NHS transport : I’ve been rescheduled an... - LUPUS UK

LUPUS UK

32,250 members28,609 posts

NHS transport

Melaxx profile image
7 Replies

I’ve been rescheduled an appointment for the 17 June in Manchester, I live in Lancaster , normally nhs transport would take me there but I just phoned them and they cancelled until further notice . I really wanted to have this exam done , I don’t know what to do , go by train? But I’m in the shielded category , I’m willing to take the risk , this test will determine what’s wrong with my muscles , nerves in my legs . I don’t know 🤷‍♀️

xxx

Written by
Melaxx profile image
Melaxx
To view profiles and participate in discussions please or .
7 Replies
PMRpro profile image
PMRpro

Are the volunteer NHS drivers also cancelled? Call the hospital and tell them the problem - they must know what's going on - or maybe not ...

Melaxx profile image
Melaxx in reply toPMRpro

I did called the hospital and told them about the transport, they just said to cancel the appointment .

Willow1414 profile image
Willow1414

Hi Melaxx

Can you call your local council ?

They have volunteers . Please explain your situation , I’m sure someone will come forward to drive you to your appointment .

Can I ask what test you are having done .

I’m having a lot of pain and tremendous weakness in my arms , it is really getting me down . I had a nerve conduction test booked , that was cancelled , still not had another appointment sent through in place of the cancelled appointment .

The more I do , the harder it is on my arms . They hurt in bones , tendons and muscles . I have an open appointment for steroid injection , I’ve been holding back , due to the fact it’s at the hospital .

I aim to go tomorrow , yet I still don’t know why my arms are so .

🦋❤️

Melaxx profile image
Melaxx in reply toWillow1414

Thank you so much Willow1414 , I called the council and they said yes, they have volunteers who can take me to the appointment, always lots of help on this site 😊🙏💕

Willow1414 profile image
Willow1414 in reply toMelaxx

Hi Malaxx

Great news . Don’t forget your mask , all have to swear masks now in hospitals .

I went yesterday for my steroid injection .

Mask /gloves and clear safety glasses .

Waiting area 7 in ruematology . Only me there. I took a video . Very strange experience . Good thing is you are straight in and out , no waiting .

🦋❤️

Melaxx profile image
Melaxx

Thank you for the suggestion, I’ll contact the council and ask them .

The tests I’m having are: nerve conduction studies and electromyography ( NCS and EMG) . I hope they’ll give me an answer of why my legs in particular are so weak , I had an MRI scan of my muscles and came back normal .

xxx

maggielee profile image
maggielee

Diffently go if you can....sounds like you need answers... Diffently tap into local voluntary groups ours are supporting council work to support sheilders...

I go armed with mask, gloves, gel, to use.

Also, consider taking a drink or snack with you and maybe your driver (as they will be asked to stay outside to wait)...

Hope it goes well...ml

Not what you're looking for?

You may also like...

nhs transport

hi, I’ve been using nhs transport for my rheumatologist appointment to Manchester from Lancaster...
Melaxx profile image

Nhs transport

Missed my appointment in Manchester today because nhs transport was too late and the hospital...

Confused easily

Anyone find themselves being confused 😐 I’m okay when I’m with people I know but when it’s someone...
Buckley123 profile image

Ongoing symptoms, Weak positive ANA, waiting results for ds dna and rhf, what does it mean and how long till test results?

Hi everyone, I’m not sure if I’m posting in the right place but I googled and lupus came up....
Amber83 profile image

Should I keep taking my meds?

Hi everyone. So I’ve been having flares all summer up to now and now the dr increased my...
Mmafox profile image

Moderation team

See all
Debbie_kinsey profile image
Debbie_kinseyAdministrator
chelseawong profile image
chelseawongAdministrator
michaellasmith profile image
michaellasmithAdministrator

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.