Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,072 members • 28,394 posts

All posts for February 2019

Hello everyone 😁

Hello to you all. I haven't written on here for some time now. But, I am finally getting some answers. I don't have Lupus. I possibly have rheumatoid...

Hello to you all. I haven't written on here for some time now. But, I am final...

mumsyme

•6 years ago

2 Replies

Whats next?

So appointment at reumatoligy clinic Monday past not much to report apart from recent uti and eye infection . Friday morning post brings letter from...

So appointment at reumatoligy clinic Monday past not much to report apart from r...

farmerfeste

•6 years ago

1 Reply

Confused

Hi all, I’m new here. Basically I’ve struggled for years with different ailments and was treated with so many different medications, my gps got fed up with me....

Hi all, I’m new here. Basically I’ve struggled for years with different ailments...

Oliveoi

•6 years ago

6 Replies

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R o positive

Hi, I’m new here! Could someone please clarify to me if R o positive means that I have either mixed connective tissue disease or Lupus?

Hi, I’m new here! Could someone please clarify to me if R o positive means that ...

Oliveoi

•6 years ago

6 Replies

Jobs loss

Ive just been finished from work. I have been on the sick since September (I have lupus, osteoarthritis for which im needing knee replacement and being only 45...

Ive just been finished from work. I have been on the sick since September (I hav...

teaparty

•6 years ago

20 Replies

One of those nights

I am In so much pain with my joints and I can't sleep. I'm hoping I'm not going into a flare, I've had quite a stressful week so that could be a factor. What...

I am In so much pain with my joints and I can't sleep. I'm hoping I'm not going ...

cathylou

•6 years ago

16 Replies

SLE and total knee replacement

I had a total knee replacement nearly 4 months ago and my knee still feels warm/hot to the touch and still is painful at times. It seems as if it may be...

I had a total knee replacement nearly 4 months ago and my knee still feels warm/...

Jude65

•6 years ago

17 Replies

mortons neuroma

Has anyone had mortons neuroma? I had an ultrasound on my feet which showed no neuromas but I have all the pain and symptoms for it. My doctor has dismissed it...

Has anyone had mortons neuroma? I had an ultrasound on my feet which showed no n...

suzannah16

•6 years ago

16 Replies

Lip filler

Wanting a plumper look Anyone with lupus had lip filler ?? I know you have to be in remission x

Wanting a plumper look Anyone with lupus had lip filler ?? I know you have to ...

poodlegal

•6 years ago

10 Replies

Hormonal?

I think I'm having another flare up and as I'm now tracking symptoms ready to see the rheumatologist I've realised that the last one was 4 weeks ago. Could it...

I think I'm having another flare up and as I'm now tracking symptoms ready to se...

JaxPow

•6 years ago

9 Replies

EzChaz1226 - Update.

Hi all, I’m EzChaz1226 this is my old account however I just wanted to update everyone , I’ve had a rheumatologist appointment today, chest X-ray, bloods and...

Hi all, I’m EzChaz1226 this is my old account however I just wanted to update ev...

MidnightMystery

•6 years ago

3 Replies

Confused? - Should I get Tested?

Hey all! I was wondering if I could ask for some opinions on my health, to see whether it is a good idea to get tested for Lupus. Back in 2015, I fell ill...

Hey all! I was wondering if I could ask for some opinions on my health, to see ...

Davis3924

•6 years ago

7 Replies

BlueIron

Morning all! Just wondering if anyone had tried the BlueIron supplement - it's advertised as being gentle on the stomach and so I thought this might be one to...

Morning all! Just wondering if anyone had tried the BlueIron supplement - it's a...

Commutergirl

•6 years ago

1 Reply

Essentialsomatics

A question: Has anyone tried this? Were there any benefits? Best wishes Kevin

Kevin53

•6 years ago

3 Replies

new here

Hi, I was wondering if I may possibly have a mild/ beginning stage of Lupus. The test that I will post below was ordered by a Rheumatologist that I was...

Hi, I was wondering if I may possibly have a mild/ beginning stage of Lupus. Th...

JennaShi

•6 years ago

28 Replies

Sjogrens symptoms?

I have had a really dry nose with ulcers that crust over for the past 4 months, really painful. I also get occasional mouth ulcers. My optician told me too...

I have had a really dry nose with ulcers that crust over for the past 4 months, ...

Caramia64

•6 years ago

11 Replies

Anxiously awaiting test results...

Apologies in advance as this is going to be lengthy, but I would really appreciate some input from those with knowledge like you guys....! For at least a year...

Apologies in advance as this is going to be lengthy, but I would really apprecia...

MemmaJ

•6 years ago

8 Replies

Can’t get out of this flare

Hi all I just can’t get out of a flare I have had 2 Five day courses of steroids from my GP but each time I stop them it just gets worse again! Do the high...

Hi all I just can’t get out of a flare I have had 2 Five day courses of steroid...

Olibop

•6 years ago

17 Replies

Lupus like condition plus suspected Hypermobilty Ehlers Danlos Syndrome. Advice please.

Now being referred to a geneticist by rheumatologist. Just looking for advice on the subject.

Now being referred to a geneticist by rheumatologist. Just looking for advice on...

Hidden

•6 years ago

41 Replies

Losing strength!

Hi everyone, I lurk here a lot but don't say too much. You all seem like a nice group of people so I'm wondering if you can put my aging experience in...

Hi everyone, I lurk here a lot but don't say too much. You all seem like a nice ...

Shishin

•6 years ago

12 Replies

Lung symptoms

Hey folks, I’ve been doing some autoimmune reading, funny how this becomes part of life isn’t it? I told my rheumi 6 months ago I was getting breathless...

Hey folks, I’ve been doing some autoimmune reading, funny how this becomes part...

AmyG6500

•6 years ago

19 Replies

Not a bad appointment

I attend my rheumy appointment today and it went quite well. She’s put me back on my leflunomide and 2 weekly blood monitoring. If my liver goes up again...

I attend my rheumy appointment today and it went quite well. She’s put me back ...

LouLamb

•6 years ago

11 Replies

New Member

Hi there. Am a new member and was diagnosed in Oct 18 after what seems like years of ongoing tests. They took a biopsy from my chest followed by lots of...

Hi there. Am a new member and was diagnosed in Oct 18 after what seems like year...

shabs-123

•6 years ago

8 Replies

And another one to add to the mixture!

My rheumy research team sent me off to get a scan of my glands last November after I explained to them how very dry my mouth gets. This has been followed up my...

My rheumy research team sent me off to get a scan of my glands last November aft...

Lupiknits

•6 years ago

24 Replies

GI bleed ,?Dieuiafoy lesion clipped.

I have SLE,RA, Raynauds etc. In November I had a GI bleed and was discovered to have a possible ?dieuiafoy lesion , 9 clips were used to stem the bleeding via...

I have SLE,RA, Raynauds etc. In November I had a GI bleed and was discovered to ...

Solitaire16

•6 years ago

4 Replies

Out of Area Healthcare: Is This Managable, How Is It Managed, Has it Worked For You? Interested to Hear Your Thoughts and Experiences.

Hi All Due to my ongoing saga of trying to access decent rheumatological care and following promising recommendations received from some of you, I am now...

Hi All Due to my ongoing saga of trying to access decent rheumatological care an...

Foggyme

•6 years ago

39 Replies

ill health retirement

Hi , I am 54 years old with lupus , hypothyroidism , sjogrens, IBS and osteoarthritis. I also had a brain tumour removed 18 months ago. I work 18 3/4 hours a...

Hi , I am 54 years old with lupus , hypothyroidism , sjogrens, IBS and osteoarth...

Caramia64

•6 years ago

31 Replies

Any successful stories of sleep therapy? Awake since 2.15am since last Thursday. 😴 I wake up fully alert!!!!

I tend not to go doctors for everything! I don’t like to be a burden really and I do try self help, but I’m exhausted due to this on going sleep problem I’ve...

I tend not to go doctors for everything! I don’t like to be a burden really and...

Lisalou19

•6 years ago

23 Replies

Rituximab

Hi guys Sorry not been public on here for a while. Had first Rituximab on 18th Jan abs second 1st Feb. After second I’ve been feeling awful. Really nauseous,...

Hi guys Sorry not been public on here for a while. Had first Rituximab on 18th J...

Wolf1

•6 years ago

9 Replies

Compromised immunity

Thank you so much for all your replies, everyone on here is so lovely and so helpful. It's very comforting to know we are not alone 💕 xx

Thank you so much for all your replies, everyone on here is so lovely and so hel...

Aurali

•6 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for February 2019

Hello everyone 😁

Whats next?

Confused

R o positive

Jobs loss

One of those nights

SLE and total knee replacement

mortons neuroma

Lip filler

Hormonal?

EzChaz1226 - Update.

Confused? - Should I get Tested?

BlueIron

Essentialsomatics

new here

Sjogrens symptoms?

Anxiously awaiting test results...

Can’t get out of this flare

Lupus like condition plus suspected Hypermobilty Ehlers Danlos Syndrome. Advice please.

Losing strength!

Lung symptoms

Not a bad appointment

New Member

And another one to add to the mixture!

GI bleed ,?Dieuiafoy lesion clipped.

Out of Area Healthcare: Is This Managable, How Is It Managed, Has it Worked For You? Interested to Hear Your Thoughts and Experiences.

ill health retirement

Any successful stories of sleep therapy? Awake since 2.15am since last Thursday. 😴 I wake up fully alert!!!!

Rituximab

Compromised immunity

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