Covid and Lupus

[Da_vinci]

Hello I recently had Covid, I have SLE Lupus and fibromyalgia, I feel extremely tired and all my usual pains are getting stronger and more often. Does anyone has experience this before?

[Kelbol1]

Yes back in august but I wasn’t sure if it was also to do with coming off my meds whilst I had it and then for another month due to infections and antibiotics I had to take from covid?

[SunshineFarm]

Hi I’ve had exactly that. I’ve got discoid lupus but Covid caused an upper respiratory infection and that went straight into a flare up. Not a fun journey but I’m coming out of the other side now. There is light at the end of the tunnel.

[lufibabe]

HiMy whole family at home had the mild version.. I ended up with the worst symptoms. Just finished my isolation..my fatigue and pain continues and not mentioning the cough which has no sign of easing off. I had a flare up before the symptoms showed and I tested positive.

Hope you get better soon

[Da_vinci in reply to lufibabe]

Thanks, it seems that it behaves similar in everyone. I’m back to work now and my strength goes and comes so as my pains and tiredness. I am trying to keep myself busy to avoid thinking to much about it but I’m having palpitations too and that’s scary, also some shortness of breath. Reading about it on the NHS website, it seems that is kinda “normal” experiencing this symptoms but if those remains after 4 weeks will be time to book an appointment with the GPs.

Its hard to trying have a normal life with so many things to deal with.

Thank you all for your replies, it helps a lot.

[Mag17]

I’m having Covid now. My biggest issue is my head and ears. I have constant headache, heaviness (like I have heavy load on my head-it’s so weird) and dizziness. And this ringing in my ears. I’m very very tired and just don’t feel like doing anything. Emotionally I’m drained too, which might be another new symptom in Covid . On top of that I’ve lost a family member yesterday and now I’m just totally confused and lost🖤Sorry if I sound like moaning but Lupus and Covid are not a good mix I must say…Wishing you lovely people here all the best!

[Da_vinci]

I’m so sorry about your lost. I am truly sorry.Well my life has been like an emotional rollercoaster, with Covid I experienced depression and frustration, not a good mix. My headaches are there quite often, the favourite place to hurt is between my neck and my skull right back the ear, is so frustrating that sometimes It changes my mood and makes me feel like in a bad mood, sometimes even angry. But after Covid I got those symptoms more often and more stronger. I may have to wait the 4 weeks to see if there’s any improvement, otherwise I will have to go to the GPs for some help. Thank you and again, I am sorry for your lost.

[Mag17]

Thank you 🙏🏼 I hope you get some relief and if your doctors are any good some answers and help!

Take care of yourself x

[BK47]

I too have Lupus and fibromyalgia and had Covid quite badly at the beginning of the pandemic. So it is almost 2 years ago and I still have days when I feel so tired I have to go to bed. For a long time I fought it and forced myself to do all my usual busy stuff. But having thought about it I realise that it is better to rest when needed and not feel guilty about it. I know it’s difficult if you are of working age, I am retired but do a lot of childcare for grandchildren. I am sure it is just natures way of giving our bodies a break after all they have been through. I’m on methotexate injections now and I think they help. I do hope you are able to rest when you need to - and don’t feel guilty about it! It’s not laziness- it’s essential for recovery from this awful virus that no one fully understands yet. My husband died of coronavirus while I was Ill with it so I take the virus much more seriously than some do.

Good luck and take care of yourself. You only have one life!

[Da_vinci in reply to BK47]

I’m sorry to hear about your lost, I lost a friend from school younger than me, she dies from Covid the last month, she was around 38 and I can’t still believe it. I am working in a building site doing modules installation so work is quite hard and requires a lot of energy reason why is getting difficult for me to keep the rhythm, I took a week off cause of covid but its not easy when you need to work yes or yes.. if you know what I mean. I am doing as much as I can for my daughter and wife, but not everyone understands how hard a Lupus flare could be. I will keep an eye on my health in the next weeks and I’ll keep my usual diet and rest as normally. Hopefully I’ll be better soon. Thank you for your words, it is great to talk to others about this without being an annoyance.

Thanks.