Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,815 members • 28,151 posts

All posts for April 2020

Chemist

Hi all, Hope you’re keeping well at this precarious time. Do any of you use Boots/ Lloyd’s or some other big commercial pharmacy to deliver your drugs to you...

Hi all, Hope you’re keeping well at this precarious time. Do any of you use Boot...

LilyMistri2

•4 years ago

10 Replies

Shielding letter

Further to shielding letter from the Government, which has still not materialised, I received a telephone call from NHS shielding, I am classed extremely...

Further to shielding letter from the Government, which has still not materialise...

Cal66

•4 years ago

17 Replies

THANK YOU LUPUS UK

I would just like to take the opportunity to thank Paul and all of the LUPUS Uk team and all volunteers and particularly those who regularly contribute to this...

I would just like to take the opportunity to thank Paul and all of the LUPUS Uk ...

jimbo1605

•4 years ago

6 Replies

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Letter from government regarding staying home

Has everyone with lupus been sent a letter with regard to Covid19. I’m from U.K. but currently in Spain and haven’t seen my post since December (I should have...

Has everyone with lupus been sent a letter with regard to Covid19. I’m from U.K....

kingsnorth

•4 years ago

26 Replies

NEW NORMAL, OLD NORMAL

My cousin Barbara asks me if I have been writing lots of poetry. It struck her the other night that there was poetry in this, this time of strangeness, of...

My cousin Barbara asks me if I have been writing lots of poetry. It struck her t...

lupusinflight

•4 years ago

19 Replies

Hydroxychloroquine no good after all 🦠

Oh well 😔, I was so naive to think somehow I was protected lol, but I’ve been on self isolation anyway just to make sure . Hope you’re all ok x

Oh well 😔, I was so naive to think somehow I was protected lol, but I’ve been o...

Melaxx

•4 years ago

12 Replies

Update on puppies

Evening everybody hope you’ve had a good day in this strange times we are having at the moment . I weight through puppies today and realised the little girl...

Evening everybody hope you’ve had a good day in this strange times we are having...

svfarmer

•4 years ago

12 Replies

VA HCQ controlled study failed to show any benefit.

Study shows more death in HCQ arm. https://www.medrxiv.org/content/10.1101/2020.04.16.20065920v1.full.pdf

Study shows more death in HCQ arm. https://www.medrxiv.org/content/10.1101/2020....

Roarah

•4 years ago

6 Replies

Podcast about immunity for lupus patients and the effects of COVID-19

Dr Sara Booth, University of Cambridge, has created part 1 of her insightful and informative podcast with Professor Sarah Rowlands, who specialises in...

Dr Sara Booth, University of Cambridge, has created part 1 of her insightful and...

Chanpreet_Walia

LUPUS UK•4 years ago

8 Replies

Seeking a couple of UK volunteers - help needed to test a RAIRDA online survey

Hi everyone, I need two or three UK volunteers to test an online survey by the Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA). The short survey asks...

Hi everyone, I need two or three UK volunteers to test an online survey by the R...

Paul_Howard

Partner•4 years ago

39 Replies

Lupus/APS and cod liver oil

Hi, I'm 49, and have lupus with antiphospholipid syndrome. I'm currently on lifelong warfarin, statins, vit D, hydroxychloroquine and methotrexate injections....

Hi, I'm 49, and have lupus with antiphospholipid syndrome. I'm currently on life...

Gerardina

•4 years ago

2 Replies

How do I manage my new illness in this time with covert 19

In for the 4 weeks of isolation and just found out that I have Addison disease. My gp gave the specialist all my tests bloods scans and how I have been...

In for the 4 weeks of isolation and just found out that I have Addison disease. ...

Marieg2009

•4 years ago

32 Replies

Have fun today - write a little poem - post it. Enjoy the day - stay safe - Let's get going

A little poem for today. For indoors we have to stay. Have a go at a little rhyme An easy way to pass the time.

A little poem for today. For indoors we have to stay. Have a go at a little rhym...

just-typing

•4 years ago

3 Replies

Young people

Hi, my son, who is 12, has recently been diagnosed with SLE. I understand it’s fairly uncommon in younger boys. Are there any other parents of young people...

Hi, my son, who is 12, has recently been diagnosed with SLE. I understand it’s f...

Bertiered20

•4 years ago

13 Replies

Remedies for Cushings Syndrome from long term Prednisone

Hi all, I have recently since January been noticing stretch marks in random places on my body (inside of my legs and thighs, back, bum, hips, arm pits)....

Hi all, I have recently since January been noticing stretch marks in random pla...

PositivelyLupus

•4 years ago

6 Replies

Coping with Isolation

I’m normally a social girl I love to meet my mates But lately with this pandemic We can’t go out our gates. You see we are the ‘oldies’ now We need to stay...

I’m normally a social girl I love to meet my mates But lately with this pandemi...

Spotty-ewe

•4 years ago

48 Replies

Help please - just can’t get off steroids and flares return even more acute every time I try - is it steroid rebound?

I started on 20mg of prednisolene in September and have been trying to get off it ever since. I taper down and down and then the flare on my face and neck...

I started on 20mg of prednisolene in September and have been trying to get off i...

doggit

•4 years ago

10 Replies

Mouth issues - Lupus

Hello, Just wondering if anyone has any mouth/tongue issues with any autoimmune issues. Last few months my mouth is dry/ sore feels like a sore throat...

Hello, Just wondering if anyone has any mouth/tongue issues with any autoimmun...

Staceylouise90

•4 years ago

6 Replies

Shielding at the mo, so feeling anxious going to GP surgery for bloods!

Hi everyone, I take warfarin and Im due my INR check with the nurse. I really dont want to go, Im so anxious that I might catch something, especially as Im...

Hi everyone, I take warfarin and Im due my INR check with the nurse. I really d...

Shann07

•4 years ago

35 Replies

Unusuall rash appearance

Hi all, I hope you are doing as fine as you can in these crazy times. I wrote here couple of posts regarding my condition. I am in the process of diagnosis,...

Hi all, I hope you are doing as fine as you can in these crazy times. I wrote he...

MatPatP

•4 years ago

2 Replies

Dexamethasone

Is anyone on Dexamethasone ? I was speaking to my Endo as I also have addison's and asked why was I not on Dexamethasone in addition to my Solu-Cortef (I am on...

Is anyone on Dexamethasone ? I was speaking to my Endo as I also have addison's ...

sloppydog

•4 years ago

5 Replies

Dizziness

Hi everyone Any one experience dizziness with their lupus ? It’s new for me ? Unsure if it’s lupus related or totally unrelated Thanks

Hi everyone Any one experience dizziness with their lupus ? It’s new for me ? ...

Harry19

•4 years ago

3 Replies

For DRunner 🏃‍♀️and everyone enjoying the foodie pics!

Ready for you in the cyber freezer- fresh out of the machine - coconut cream ice cream gelato style with 90% chocolate shavings - yum! 🍦xx

Ready for you in the cyber freezer- fresh out of the machine - coconut cream ice...

Horsewhisper

•4 years ago

10 Replies

UCTD and Chronic Dry Irritated Eyes

Hoping this is the right forum for information. I was diagnosed with Undifferentiated Chronic Tissue Disease. I have symptoms of more than one autoimmune...

Hoping this is the right forum for information. I was diagnosed with Undifferent...

bunch1974

•4 years ago

16 Replies

In response to Misty, a beaver had a stroll in downtown Berlin today..wondering why all the shops were closed..taken to a lake for a swim :)

Daily exercise allowed, the police said ! :) xxx

eekt

•4 years ago

11 Replies

This is for horse whisper and anyone else.

Hello everyone, there's been articles recently about animals or wildlife appearing in funny places because us humans are out of the way!. I just wondered if...

Hello everyone, there's been articles recently about animals or wildlife appeari...

misty14

•4 years ago

28 Replies

Night Sweats?

Anyone else struggle with night sweats? I never had a problem before. My partner is a human heater, but even in the middle of the summer I’ve never had any...

Anyone else struggle with night sweats? I never had a problem before. My partner...

Ske22

•4 years ago

33 Replies

Puppy pictures

Meet Mira my new baby girl - it’s one of my Beas puppy’s that we are keeping

svfarmer

•4 years ago

16 Replies

Blisters a sign of auto immune?

Hello all, I hope you are keeping well and calm in these new times we’re facing 💗 I was just looking for some advice really, I’ve got blisters on 4 of my...

Hello all, I hope you are keeping well and calm in these new times we’re facing ...

Cazza_dow

•4 years ago

12 Replies

Immediate Relief from Hydroxychloroquine

I have started HQC by Zentiva (tried other brands and it was awful) but is it normal to have immediate relief from this as I only took my 1st pill last night...

I have started HQC by Zentiva (tried other brands and it was awful) but is it no...

sloppydog

•4 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2020

Chemist

Shielding letter

THANK YOU LUPUS UK

Letter from government regarding staying home

NEW NORMAL, OLD NORMAL

Hydroxychloroquine no good after all 🦠

Update on puppies

VA HCQ controlled study failed to show any benefit.

Podcast about immunity for lupus patients and the effects of COVID-19

Seeking a couple of UK volunteers - help needed to test a RAIRDA online survey

Lupus/APS and cod liver oil

How do I manage my new illness in this time with covert 19

Have fun today - write a little poem - post it. Enjoy the day - stay safe - Let's get going

Young people

Remedies for Cushings Syndrome from long term Prednisone

Coping with Isolation

Help please - just can’t get off steroids and flares return even more acute every time I try - is it steroid rebound?

Mouth issues - Lupus

Shielding at the mo, so feeling anxious going to GP surgery for bloods!

Unusuall rash appearance

Dexamethasone

Dizziness

For DRunner 🏃‍♀️and everyone enjoying the foodie pics!

UCTD and Chronic Dry Irritated Eyes

In response to Misty, a beaver had a stroll in downtown Berlin today..wondering why all the shops were closed..taken to a lake for a swim :)

This is for horse whisper and anyone else.

Night Sweats?

Puppy pictures

Blisters a sign of auto immune?

Immediate Relief from Hydroxychloroquine

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