Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,928 members • 28,257 posts

All posts for March 2020

They said I had Lupus and RSD til ...

Google Fiberglass Allergy and Read all about it. Mine is exactly that! Many people and Drs don’t realize it. Let me know!

Google Fiberglass Allergy and Read all about it. Mine is exactly that! Many pe...

shardville

•4 years ago

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Legs moving on there own!

Hi guys I put a post here weeks ago and I’m still not further forward I saw my gp and they said my blood pressure was low and I can keep getting episodes of...

Hi guys I put a post here weeks ago and I’m still not further forward I saw my g...

Sammymoat1986

•4 years ago

3 Replies

Salivary Gland ultra sound scan

Hi all I received letter today from scan it reads salivary gland ultrasound scan showed non specific changes only. So I have the above and below information...

Hi all I received letter today from scan it reads salivary gland ultrasound scan...

Yellow-Petal

•4 years ago

2 Replies

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Lupus & Diet Online Survey - LAST WEEK TO TAKE PART

Hi everyone, This is just a reminder for anyone who hasn't completed the online survey yet. You can find the original post here -...

Hi everyone, This is just a reminder for anyone who hasn't completed the online ...

Paul_Howard

Partner•4 years ago

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Interview request from BBC News Digital Video - Your thoughts about coronavirus (COVID-19)

Hi everyone, We've been contacted by the team at BBC News Digital Video because they would like to interview someone with lupus who is on immunosuppressant...

Hi everyone, We've been contacted by the team at BBC News Digital Video because ...

Paul_Howard

Partner•4 years ago

9 Replies

Help please

Hi I have had many symptoms of Lupus for a long time. A colleague at work the other day out of the blue asked me if I thought I had Lupus. She has an...

Hi I have had many symptoms of Lupus for a long time. A colleague at work the o...

Edith04

•4 years ago

3 Replies

Pooh Update

No this is not a horrible post about someone's toilet habits but some great news. Pooh Bear (the wife) was very poorly over the past 9 months with a mega flare...

No this is not a horrible post about someone's toilet habits but some great news...

jimbo1605

•4 years ago

7 Replies

Home made hand sanitiser!

Hello everyone, my scientist son is happy with Prototype #1 and here are the ingredients (he also put them on the side of the bottle so I don’t forget for the...

Hello everyone, my scientist son is happy with Prototype #1 and here are the ing...

Horsewhisper

•4 years ago

27 Replies

Dr. Reddy’s Labs Hydroxychloroquine

Hi Everyone, I’ve been following this site for some time but never posted. I have learned so much and really appreciate how supportive this community is. I...

Hi Everyone, I’ve been following this site for some time but never posted. I ha...

TollerTime

•4 years ago

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Alcohol

Alcohol, some people like a wee tipple, some people don't. Some can't. I did, more than I probably should've when I went to the football with my mates. Now I...

Alcohol, some people like a wee tipple, some people don't. Some can't. I did, mo...

Hidden

•4 years ago

2 Replies

Bronchiectasis and azathioprine info please

After being on a combination of methotrexate and leflunomide plus the usual hydroxychloroquine I suffered 3 bouts of pneumonia in 7 months causing...

After being on a combination of methotrexate and leflunomide plus the usual hydr...

Purplebutterfly38

•4 years ago

7 Replies

North Wales Lupus Coffee Meet today

A very good morning. Best wishes Kevin

Kevin53

•4 years ago

1 Reply

Low BP and fast heartbeat

Hi everyone, I’m now on 40mg steroid and 2g MMF as I’m having a flare up. I find my bp always below 100 and heartbeat above 100-110 when I stand up and walk...

Hi everyone, I’m now on 40mg steroid and 2g MMF as I’m having a flare up. I find...

new_panda

•4 years ago

10 Replies

What are other Lupies doing?

Still anxious but not as much... If there is no virus reported in our area, is it safe to go out, or at least have a ride in the car?... jx

Still anxious but not as much... If there is no virus reported in our area, is ...

butterfly1964

•4 years ago

20 Replies

Undiagnosed child

Hi, I am new to this and was hoping for some advice. My son who recently turned 10 years old, has now been unwell for nearly 15 months. It started with a sore...

Hi, I am new to this and was hoping for some advice. My son who recently turned ...

Merrie11

•4 years ago

21 Replies

hydroxychloroquine and ophthalmology??

Hi I’ve now been taking hydroxychloroquine for 5 years. I’ve managed to get my optician to do yearly eye test but I’m wondering should I be asking Rhumatology...

Hi I’ve now been taking hydroxychloroquine for 5 years. I’ve managed to get my ...

Gizmok9

•4 years ago

11 Replies

Plaquenil and frequent urination

I’ve just begun Plaquenil and not sure if it’s the reason, but it seems I’m having to urinate lots more than I usually do. Has anyone had this issue?

I’ve just begun Plaquenil and not sure if it’s the reason, but it seems I’m havi...

bunch1974

•4 years ago

3 Replies

Funny Turns

I do not know if anyone can help with this or whether it has anything to do with my autoimmune conditions. I have had a really bad head cold for over three...

I do not know if anyone can help with this or whether it has anything to do with...

CecilyParsley

•4 years ago

61 Replies

Lupus & Coronavirus (COVID-19)

Hi everyone, I apologise for the delay in making this article available, but we had to go through medical review to ensure it is accurate. We've now published...

Hi everyone, I apologise for the delay in making this article available, but we ...

Paul_Howard

Partner•4 years ago

22 Replies

QUESTIONS, QUESTIONS, QUESTIONS

Good Morning everyone, I would like to know Lupus UK's advise (Pauls') on how many of our members including myself can protect ourselves that are immune...

Good Morning everyone, I would like to know Lupus UK's advise (Pauls') on how ma...

maybehope

•4 years ago

2 Replies

Newly diagnosed

Hello.. I have had fibromyalgia and CFS for years. This last May after a period of stress and too much activity I woke up one morning almost unable to get out...

Hello.. I have had fibromyalgia and CFS for years. This last May after a period ...

bunch1974

•4 years ago

14 Replies

Sick with worry

I am feeling really anxious right now, I am trying to keep calm, but having Lupus nephritis, although it is at present under control. How are all you Lupies...

I am feeling really anxious right now, I am trying to keep calm, but having Lupu...

butterfly1964

•4 years ago

38 Replies

Not fully diagnosed yet

Hello So recently been told I may have lupus and they did my bloods and I’m now waiting for them to come back. I was just wondering if anyone has the same...

Hello So recently been told I may have lupus and they did my bloods and I’m now...

Bethany_rachel

•4 years ago

3 Replies

One month on ......

Hi guys One month on from my diagnosis . And commencing steroids for 1 month and plaquin . I’m still feeling awful and my skin itches all over my body ....

Hi guys One month on from my diagnosis . And commencing steroids for 1 month an...

Harry19

•4 years ago

8 Replies

Battling the autoimmune blues but hey at least a dermatology letter has helped.

A friend came by earlier and remarked that she’s never seen me this low before. She worked out that it’s all the worry about the Corona virus that is sending...

A friend came by earlier and remarked that she’s never seen me this low before. ...

Hidden

•4 years ago

34 Replies

Coronavirus and it's concerns.

Apologies, if this subject has already been highlighted, but I wanted to know what the general feel or concerns are from others, regarding the Cov19? I swim...

Apologies, if this subject has already been highlighted, but I wanted to know w...

awareness75

•4 years ago

21 Replies

Elocon 0.1%

Just been prescribed Elocon for my skin as biopsy came back positive for Lupus Profundus. Has anyone had any good results on this cream ??

Just been prescribed Elocon for my skin as biopsy came back positive for Lupus P...

Montysmum1

•4 years ago

6 Replies

Raynauds or vasculitis or what else...dont know what to do

Hello....if anyone can help me to deal with it....cant inderstand if its vasculitis or raynauds or what else...but symptoms are not relieving...with swollen...

Hello....if anyone can help me to deal with it....cant inderstand if its vasculi...

Saffeera

•4 years ago

7 Replies

Coronavirus - are we at increased risk?

I'm sure we're all worrying about this but as they didn't think I was 'vulnerable' enough for a flu jab as I'm undiagnosed (I have FM and ME) I'm wondering if...

I'm sure we're all worrying about this but as they didn't think I was 'vulnerabl...

FoggyMoggy

•4 years ago

8 Replies

Podiatry refferal possible?

Hi. Just wondering if there's anyone on here who regularly goes or a health professional that knows if it's possible to be referred to a podiatrist on the NHS....

Hi. Just wondering if there's anyone on here who regularly goes or a health prof...

awareness75

•4 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2020

They said I had Lupus and RSD til ...

Legs moving on there own!

Salivary Gland ultra sound scan

Lupus & Diet Online Survey - LAST WEEK TO TAKE PART

Interview request from BBC News Digital Video - Your thoughts about coronavirus (COVID-19)

Help please

Pooh Update

Home made hand sanitiser!

Dr. Reddy’s Labs Hydroxychloroquine

Alcohol

Bronchiectasis and azathioprine info please

North Wales Lupus Coffee Meet today

Low BP and fast heartbeat

What are other Lupies doing?

Undiagnosed child

hydroxychloroquine and ophthalmology??

Plaquenil and frequent urination

Funny Turns

Lupus & Coronavirus (COVID-19)

QUESTIONS, QUESTIONS, QUESTIONS

Newly diagnosed

Sick with worry

Not fully diagnosed yet

One month on ......

Battling the autoimmune blues but hey at least a dermatology letter has helped.

Coronavirus and it's concerns.

Elocon 0.1%

Raynauds or vasculitis or what else...dont know what to do

Coronavirus - are we at increased risk?

Podiatry refferal possible?

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