sick. Of having bit...

Hurtingpains

•1 month ago

2 Replies

Southampton Lupus Centre of Excellence

Has anyone had experience of Dr Davidson at this clinic? I have my first appointment here next week, any pointers or advice?

Has anyone had experience of Dr Davidson at this clinic? I have my first appoint...

IsleofWight1

•1 month ago

2 Replies

Suddenly getting 'Restricted Access' across 'all HealthUnlocked Communities' and not understanding why

Sharing this in case it ever happens to anyone else. On Friday evening I went to check posts and got red banner messages saying that my access had become...

Sharing this in case it ever happens to anyone else. On Friday evening I went t...

StriatedCaracara

•1 month ago

4 Replies

Persistent trace/low level protein in urine

Hi all I've had persistent trace or low level amounts of protein in urine tests since April -checked on 5 occasions at hospital. Sometimes there is also trace...

Hi all I've had persistent trace or low level amounts of protein in urine tests...

Beau2016

•1 month ago

5 Replies

Shingles or lupus rash ?

Hello I was wondering if anybody had any insight on what this rash could be? I am prone to shingles and on prophylactic antivirals as I am primary...

Hello I was wondering if anybody had any insight on what this rash could be? I a...

Ava0

•1 month ago

19 Replies

I am getting a kitten!!

Just thought I would post a happy event. I live alone - moved to the city I live in now for work at a local hospital. No friends or family. So, thought maybe...

Just thought I would post a happy event. I live alone - moved to the city I live...

Willow7733

•1 month ago

29 Replies

Pppp Pick up a Cutie

Hello EveryoneJust thought it was time for a fun cutie pic and here it is. I Hope you all agree. A groom at his wedding in Chester during the summer, decided...

Hello EveryoneJust thought it was time for a fun cutie pic and here it is. I Hop...

misty14

•1 month ago

16 Replies

Covid, Paxlovid and vomiting

Hello all. I tested positive for Covid, got prescribed Paxlovid and it's causing vomiting. Obviously a big problem with my other lupus meds. I've contacted the...

Hello all. I tested positive for Covid, got prescribed Paxlovid and it's causing...

Treetop33

•1 month ago

20 Replies

Insoles

I have Lupus but this question isn't strictly related to a Lupus symptom, so I hope that's okay. I had a stress fracture in my foot a couple of years ago and...

I have Lupus but this question isn't strictly related to a Lupus symptom, so I h...

BookishVibes

•1 month ago

11 Replies

No diagnosis

Hi. I've been ill for a few years and twice had blood tests for Lupus but as all came back clear I'm not sure what I can ask the GP to try next. He is adamant...

Hi. I've been ill for a few years and twice had blood tests for Lupus but as all...

Pastalasta

•1 month ago

15 Replies

New pet

MorningHope you are as well as you can be. I'm going through a really tough time at the moment. Feeling really low and unloved. My husband bought me the...

MorningHope you are as well as you can be. I'm going through a really tough time...

JCZW

•1 month ago

34 Replies

iV hydrocortisone taper

I've just had surgery for lacerations to my lower half. As part of peri-operative care, my normal daily dose of 5mg methyl pred has been supplemented with four...

I've just had surgery for lacerations to my lower half. As part of peri-operativ...

whisperit

•1 month ago

22 Replies

Support for men living with lupus

We are excited to partner with The Wren Project to pilot a group listening space specifically designed for men living with lupus. Launching this October, we...

We are excited to partner with The Wren Project to pilot a group listening space...

nakita_cambow

Moderator•1 month ago

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Rash on face not responding to steriods

Does anyone have an experience of repetitive skin flare ups on face and what worked for you to get it under control enough to allow skin to heal? Whilst...

Does anyone have an experience of repetitive skin flare ups on face and what wor...

smeackles

•1 month ago

26 Replies

UCTD?

Hello ,Has anyone noticed that there now appears to be no reference to UCTD on the Lupus uk website. Spoke to someone there today who had heard of UCTD but...

Hello ,Has anyone noticed that there now appears to be no reference to UCTD on t...

Narni21

•1 month ago

24 Replies

Mira and Bea

Hi folks I thought everyone could do with a Mira pic - with gorgeous Elvis In the background. I’ve actually changed my surname to Presley as he has always been...

Hi folks I thought everyone could do with a Mira pic - with gorgeous Elvis In th...

svfarmer

•2 months ago

55 Replies

Lupus and Perimenopause - Doctor

Does anyone have a recommendation for a rheumatologist that has a good understanding of HRT, peri and menopause? I am desperately looking for a consultant who...

Does anyone have a recommendation for a rheumatologist that has a good understan...

Dicko2006

•2 months ago

10 Replies

vertigo

can anyone please advice what to do about on going vertigo I take meds I do the exercises m now afraid to move around I stay I bed most of the times I will...

can anyone please advice what to do about on going vertigo I take meds I do the ...

Mystik

•2 months ago

7 Replies

progression

not sure I should post this here as dont know if anyone else suffers but as of late I feel like I can be sitting on a washing machine is only way I know how to...

not sure I should post this here as dont know if anyone else suffers but as of l...

stiff19

•2 months ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2024

Broccoli Sprout Extract / Sulforaphane

letter following appt

Women's health

Seeking diagnose

Just curious, has anyone been diagnosed with COPD since being diagnosed with Lupus?

Possible Lupus?

Anyone take Saphnelo infusions? Would love to hear feedback...

Require a Lupus Specialist

Southampton Lupus Centre of Excellence

Suddenly getting 'Restricted Access' across 'all HealthUnlocked Communities' and not understanding why

Persistent trace/low level protein in urine

Shingles or lupus rash ?

I am getting a kitten!!

Pppp Pick up a Cutie

Covid, Paxlovid and vomiting

Insoles

No diagnosis

New pet

iV hydrocortisone taper

Support for men living with lupus

Rash on face not responding to steriods

UCTD?

Mira and Bea

Lupus and Perimenopause - Doctor

vertigo

progression

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