Hello everyone
I haven’t posted in some time.
Am really struggling atm and wondered if anyone could help?
I have bad sle lupus which is quite well controlled but I have just been diagnosed with trigeminal neuralgia. The pain is horrendous luckily I have started some epilepsy medication with has helped a lot. But I haven’t seen my lupus doctors in quite some time. Is this common with lupus?
Does anyone else suffer with trigeminal neuralgia? If so how do you cope? Any advise would be great.
Thanks
Sarah x 😊