Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2019

Rosacea or Malar Rash?

How can you tell the difference between the two and who has been wrongly diagnosed?

How can you tell the difference between the two and who has been wrongly diagnos...

bev2002

•5 years ago

11 Replies

Does anyone have lupus and have any tingling or buzzing in their hand or fingers??

Recently Ive been having tingling in my hands and fingers and now the last couple of days Ive had like a buzzing feeling in the base of my thumb with some...

Recently Ive been having tingling in my hands and fingers and now the last coupl...

Sara_A

•5 years ago

12 Replies

Myths of Lupus

Hi all, Just found this: https://www.hopkinsrheumatology.org/?s=lupus+myths I found some of the content surprising, mostly based on stories of people living...

Hi all, Just found this: https://www.hopkinsrheumatology.org/?s=lupus+myths I fo...

katidid

•5 years ago

62 Replies

Want to take advantage of all our features? Just log in!

Scammer writing private posts

Paul and all health unlocked recipients, Someone called Eliz61 Set me a scam message saying that she was a sick lady and wanted to send me millions of dollars....

Paul and all health unlocked recipients, Someone called Eliz61 Set me a scam mes...

nanleighh

•5 years ago

9 Replies

Do you think I still have a shot with the job?

Edit and update: sadly it was a no but they said I did really well and will keep me on file :P Oh well, keep on applying! Hi all an non lupus related......

Edit and update: sadly it was a no but they said I did really well and will keep...

Penguintaz

•5 years ago

4 Replies

LUPUS UK Community Survey - Question Two - Can you describe how fatigue feels and the impact it has?

Hi everyone, This is the next question for the community survey. For information about the research this is linked to, please go to...

Hi everyone, This is the next question for the community survey. For information...

Paul_Howard

Partner•5 years ago

165 Replies

Mandatory reconsideration for Pip

Hi all , following a recent assessment at home for change in circumstance for pip.I woke up this morning to no payment of my current award standard rate not...

Hi all , following a recent assessment at home for change in circumstance for pi...

tinkslupus

•5 years ago

7 Replies

Help!!

Hello!! Just wondering if anyone has experienced inflamed oesophagus and stomach which affected your throat. I have it but my throat and neck feels very tight...

Hello!! Just wondering if anyone has experienced inflamed oesophagus and stomach...

Carbar

•5 years ago

7 Replies

Hairloss

My hair is starting to shed at a fast rate again. It was growing back thicker and fuller then just about a month ago it starting coming out in clumps. I have...

My hair is starting to shed at a fast rate again. It was growing back thicker an...

ButterflyEffect96

•5 years ago

17 Replies

new here

Hi all, I wasnt here for a month but here is update from dermatologist...he said that I have Telangiectasia and that it can go to Rosacea as that rash is...

Hi all, I wasnt here for a month but here is update from dermatologist...he sai...

Vekiqf

•5 years ago

1 Reply

There must be a connection

Just a quick one been getting progressively worse over the last 2 weeks with muscle and joint pain yesterday was probably the worst I’ve been for 12 mth Sod’s...

Just a quick one been getting progressively worse over the last 2 weeks with mus...

Ianrussell69

•5 years ago

10 Replies

LUPUS UK Community Survey - Question One - What makes a positive/negative medical appointment?

Hi everyone, Over the next week or so we will be posting a series of questions to the community and would be really grateful for any responses and...

Hi everyone, Over the next week or so we will be posting a series of questions t...

Paul_Howard

Partner•5 years ago

103 Replies

So fed up

Earlier this year my GP sent referrals off for me to see Rhumatology and Cardiology. About a month ago I got all my cardiology appointments which are in a few...

Earlier this year my GP sent referrals off for me to see Rhumatology and Cardiol...

Bubble89

•5 years ago

8 Replies

Mycophenolate side effects

After 28 years of taking azathioprine, my doc took me off it recently and made me start Mycophenolate 500mg x 2 daily. From the first day I started...

After 28 years of taking azathioprine, my doc took me off it recently and made m...

LilyMistri2

•5 years ago

2 Replies

Help!!

I have had problems with my face on 3 separate occasions. I woke up with my face swollen like I had an allergic reaction. My fave was bright red and angry...

I have had problems with my face on 3 separate occasions. I woke up with my face...

Diglove

•5 years ago

3 Replies

Sleep and mental capacity

I have posted two other posts today keep forgetting to add things so sorry for posting again, anyone else suffering from absolute bad memory loss or foggy...

I have posted two other posts today keep forgetting to add things so sorry for p...

Burnley1234

•5 years ago

8 Replies

Primary bile malabsorption

I also have primary bile malabsorption whith no retention, so most foods make me seriously ill I am on bile sequestants and powders cannot eat normal food and...

I also have primary bile malabsorption whith no retention, so most foods make me...

Burnley1234

•5 years ago

3 Replies

Auto immune guttate psoriasis

Does anyone else have guttate psoriasis, I am having major health problems got diagnosis of diverticula and guttate psoriasis,the psoriasis I get are single...

Does anyone else have guttate psoriasis, I am having major health problems got d...

Burnley1234

•5 years ago

Be the first to reply

new to lupus

Just found out in January that i have possitive ana test, homogenouse, ana titer of 1:320. Horrible joint pain, tired all the time, 99.5 fever off and on, and...

Just found out in January that i have possitive ana test, homogenouse, ana titer...

maire3761

•5 years ago

7 Replies

TRY THIS IF YOU HAVE LUPUS PLEASE

In a previous post titled HINTS I suggested a few things that really helped me. At my worst I could barely walk 10 metres before I had to rest for a few...

In a previous post titled HINTS I suggested a few things that really helped me. ...

JOWE

•5 years ago

2 Replies

This was is my mum ❤️

I’ve started to have such lovely people message me I really appreciate your kind words. I mentioned my mum a lot this is her I just wanted to share so she had...

I’ve started to have such lovely people message me I really appreciate your kind...

Buckley123

•5 years ago

7 Replies

The letter itself

Thanks for all the support

Buckley123

•5 years ago

6 Replies

Update after frustrating appointment a month ago.

Thank you all for your encouragement after my frustrating appointment and subsequent phone call from the registrar rheumatologist about a month ago. Since...

Thank you all for your encouragement after my frustrating appointment and subseq...

Yellow5

•5 years ago

5 Replies

Dry eye treatments other than drops, keep missing and have to wait for my daughters to get home to do my drops

My eyes are deteriorating, and I think hydroQ is the culprit. Been taking since January, increased to 400mg appropriate 3 weeks ago. Eyes have been getting...

My eyes are deteriorating, and I think hydroQ is the culprit. Been taking since...

Lisalou19

•5 years ago

9 Replies

Newly diagnosed

Hi, yesterday my GP said blood tests came back positive for Lupus. The tests were taken due to unexplained blood clots in my lungs. Other than arthritis in my...

Hi, yesterday my GP said blood tests came back positive for Lupus. The tests wer...

Rob1961

•5 years ago

3 Replies

Just had a letter

My consultant just sent me a letter blaming anxiety for my neurological symptoms.. I guess it’s not the brain lesions causing it my face swells and tongue I...

My consultant just sent me a letter blaming anxiety for my neurological symptoms...

Buckley123

•5 years ago

31 Replies

Mycophenolate

I just started Mycophenolate 500mg twice a day. The side effects I’m having are feeling very cold, some depression and anxiety and constipation. Anyone else...

I just started Mycophenolate 500mg twice a day. The side effects I’m having are ...

LilyMistri2

•5 years ago

2 Replies

Doxycycline 2

Feeling a mixture of stupid, fussy and a general pain in the. Asked the simple question 'do we have any sun screen as the doxy info and surgery advised I use...

Feeling a mixture of stupid, fussy and a general pain in the. Asked the simple q...

Hidden

•5 years ago

22 Replies

Sore eyes that cannot tolerate bright light

Now that the sun is out I'm struggling with my eyes while in the car. My eyes are dry anyway I think from the Lupus although Sjogren was mentioned by the...

Now that the sun is out I'm struggling with my eyes while in the car. My eyes a...

KeepingUpBeat

•5 years ago

6 Replies

LUPUS and mood swings

Hi, my girl friend has lupus and has had since four years old.I am really struggling to understand the condition. She mentioned to me that she has been...

Hi, my girl friend has lupus and has had since four years old.I am really strugg...

perryrc1

•5 years ago

18 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2019

Rosacea or Malar Rash?

Does anyone have lupus and have any tingling or buzzing in their hand or fingers??

Myths of Lupus

Scammer writing private posts

Do you think I still have a shot with the job?

LUPUS UK Community Survey - Question Two - Can you describe how fatigue feels and the impact it has?

Mandatory reconsideration for Pip

Help!!

Hairloss

new here

There must be a connection

LUPUS UK Community Survey - Question One - What makes a positive/negative medical appointment?

So fed up

Mycophenolate side effects

Help!!

Sleep and mental capacity

Primary bile malabsorption

Auto immune guttate psoriasis

new to lupus

TRY THIS IF YOU HAVE LUPUS PLEASE

This was is my mum ❤️

The letter itself

Update after frustrating appointment a month ago.

Dry eye treatments other than drops, keep missing and have to wait for my daughters to get home to do my drops

Newly diagnosed

Just had a letter

Mycophenolate

Doxycycline 2

Sore eyes that cannot tolerate bright light

LUPUS and mood swings

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive