Doctors Appointment Today: Morning everyone, Hope... - LUPUS UK

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Doctors Appointment Today

Leenie0811 profile image
3 Replies

Morning everyone,

Hope you are well, I finally get to see my own doctor today at 5pm (waiting list for him was 3 weeks!) and I’m so overwhelmed! After the last couple of doctors repeating bloods when I’ve been giving all my symptoms over with no referral I really hope today isn’t going to be the same!

I’m currently off work as I’ve been having a bad flare which is stressing me out as I know there’s work I needed to do which now hasn’t been done. I spoke with our HR rep and they would like a diagnosis ASAP just so they know what they’re dealing with.

So in preparation I have a folder on my phone to show the doctor all the facial rashes I’ve been having along with some images of swollen hands and feet. I haven’t kept an accurate record of my temperature but I now know I roughly am between 35.5 and 36 degrees (Celsius) on a normal day and when I get feverish I can go up to 37.5/38.5. I’ve also got a list of the medications they have given me since this happened - cocodamol 30/500, naproxen 250mg and one lot of antibiotics for a suspected water infection. (Doctor told me afterwards the urine that was sent away didn’t indicate an infection)

Since the last time I went there have been other bloods which have said:

Anti-Nuclear Antibodies IgG POSITIVE 1/320

The second one I can see on my record says:

Anti-nuclear antibody weakly positive

Is this just the different people putting the results into the system? Surely they would have to put the reading? I’m concerned now that this isn’t consistent with the previous test and I’m going to ask about it today.

I feel as if this post is quite jumbled up but honestly my mind is all over the place! It is so hard to concentrate on what to say without getting extremely tired and then needing to have a nap. I wish this would all just go away and I could go back to being normal, I’m fed up of fighting for everything! It’s really getting me down with my mental health all this stuff and it’s no quality of life being left like this for weeks on end whilst it appears nobody knows what to do next...

Sorry for the rant everyone, it seems you guys are the only ones who understand.

Lots of love,

Leenie x

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Leenie0811
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Lizziequink profile image
Lizziequink

I completely understand and know how frustrating it can be trying to get an appointment with a particular GP. Hope it went well for you and you got the answers to your questions.

Leenie0811 profile image
Leenie0811 in reply to Lizziequink

Thank you for your kind words, I’m really glad I took my other half with me as I had a meltdown before we went in thinking what's the point and then when I saw it wasn’t my usual doctor I lost the confidence to speak. He was still a resident doctor but he’s always been a bit hit and miss with me but I managed to get him to refer me and it looks as if it’s going to be out of my normal area but I’m willing to travel to get to the bottom of this, I’m done feeling so poorly all the time.

Leenie x

Lizziequink profile image
Lizziequink in reply to Leenie0811

I'm glad you got a positive(ish) outcome today and with a bit of luck you'll get a quick appointment. I wouldn't stress too much over the meltdown, I think you're perfectly entitled to on after everything you've experienced. Take care of yourself. Liz x

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