Tingly feet: Does anyone suffer from what i... - LUPUS UK

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Tingly feet

Sallmell profile image
22 Replies

Does anyone suffer from what i describe as tingly feet. They driving me mad, been like it all day. Not had for some time...

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Sallmell profile image
Sallmell
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22 Replies
Lisalou19 profile image
Lisalou19

I get this in feet and hands, made worse by exposure to heat. X

Sallmell profile image
Sallmell in reply to Lisalou19

Oh , that makes sense x

Lisalou19 profile image
Lisalou19 in reply to Sallmell

Try resting your feet in cool water. Sometimes I also use vic on my feet. Almost gives them a numbing cooling effect. X

Sallmell profile image
Sallmell in reply to Lisalou19

Im on the vicks. Thanks for that x

Lisalou19 profile image
Lisalou19 in reply to Sallmell

It was explained to me on here before by a very helpful user, but I’m not sure if I will 100% repeat this correctly but it could be your nerves responding to the heat change, almost exactly how the body would respond if we had physically burnt ourselves. Heat sensitivity. It makes complete sense to me, took me a while to figure the root cause. I hope the vic works for you and if you can in future if your lounging in the garden get a bowl of water for you to rest your feet in 👍🏼Xx

Sallmell profile image
Sallmell in reply to Lisalou19

Thanks so much 🦶🤞

kingsnorth profile image
kingsnorth

Yes l do mainly of a night l think it’s small fibre neuropathy my feet are either cold or burning and throbbing. I take a hot water bottle that has been in the freezer to bed with me and keep my feet on it and this helps me sleep.

NeuronerdDoaty profile image
NeuronerdDoaty in reply to kingsnorth

I go to bed with two!

Gcart profile image
Gcart

Vitamin B12 helped mine , just a thought . Good luck

Sallmell profile image
Sallmell in reply to Gcart

What is that for lovely? X

Gcart profile image
Gcart in reply to Gcart

B12 deficiency. Mine when tested, was in range but NHS range is considered too low by many. I had advice from b12 forum, added B12 , and now don’t have any problems .

Check with GP see if you have had any checks with blood tests you may have had.

Sallmell profile image
Sallmell in reply to Gcart

Wiĺl do thanks for this x

Gcart profile image
Gcart in reply to Sallmell

Just a thought. If you go down this route and take B12 you need a multi b complex vitamin at same time to balance them out .

B12 is a water based vitamin so safe to take ,even a a large dose .

Double check on b12 forum for more advice if necessary xx

Sallmell profile image
Sallmell

Thanks so much so brilliant ideas. X

Krishny18 profile image
Krishny18

I used to get tingly feet and hands. I was put on vitamin B12 and Folic Acid, didn’t even realise the tingling had stopped. Hope you get it sorted soon x

Salzer profile image
Salzer

I have this too. It's got much worse over the past few days but the weather has finally warmed up here so I've spent a few hours pottering around in the garden. Lisalou's explanation makes perfect sense now. I'll give the vicks/cold water a try too! Hope you are feeling better.

Sallmell profile image
Sallmell in reply to Salzer

Yes it makes sense doesn't it hun. I tried Vicks and it helped x

loopy-lou profile image
loopy-lou

I also get tingly feet that are worse at night. I am waiting for blood tests results on this including B12. There are some interesting replies, I will give the above a try. Ask your GP for a blood test too. Hope you manage to get it sorted out.

CecilyParsley profile image
CecilyParsley

Yes I get it in my feet and fingers and the tip of my nose. My GP says it is the Raynauds and it is very annoying. I hope your symptoms ease, mine are worse in extremes of temperature hit ir cold. Good luck xx

This is how my rheumatology journey started over 8 years ago. One morning, after a week of very painful wrists and knees, I woke up and rose to go to the toilet and found to my horror that it was like walking on red hot coals. It would relieve but then each morning same thing.

Later it became burning feet and hands but by this time I had been diagnosed with RA/Sjögren’s/ CTD so then the GP decided it was Raynaud’s. I don’t know why because Raynaud’s only occurs with colour changes and although I do have it as well but the tingle isn’t worse when I’m cold and it doesn’t relieve like Raynaud’s attacks do.

They treated it as this for a while but eventually it turned out to be small fibre neuropathy secondary to Sjögren’s. My feet and legs are mostly a bit numb now and only my finger tips burn. It can occur with most connective tissue diseases I believe and treatments are mainly of the anti depressant or anti convulsant variety.

My B12 levels are always resoundingly normal so this is only one possible cause of many.

Cas70 profile image
Cas70

Deep Freeze do a spray which I use on my burning tingly feet at night - also a gel. Reading replies I am going back to B12 - thanks everyone x

Sallmell profile image
Sallmell

Oh yes . Great ideas thanks all x

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