Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,925 members • 28,254 posts

All posts for June 2020

Flare up

Does anyone suffer with there scalp when having a flare up ? I've had a terrible flare up haven't had one for ages my face and scalp are terrible hair loss...

Does anyone suffer with there scalp when having a flare up ? I've had a terribl...

Pmeh

•4 years ago

9 Replies

Baby Mira with her mum 🐶

Just thought I would give a quick update on how yesterday went -!Bea played with her puppies for about half an hour on the grass then the new owners turned up...

Just thought I would give a quick update on how yesterday went -!Bea played with...

svfarmer

•4 years ago

13 Replies

Dating - Someone please give me hope!

Hello everyone! I've been very happily single for years but I'm kind of coming around to the idea of dating! Do any of you know if there are any sites that...

Hello everyone! I've been very happily single for years but I'm kind of coming a...

Comeonpeeps

•4 years ago

23 Replies

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Black Rock Sickness

Hi everyone I was prescribed quinoric 200mg over 3 weeks ago. Struggled everyday taking them as the taste was foul, tried with milk juice etc, no other side...

Hi everyone I was prescribed quinoric 200mg over 3 weeks ago. Struggled everyday...

Montysmum1

•4 years ago

27 Replies

Polymyalgia info

I’m a new member. I was diagnosed with Polymyalgia a year ago and started on 15 Mgm of prednisone. Worked like magic. My doctor has three times tried to get me...

I’m a new member. I was diagnosed with Polymyalgia a year ago and started on 15 ...

Loyd

•4 years ago

9 Replies

Lupus and neuromyotonia

Hello good people. I haven't posted here before, although I have replied to other posts. I was diagnosed with SLE following a horrible acute illness including...

Hello good people. I haven't posted here before, although I have replied to othe...

C-aches

•4 years ago

9 Replies

Methotrexate, steroids, COVID-19

Hi all, I'm UCTD, and for about five years, I've been a full dose (2 x daily) of hydroxychloroquine. I've been having a flair more or less since lock-down...

Hi all, I'm UCTD, and for about five years, I've been a full dose (2 x daily) of...

Jaybz

•4 years ago

10 Replies

NHS help

I’m posting this copy letter to who might find it helpful 🦋❤️

Willow1414

•4 years ago

1 Reply

Last cute puppy picture

Good morning everybody hope everybody is doing ok in the circumstances- here is the last picture of my beautiful Bea and her puppies 🐶she has been the most...

Good morning everybody hope everybody is doing ok in the circumstances- here is ...

svfarmer

•4 years ago

30 Replies

A Memory Quilt

Some of you might remember me posting the crafts I made last summer which were sold with some other crafts, books and CDs in aid of Lupus UK in February this...

Some of you might remember me posting the crafts I made last summer which were s...

Spotty-ewe

•4 years ago

30 Replies

Lupus and Coronavirus (COVID-19) - UPDATED 04/06/2020

Hi everyone, We've just published an update to our information and guidance about lupus and COVID-19. Please have a careful read of the full article at...

Hi everyone, We've just published an update to our information and guidance abou...

Paul_Howard

Partner•4 years ago

35 Replies

Newly diagnosed lupus positive

Hi everyone. I've been having blood clotting issues for the last year and been under heamotologist. My blood takes longer to clot and I've been having...

Hi everyone. I've been having blood clotting issues for the last year and been u...

Shaz002

•4 years ago

7 Replies

Hi Everyone, I'm new herr

Hello all, I have just joined and wish I had joined ages ago. I have read some of the posts and find them very interesting and informative. I have Lupus SLE,...

Hello all, I have just joined and wish I had joined ages ago. I have read some o...

Geriatricgran

•4 years ago

7 Replies

NHS transport

I’ve been rescheduled an appointment for the 17 June in Manchester, I live in Lancaster , normally nhs transport would take me there but I just phoned them and...

I’ve been rescheduled an appointment for the 17 June in Manchester, I live in La...

Melaxx

•4 years ago

7 Replies

Black Lives Matter - A Statement from LUPUS UK

Black Lives Matter

Paul_Howard

Partner•4 years ago

15 Replies

Pain and just fed up of it all..

If it's not terrible fatigue it's now pain! I had a couple of ok days then a day in bed yesterday which was probably caused by the hot weather and doing some...

If it's not terrible fatigue it's now pain! I had a couple of ok days then a day...

Sara_A

•4 years ago

2 Replies

Brace yourselves

Turns out the article stating that HCQ increases death rates for COVID patients, resulting in halting of trials and change in WHO policy, was flawed. So we...

Turns out the article stating that HCQ increases death rates for COVID patients,...

Redfox25

•4 years ago

4 Replies

For Spotty and for anyone else who might know whose this nest belongs to?

We found this tiny weeny nest which had blown out of a thicket of trees in the garden. There were no eggs or fledglings, it was just empty on the ground. It is...

We found this tiny weeny nest which had blown out of a thicket of trees in the g...

Horsewhisper

•4 years ago

11 Replies

Azathioprine

Hi all, hope everyone is okay and managing through this time. I am away to start Azathioprine, I was wondering what people’s experience has been on it and the...

Hi all, hope everyone is okay and managing through this time. I am away to start...

JaneI_1

•4 years ago

4 Replies

Braved a walk today!!

Decided that I was going to go for walk in the early hours of the morning. 5mins from our house and it's open fields and country lanes. I walked about 2.5km,...

Decided that I was going to go for walk in the early hours of the morning. 5mins...

Hatelupus

•4 years ago

2 Replies

The dread of going for my blood test, at GP's as shielding

first time actually posting, hope this helps others who are shielding too. After many phone calls to GP and Rheumy nurse, I had an answer about going to GP's...

first time actually posting, hope this helps others who are shielding too. After...

Poshcards

•4 years ago

7 Replies

Almost forgot, latest pic!

Made with love, dedicated to everyone.

katidid

•4 years ago

6 Replies

Please Send Love & Hope

Hi lovelies, I hope you are doing better than many of us in the states. As I’m sure all of you know by now our country is at a breaking point. Perhaps you’ve...

Hi lovelies, I hope you are doing better than many of us in the states. As I’m s...

katidid

•4 years ago

33 Replies

Please don't suffer in silence! Seek medical advice if you need it.

Following consultation with leading UK lupus clinicians we have received a number of reports of people with lupus being admitted to hospital needing...

Following consultation with leading UK lupus clinicians we have received a numbe...

Paul_Howard

Partner•4 years ago

26 Replies

Another feathered family

I hung some ornamental coconut items outside my shed a couple of years ago and although the bird house is used sometimes in the autumn or winter for roosting,...

I hung some ornamental coconut items outside my shed a couple of years ago and a...

Spotty-ewe

•4 years ago

28 Replies

Really lost, is this a familiar story?

Hello all, I hope you're well and keeping safe. I would just like some opinions or ideas on what's going on with my fight for a diagnosis story I have been...

Hello all, I hope you're well and keeping safe. I would just like some opinions...

cdow

•4 years ago

7 Replies

Finally! Snapped a pic of a Woodpecker!

For Spotty, Stiff, DJK99, KrazyKat, Lueann and everyone else enjoying the bird and animal posts - a Woodpecker has been swooping down every evening to grab a...

For Spotty, Stiff, DJK99, KrazyKat, Lueann and everyone else enjoying the bird ...

Horsewhisper

•4 years ago

37 Replies

HCQ finger joint pain

Hi everyone hope you’re all staying safe and shielding if needed. I was on HCQ then taken off them in March. So recently I have had swollen finger joints and...

Hi everyone hope you’re all staying safe and shielding if needed. I was on HCQ ...

Loopylupus71

•4 years ago

25 Replies

Help me please.

Hi all. Those with sun sensitivity, I need some tips and ways to deal with the isolation during this season please. I can't go on feeling like this every...

Hi all. Those with sun sensitivity, I need some tips and ways to deal with the i...

Comeonpeeps

•4 years ago

40 Replies

How long between increasing methotrexate doses and how much folic acid should I be taking?

I've started 10mg injections increasing to 15mg and 20mg with two weeks inbetween. I've been prescribed 5mg folic acid for six days inbetween. I've read...

I've started 10mg injections increasing to 15mg and 20mg with two weeks inbetwee...

Happy43

•4 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2020

Flare up

Baby Mira with her mum 🐶

Dating - Someone please give me hope!

Black Rock Sickness

Polymyalgia info

Lupus and neuromyotonia

Methotrexate, steroids, COVID-19

NHS help

Last cute puppy picture

A Memory Quilt

Lupus and Coronavirus (COVID-19) - UPDATED 04/06/2020

Newly diagnosed lupus positive

Hi Everyone, I'm new herr

NHS transport

Black Lives Matter - A Statement from LUPUS UK

Pain and just fed up of it all..

Brace yourselves

For Spotty and for anyone else who might know whose this nest belongs to?

Azathioprine

Braved a walk today!!

The dread of going for my blood test, at GP's as shielding

Almost forgot, latest pic!

Please Send Love & Hope

Please don't suffer in silence! Seek medical advice if you need it.

Another feathered family

Really lost, is this a familiar story?

Finally! Snapped a pic of a Woodpecker!

HCQ finger joint pain

Help me please.

How long between increasing methotrexate doses and how much folic acid should I be taking?

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