Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,937 members • 28,265 posts

All posts for June 2020

I'm new here just saying hello.

Hi everyone, I'm new to here. I've suffered DLE for years and just before lockdown diagnosed with SLE after a big flare . Lots of pain in my hands and very...

Hi everyone, I'm new to here. I've suffered DLE for years and just before lockdo...

Duchess88

•4 years ago

8 Replies

Almost forgot - lovely Pic of Bea and Mira

Just had to post this - I took it this morning

svfarmer

•4 years ago

31 Replies

Sausage fingers

Hi everyone hope all everyone is doing well under the circumstances- I have Lupus and RA I had an appointment with consultant yesterday to have an ultrasound...

Hi everyone hope all everyone is doing well under the circumstances- I have Lupu...

svfarmer

•4 years ago

4 Replies

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Team Romford

https://drive.google.com/file/d/1xQ7a9o6Y0gumL-W0nmiV3AuzB_jRZE27/view Best wishes Kevin

https://drive.google.com/file/d/1xQ7a9o6Y0gumL-W0nmiV3AuzB_jRZE27/view Best wis...

Kevin53

•4 years ago

7 Replies

Is it just lupus or is there something else too? Anyone else got lupus plus an arthritis type condition....

Hi All, I have sle and aps and I'm really struggling with joint pain and stiffness, I've had it all for approx 20 yrs am now 41 yrs old. I am just really...

Hi All, I have sle and aps and I'm really struggling with joint pain and stiffne...

Sara_A

•4 years ago

7 Replies

Work capability assessment

I suffer from lupus sle and fibromyalgia. I've been in remission with lupus sle. Would I qualify for the work capability assessment. Thank you

I suffer from lupus sle and fibromyalgia. I've been in remission with lupus sl...

ramada

•4 years ago

5 Replies

Lip & mouth issues

Awaiting consultants appointment in Covid 19. Tumidus Lupus? After many years of ongoing facial rashes, started 12 year ago approx. But last year & early...

Awaiting consultants appointment in Covid 19. Tumidus Lupus? After many years ...

Smithy26

•4 years ago

7 Replies

Should the household be returning to work?

Hi i am looking for some advice as i am feeling a bit worried. I could feel myself starting to flare up a few weeks back, i had blood tests to check the...

Hi i am looking for some advice as i am feeling a bit worried. I could feel myse...

Jodziebear

•4 years ago

9 Replies

Letter from the local NHS trust

I got a letter from the trust I work for. It was just saying that they know I've been sheilding for the last 12 weeks and they are aware that this has been...

I got a letter from the trust I work for. It was just saying that they know I've...

Hatelupus

•4 years ago

7 Replies

Breaking shielding advice

Been shielding since the very start of this but have been going out on my daily walks on the advice of my kidney nurse so I don't end up going mental behind...

Been shielding since the very start of this but have been going out on my daily ...

Hidden

•4 years ago

8 Replies

COVID and Quality of Life for people with Inflammatory Arthritis and Lupus Project

Researchers at King’s College London are looking at the impact of COVID19 on health-related quality of life for people with inflammatory arthritis conditions,...

Researchers at King’s College London are looking at the impact of COVID19 on hea...

Chanpreet_Walia

LUPUS UK•4 years ago

5 Replies

Mepacrine at leeds lupus clinic

does anybody go to leeds lupus clinic and take mepacrine?

lupi123

•4 years ago

12 Replies

How does anyone modify computer use when sitting in front of screen gives you a lupus rash. Also does it make you feel unwell

I am using computer in lockdown and have a burning and slightly swollen face

Clairedown

•4 years ago

6 Replies

ADDED IMAGE OF POSSIBLE CHICKEN POX

Hope this pic is clearer 😊

llewelyn2405

•4 years ago

17 Replies

Mepacrine

Hi everyone, I have recently started taking Mepacrine as I had to stop taking hydroxychloroquine due to macular degeneration. I was wondering if anyone else...

Hi everyone, I have recently started taking Mepacrine as I had to stop taking h...

Jolevans

•4 years ago

18 Replies

Menopause effects on lupus anyone?

Im interested to know if anyone here had better or worse lupus symptoms after entering menopause?

Im interested to know if anyone here had better or worse lupus symptoms after en...

miccika1

•4 years ago

29 Replies

Respiratory problems

Hi. I have lupus, APS and secondary Sjögrens. Since having pneumonia 3 years ago I’ve had a constant productive cough although recent chest X-ray looks fine....

Hi. I have lupus, APS and secondary Sjögrens. Since having pneumonia 3 years ago...

Pickzie

•4 years ago

3 Replies

Perimenopause & LUPUS

Hi all, I wonder if anyone can shed come light on this... I have been recently diagnosed with LUPUS and I currently take the contraceptive pill (Ovranette)...

Hi all, I wonder if anyone can shed come light on this... I have been recently...

Vifi

•4 years ago

4 Replies

So many initialisms/acronyms/abbreviations. List?

Relatively new to all this but the one thing I've noticed on most posts are all the initialisms, acronyms and abbreviations. I spend more time looking them all...

Relatively new to all this but the one thing I've noticed on most posts are all ...

Whippet_lady

•4 years ago

8 Replies

CHICKEN POX ??

Got quite a lot of spots on chest and back. Also random ones around the torso and hips. Don’t think it is lupus. I will try the Docs again. Thank you all for...

Got quite a lot of spots on chest and back. Also random ones around the torso an...

llewelyn2405

•4 years ago

9 Replies

CHICKEN POX IN ADULTHOOD... LUPUS RELATED ??

Hi all. Hope you are keeping well. I have SLE and have come out in chicken pox. Has anyone else experienced this ? I am 54 years old and am told by my Mum that...

Hi all. Hope you are keeping well. I have SLE and have come out in chicken pox. ...

llewelyn2405

•4 years ago

18 Replies

Methotrexate & Folic Acid?

I'm in my 3rd week of methotrexate with, thankfully so far, no noticeable side effects. I am, however, decreasing my prednisolone by 2.5mg every 2 weeks (and...

I'm in my 3rd week of methotrexate with, thankfully so far, no noticeable side e...

Whippet_lady

•4 years ago

27 Replies

Need some direction/advice

Hi all . I am having some trouble understanding what's going on with my body and feel like I have no direction from my doctors! I have had a FUO since March....

Hi all . I am having some trouble understanding what's going on with my body and...

Kaipi91

•4 years ago

7 Replies

UTI’s Update

Well I have at last had a positive few days. I would like to thank people on this site for suggesting vaginal atrophy to me. I spoke with my GP on Friday and...

Well I have at last had a positive few days. I would like to thank people on thi...

CecilyParsley

•4 years ago

12 Replies

Rituximab

Does anyone had Rituximab infusions to treat Lupus? If so how affective was it and have you had any side effects? Thank you

Does anyone had Rituximab infusions to treat Lupus? If so how affective was it ...

SammyJ

•4 years ago

26 Replies

Feeling frustrated!.

Needing to sound off. Just spoken to my lupus nurse, who is a lovely person but I was ringing because I have a issue with Pain and usually I would just up my...

Needing to sound off. Just spoken to my lupus nurse, who is a lovely person but...

Niccigrace

•4 years ago

7 Replies

Lupus symptoms

Hi I'm new to this but I need advice. In 1964 has a child I spent upto 6 months in hospital has they were not sure of my illness. I grew up with lots of pain...

Hi I'm new to this but I need advice. In 1964 has a child I spent upto 6 months...

Oldpain

•4 years ago

4 Replies

Sharing the end and beginning of a day😌

Being unwell can tare the edges of my body, to ruff sand paper. Like nails on a chalk board. The past days have been long and hard on me. So I asked for the...

Being unwell can tare the edges of my body, to ruff sand paper. Like nails on a ...

thestorm

•4 years ago

2 Replies

Please help, new here

Hey all! So I was first diagnosed with lupus back in 2008/9 (can’t quite remember) I was really ill, severe fatigue, Rash and joint pains, after being told by...

Hey all! So I was first diagnosed with lupus back in 2008/9 (can’t quite rememb...

Jones88

•4 years ago

2 Replies

Question regarding ANA

Does anyone know why TPO antibodies are on the ANA test if Graves disease and Hashimoto’s are not systemic autoimmune diseases?

Does anyone know why TPO antibodies are on the ANA test if Graves disease and Ha...

JennaShi

•4 years ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2020

I'm new here just saying hello.

Almost forgot - lovely Pic of Bea and Mira

Sausage fingers

Team Romford

Is it just lupus or is there something else too? Anyone else got lupus plus an arthritis type condition....

Work capability assessment

Lip & mouth issues

Should the household be returning to work?

Letter from the local NHS trust

Breaking shielding advice

COVID and Quality of Life for people with Inflammatory Arthritis and Lupus Project

Mepacrine at leeds lupus clinic

How does anyone modify computer use when sitting in front of screen gives you a lupus rash. Also does it make you feel unwell

ADDED IMAGE OF POSSIBLE CHICKEN POX

Mepacrine

Menopause effects on lupus anyone?

Respiratory problems

Perimenopause & LUPUS

So many initialisms/acronyms/abbreviations. List?

CHICKEN POX ??

CHICKEN POX IN ADULTHOOD... LUPUS RELATED ??

Methotrexate & Folic Acid?

Need some direction/advice

UTI’s Update

Rituximab

Feeling frustrated!.

Lupus symptoms

Sharing the end and beginning of a day😌

Please help, new here

Question regarding ANA

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