I need two or three UK volunteers to test an online survey by the Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA).
The short survey asks questions about your experiences of guidance and healthcare you've been provided with (or not) during the COVID-19 pandemic. We'd like to check that you understand the questions and have sufficient opportunity to provide answers that accurately reflect your experiences.
If you'd like to help, please comment below and I will send you a private message.
Thank you.
Written by
Paul_Howard
Partner
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On the section of NICE advising rheumatology team to take steps to protect patients, does this only refer to rheumatology apptoints or other hospital appts?
As I haven't got a rheumatologist, but have had other appt with other departments cancelled, postponed or via phonecall.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
Would love to help if I'm any use but so far the diagnosis is all over the place apart from the Jessners Lymphocytic infiltration and a lot of individual stuff. Even the Sjogren's is sero-negative so doesn't have any 🌟 star marks for anything.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it (regardless of current diagnosis) as possible then though. Thanks.
I’d be happy to particulate but it looks like you prob have enough folk already!
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
I think we've got enough volunteers to test the survey rigorously now. We'll be launching it at the beginning of next week and wanting as many people to complete it as possible then though. Thanks.
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Share your experiences of the COVID-19 pandemic for online UK-based research study
