Azathioprine

[JaneI_1]

Hi all, hope everyone is okay and managing through this time. I am away to start Azathioprine, I was wondering what people’s experience has been on it and the side effects they may have had. I have been on methotrexate and didn’t cope with that then mycophenolate but developed a lot of infections on that. Thanks xx

[Ar29980]

Hiya

Not had any issues over the last 15 months after I stepped down from Mycophenolate so all the best!

[jane1964]

Hello I don't have lupus but vasculitis although many symptoms are similar.I started on azathioprine around 2 years ago and it's been wonderful it's given me a much better quality of life.I had some nausea at the beginning which improved when I took tablets with a bigger meal.I had regular blood tests quite frequently at first but still normally monthly.

I hope it works as well for you.Jane.

[Sara_A]

Hi I had no problems taking it or anything and was fine but it just unfortunately didn't like me ! We tried twice b4 going onto mycophenolate but my liver just didn't like it.

I'm now on mtx just gone from 15 to 20mgs

Good luck I hope it's the one for u I think its generally well tolerated my rheum said it's one they usually go for first because of this.

[Blaahh]

Hi. I've been taking azathioprine for inflammation in my lungs for nearly a year now.I had symptoms of breathlessness ( I have mild fibrosis too )and severe fatigue and both have practically gone but its took nearly a year to feel like this . I started to feel the effects about 2 months in, I honestly feel like it saved my life !The only bad side effect I've had is hair loss but that has started to get better now .I would say as well to always take with a meal . Good luck with it ,hope it works out for you.

Alma x