Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for February 2024

Possible Malar rash

Hello because of symptoms I am suffering, my GP has referred me to rheumatology, neurology, and dermatology to see what the possible cause is. And I was...

Hello because of symptoms I am suffering, my GP has referred me to rheumatology,...

Nightowl_22

•9 months ago

1 Reply

New research

This is the second feature I've seen recently that touches on new studies. The other was in The Telegraph, (uk), and I couldn't access it all without...

This is the second feature I've seen recently that touches on new studies. The o...

Wolfie_at_the_door

•9 months ago

5 Replies

I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus

Hi, I have been having concerns for over a year about me having Lupus. I had a blood test last year which everything came back normal and the ANA was negative...

Hi, I have been having concerns for over a year about me having Lupus. I had a b...

katiepops2004

•9 months ago

13 Replies

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Meds make me sleepy!

hi there I take 200mg Hydroxy and 75mg Azathioprine but every time I take them, I instantly get sleepy and feel like I need a nap. Is this right? Is this...

hi there I take 200mg Hydroxy and 75mg Azathioprine but every time I take them...

ManiKochar

•9 months ago

1 Reply

insomnia- help!

Hello- what do you do to occupy yourself when insomnia hits? A week of waking at 12/1 and not nodding off until gone 5 and am running out of things to do. Have...

Hello- what do you do to occupy yourself when insomnia hits? A week of waking at...

Whatafaff21

•9 months ago

9 Replies

Positive ANA and Symptoms

Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:1280 This was never really followed up & I didn't understand it as I was only...

Hi everyoneI first tested positive for ANA (high) back in 2014 think it was 1:12...

JCM1992

•9 months ago

3 Replies

Hydroxychloroquine serious side effects?

I was put on Hydroxychloroquine and within 5 days my body was so painful I could hardly walk. Extreme stiffness which gradually eased throughout day but...

I was put on Hydroxychloroquine and within 5 days my body was so painful I could...

Newlupus76

•9 months ago

9 Replies

RO 52 Positive

I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynaud's, rashes, splinter hemorrages, tiredness, breathlessness on exertion,...

I have tested positive for isolated RO52 antibodies. ANA negative. I have Raynau...

Graysonfur

•9 months ago

3 Replies

I don’t know what this is…

I woke up yesterday with this rash/hives on my right side of my jaw. It burns but is itchy too. My lymph nodes under my right jaw is swollen too. Been so tried...

I woke up yesterday with this rash/hives on my right side of my jaw. It burns bu...

Willow7733

•9 months ago

9 Replies

I don't have a magic wand

I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled...

I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am ...

Peppermints

•9 months ago

10 Replies

Neck glands

My neck glands, one side of the other, seem to be constantly sore, some times just a little and sometimes needing a lot of pain relief. Is this a sign of...

My neck glands, one side of the other, seem to be constantly sore, some times ju...

IsleofWight1

•9 months ago

6 Replies

Osborne House on a Sunny Sunday

A couple of miles walking around here from the walled garden down to Queen Victoria’s beach with my walking buddies.

A couple of miles walking around here from the walled garden down to Queen Victo...

IsleofWight1

•9 months ago

1 Reply

SLE lupus

I've had this illness since 2003 and hv learnt to managed it ok, but it's hard depending on the type nothings straight forward. I've had rashes painfully...

I've had this illness since 2003 and hv learnt to managed it ok, but it's hard d...

HARVEYruby

•9 months ago

1 Reply

Itchy and soreness.

I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and last summer was one of the worst. I was put on hydroxychloroquine at first, but...

I’ve was diagnosed with lupus in 2013. I’ve had a few flares with the skin and l...

elizabeth-57

•9 months ago

4 Replies

Prednisolone for Lupus Flare

Hello Does anyone find a short course of Prednisolone help with fatigue and joint pain during a Lupus Flare? Chris5530

Hello Does anyone find a short course of Prednisolone help with fatigue and joi...

Chris5530

•9 months ago

13 Replies

Does this look like a malar rash? Would it be seen as one by a doctor, do you think?

I have had joint pain and tiredness for the last six years. This last year it has got significantly worse and although I am overweight, the pain is felt in my...

I have had joint pain and tiredness for the last six years. This last year it ha...

Fluffymella

•9 months ago

2 Replies

Hi, I have had bilateral pleural effusion since December 22 . Consultants are all saying lupus sle but my ANA was negative

Hi everyone Newbie, I’ve been battling for a diagnosis since 2014 when a butterfly rash appeared on my face, my then doctor sent me to a rheumatologist and I...

Hi everyone Newbie, I’ve been battling for a diagnosis since 2014 when a butte...

Numptybrain

•9 months ago

6 Replies

ANA Negative

My gp sent me for a ANA blood test which came back negative. She has referred me for a rheumatology appointment before the results came back, but I don't want...

My gp sent me for a ANA blood test which came back negative. She has referred m...

Toffee12345

•9 months ago

3 Replies

Neurological symptoms

Hello Has anyone experienced neurological symptoms with SLE? I'm waiting to see neurology but a nurse I saw said it could just be my lupus. I have weakness...

Hello Has anyone experienced neurological symptoms with SLE? I'm waiting to see ...

Sunshine634

•9 months ago

13 Replies

cutaneous lupus

Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my scalp. Have you tried dermovate hair and scalp liquid? My consultant prescribed...

Hello Kim, I also suffer from cutaneous lupus and I have recently had it in my ...

Beryl2485

•9 months ago

7 Replies

lupus - itchy scalp and hair lost

Hi everyone, not sure if anyone has experienced itchy scalp like it. Even apply the Novasone ointment, still very itchy and and it also has something like...

Hi everyone, not sure if anyone has experienced itchy scalp like it. Even apply ...

Kim_21

•9 months ago

8 Replies

azathioprine

I have just been prescribed azathioprone for my lupus sle and aps and I was wondering what side effects anyone got? Does everyone take it suffer hair loss and...

I have just been prescribed azathioprone for my lupus sle and aps and I was wond...

Newlupus76

•9 months ago

8 Replies

Cutaneous Lupus

Can anyone tell me if you have any physical symptoms with cutaneous lupus? I was diagnosed with Lupus back in 1999. I had sores on my scalp, they biopsied...

Can anyone tell me if you have any physical symptoms with cutaneous lupus? I w...

Angel767

•9 months ago

4 Replies

Nurosym

Has anyone tried the Nurosym devise to help manage their lupus fatigue? If so, did you have a good experience with it? Thanks!

Has anyone tried the Nurosym devise to help manage their lupus fatigue? If so, d...

Fernlife

•9 months ago

1 Reply

High Blood Pressure and Lupus

Hi, I currently have high blood pressure and I'm taking Ramipril but I'm also having a flare which is playing havoc with my joints. Everything I read says...

Hi, I currently have high blood pressure and I'm taking Ramipril but I'm also ha...

Brackensmum

•9 months ago

6 Replies

Another post on diagnosis

Hi, I’m here hopefully for some advice as I don’t really know where to turn at this point, I’m sort of sick of trying to figure out what’s wrong with me...

Hi, I’m here hopefully for some advice as I don’t really know where to turn at...

Dolly___

•9 months ago

12 Replies

Groups eligible for covid-19 spring booster announced

The groups eligible for the spring 2024 Covid-19 booster vaccine have now been announced. But it is not yet clear what date invitations will be sent or when...

The groups eligible for the spring 2024 Covid-19 booster vaccine have now been a...

Debbie_kinsey

Administrator•9 months ago

6 Replies

lungs

hi does anyone have restrictive lungs or oxygen that drops

Hometeam2016

•9 months ago

6 Replies

World-first discovery may enable an effective long-term lupus treatment 🍀

That's really good news lupis 🦋💜🐺🙂...

Naladog

•9 months ago

1 Reply

Can azathioprine cause chest pains?

Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for approximately 20 years. Have been experiencing chest pains on my left side...

Hi, I have been on azathioprine tablets mostly 75mg to 100mg for my Lupus for a...

JanJan63

•9 months ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2024

Possible Malar rash

New research

I am waiting to find out if I have Lupus but I haven’t got my ANA result back yet and I want to know if people think this could be lupus

Meds make me sleepy!

insomnia- help!

Positive ANA and Symptoms

Hydroxychloroquine serious side effects?

RO 52 Positive

I don’t know what this is…

I don't have a magic wand

Neck glands

Osborne House on a Sunny Sunday

SLE lupus

Itchy and soreness.

Prednisolone for Lupus Flare

Does this look like a malar rash? Would it be seen as one by a doctor, do you think?

Hi, I have had bilateral pleural effusion since December 22 . Consultants are all saying lupus sle but my ANA was negative

ANA Negative

Neurological symptoms

cutaneous lupus

lupus - itchy scalp and hair lost

azathioprine

Cutaneous Lupus

Nurosym

High Blood Pressure and Lupus

Another post on diagnosis

Groups eligible for covid-19 spring booster announced

lungs

World-first discovery may enable an effective long-term lupus treatment 🍀

Can azathioprine cause chest pains?

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