We have been approached by Katie Richards (Final-year MA Music Therapy student at UWE Bristol) who is seeking participants for her research project:
She would like to hear from you if:
•you are a woman(currently 18+ years of age)
•you have experienced a miscarriage yourself(currently defined in the UK as the loss of a pregnancy during the first 23 weeks)
•you made use of music* to help you to adjust to your loss at the time of your miscarriage(s) or related to your miscarriage(s)(*this can include listening to music/playing music/singing)
•you would like to take part in this research project
This research will explore how music could be used in a therapeutic way to help women express and process their emotions following a miscarriage. Research interviews will be allocated on a first come, first served basis. All data collected will be anonymised and kept confidentially, in accordance with current GDPR regulations.
For full details and the opportunity to take part in this research project, please email: katie2.richards@live.uwe.ac.uk
This research has been approved by the UWE Health and Applied Sciences Psychology Low Risk Review Board
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This proposed study is about miscarriage and whether music therapy helps women who have miscarried. It does not address at all whether lupus was the cause?!
There was a sad case reported recently in the i newspaper (15/6/2019) about a woman who miscarried thirteen times and was eventually diagnosed with sticky blood syndrome or APS syndrome which Professor Siobhan Quenby (University Hospital, Coventry) said was the main cause of her miscarriages😢. According to the Professor the woman had a rare condition called CHI, chronic histiocytic intervillositis causing the body to attack the pregnancy. Her body/immune system as in lupus seemed to be attacking her own pregnancies.
Extremely tragic.
This research proposal has a totally different focus!
My miscarriages were possibly a result of my lupus with secondary APS. And music therapy is showing great promise in many ways for patients with chronic disease. Especially Alzheimer's, but also autoimmune. I think it is a relevant study.
But...This proposed study is about miscarriage and whether music therapy helps women who have miscarried.
It does not address at all whether lupus was the cause?!
There was a sad case reported recently in the i newspaper (15/6/2019) about a woman who miscarried thirteen times and was eventually diagnosed with sticky blood syndrome or APS syndrome which Professor Siobhan Quenby (University Hospital, Coventry) said was the main cause of her miscarriages😢. According to the Professor the woman had a rare condition called CHI, chronic histiocytic intervillositis causing the body to attack the pregnancy. Her body/immune system as in lupus seemed to be attacking her own pregnancies. Extremely tragic.
This research proposal has a totally different focus!
This particular research study is not only open to people diagnosed with lupus, however we were approached by the researcher because recurrent miscarriages are not uncommon in people with lupus and antiphospholipid syndrome. I felt it was appropriate to present this opportunity to anyone who may be interested in taking part.
Just wondering whether Lupus UK has produced any educational material on chronic histiocytic intervillocytis (CHI) largely due to a placental malfunction/disorder giving rise to devastating recurrent miscarriages in many women with lupus and APS?
What is the current funding for this condition?
As far as I’m aware the rare condition is often not diagnosed but successful pregnancies can occur once treatment is started after diagnosis.
I have reviewed existing information and evidence regarding CHI and there is nothing at present to suggest that it is associated with lupus and/or APS. This doesn't mean that someone with lupus and/or APS could not have CHI, but there isn't currently anything to suggest causality. As such, we have not produced any educational material about this condition ourselves and I'm afraid I do not know what current funding or ongoing research there may be for CHI.
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