Hi everyone, not sure if anyone has experienced itchy scalp like it. Even apply the Novasone ointment, still very itchy and and it also has something like plaque….
Also, I experience lots of hair loss and hasn’t recovered. Anyone can share some tips that would be great.
thank you
Hi Kim, I would go back to your doctor maybe the ointment not agreeing with you. I had a very itchy scalp before I was diagnosed with lymphoma , but don’t panic I did have loads of other symptoms and it’s a rare side effect of lupus I also have mctd. My hair has always been thin especially after chemo, I’ve tried a lot of products, I’m trying Champo hair products just now, it is expensive but a month in and I think it it helping a little. If this doesn’t work I was thinking about some hair toppers but I’m not there yet. My hair was also very dry which I think didn’t help the itchiness .maybe try the hot oil products to see if it helps.
thank you Lizard.
The thing is that doctor always it’s because of Lupus and gave me another type of ointment… when the scalp is itchy, it’s hard to put hair roper on top. It’s even more itchy . Since I have diagnosed with lupus and losing lots of hair, I have no more joy anymore. I don’t know what to do, so many lupus people don’t have the same situation like me.
I would maybe ask for a referral to a dermotologist, they might give you a more suitable ointment. I know how you feel, I was embarrassed scratching my scalp all the time. I know mine was different and once my chemo started it disappeared, thank goodness. I do sympathise with you.
Hi Kim_21, Sorry to hear of the symptoms of an intense itchy dry Scalp.
I also suffer with this condition. It is a symptom of my Dermatomyositis which affects both skin & muscles.
I have found that Elocon Steriod Scalp Lotion along with Capasal Therapeutic Shampoo helped give me some relief from the itch that made me feel like ripping my Scalp off.
However, after being of Elocon Steroid Scalp Lotion for a number of years, I have been switched onto Betnovate Scalp Lotion (does not contain Steroid). This med does help, but not as effective as Elocon for me.
Please get referred to a Dermatologist. They will assess you and put you on this best treatment path.
Please keep us informed. Thank You.
Good Luck x
Hi Kim,Sorry to hear you are having a problem.
Check your shampoo to make sure they don't have sulphates in them if they do you will probably will want to change them to something with no sulphates in them there is alot of shampoo around.
I have had itchy scalp for a while but since removing sulphates from diet and from my shampoo it made a huge difference . Btw , I am also intolerance to gluten and dairy.
Hope you find a solution soon.
Hi Kim, I had the exact same problem when I was first diagnosed and it is very distressing so I am sorry you are going through this, it is really difficult 
What medication are you on? I found that when I was on established prednisolone, hydroxychloroquine and mycophenalate, it began to calm down and is growing back. I had associated alopecia so was using dermovate cream i think helped but that needs to be described. I used rosemary oil and black jamaican castor oil and also took pure biotin tablets from holland and barrett. i know how hard and unpleasant it is but sending you lots of love and hopefully it gets better!!!
Thank you so much for sharing, I will try your tips.
The medication you are on exactly the same as mine. At the moment, I’m on remission but I just don’t understand why things hasn’t returned to what it is as before even 80% back I’m also happy, unfortunately it is not. Demonologist (the registrar) said some part of my hair loss is permanent, nothing can be done. I’m on oral minoxidil, but it grows and stay for few months and then gone again.
My rheumatologist said it takes years for body to repair back, but it already almost 2 years remission but I can’t tell much difference and everyday I feel tired. Sorry its hard to tell those who didn’t live with lupus, only lupus ppl will understand.
Hi there, so sorry to read what you are experiencing. I would strongly advise to be referred to a hair and skin clinic Dermatology.
Dermatologists love photos. So, while you're waiting, if you could document your bad days and write down the symptoms, this would also help for your eventual appointment.
I would also suggest asking your GP to put forward an urgent Dermatology referral. At present, I have reason to believe, like all secondary care specialists, the waiting list is an eye sore. So, the urgent referral may push you up further.
Good luck and hope what I've written helps
Itchy scalp
Itchy Scalp?
Lupus rash/spots spread to scalp.
Lupus and blisters on scalp, palms and fingers
Scalp pain/tenderness extreme thinning of hair 
