Mycophenolate - sore throat: How sore should your... - LUPUS UK

LUPUS UK

31,602 members28,008 posts

Mycophenolate - sore throat

Kelbol1 profile image
15 Replies

How sore should your throat be before you stop taking mycophenolate? Taken pain killers and throat lozengers it eases but is sore to swallow. Didn’t want to bother the help line as I know they are so busy - Thank you

Written by
Kelbol1 profile image
Kelbol1
To view profiles and participate in discussions please or .
Read more about...
15 Replies
KayHimm profile image
KayHimm

Kelbol1 - Please don’t stop your medication without talking to your doctor. Active lupus could be a bigger risk factor in infection complications than being on one medication.

Do you have a fever? Cough?

Don’t hesitate to call your GP or rheumatologist. Many are probably at their computers and ready to video conference with people just like you.

Take care.

K

in reply to KayHimm

Fever? Cough? Kay I was wondering the same thing. Hard not to right now. We just had two deputy sheriff’s die in the last few days in my county. Both stationed at the jail in my city where 11 inmates have tested positive, and 25 deputies. So sad☹️

KayHimm profile image
KayHimm in reply to

So sad. Yes, everyone has to be on alert for symptoms, right?

in reply to KayHimm

Absolutely.

Btw, how are you?

KayHimm profile image
KayHimm in reply to

No fever yesterday and today. So when all symptoms are gone, I get out of quarantine. They still don’t know how long people shed the virus. I do a lot needlepoint point Christmas door hangers!

How are you?

😍k

in reply to KayHimm

I’m glad this is almost over for you.

I’m doing well, thank you!

Kelbol1 profile image
Kelbol1 in reply to

No fever - hoping it’s stays as just throat. I am in the UK people we knows family critical some have died it’s just awful not looking it’s going to go away anytime soon 😢

in reply to Kelbol1

🙏best of luck.

overnighthearingloss profile image
overnighthearingloss in reply to

Again, I saw something about police officers in NYC being at great risk as quite a few had tested positive and thought of you.

Keep safe. Hope you have enough room to go into full shielding mode if required.

in reply to overnighthearingloss

Thank you. So thoughtful for you to think of me. I appreciate it. 🙏

Kelbol1 profile image
Kelbol1 in reply to KayHimm

No fever just really inflamed throat - thank you if no better tom will get in touch x

KayHimm profile image
KayHimm in reply to Kelbol1

Good. I started with aches and a low fever and sore throat. Stay on top of it. Take your temperature often.

Good luck.

K

Kelbol1 profile image
Kelbol1 in reply to KayHimm

Will do thank you - I am already in for 12 weeks so not out apart from bloods taken monthly x

UCTD profile image
UCTD

Please contact the rheumatology service for advice if you can’t use the helpline or GP service. As a patient on MMF you are classed as vulnerable. Don’t stop taking it until you seek advice. You need a medical review. Keep safe!

heatherevans28 profile image
heatherevans28

If it's just a sore throat then don't do anything. I would give it a few days. If it stays the same then just use throat lozenges and drink plenty.

If you get a fever and cough, then you need to speak to your GP or rheumatology helpline about whether to alter your medications. Don't call NHS24 unless you have breathing difficulties x

You may also like...

Permanent sore throat?

has an almost permanent sore throat? The only time it goes away is when I take steroids - just...

Sores back of throat

keep getting recurring sores/ulcers on the back my of throat which is so painful I can’t eat or...

Sore throat, nausea and headache

had a cold and now I have symptoms again of sore throat, nausea and headaches first one it was...

Incredibly sore throat won't go away!

to constantly have a sore throat. It's making me miserable as I don't even want to talk some days it

Weird lupus flare including burning when I pee and sore throat

water infection. And my sore throat won’t budge. Anyone with any clues? Thanks loopies!! Betsy...