I attend my rheumy appointment today and it went quite well.
She’s put me back on my leflunomide and 2 weekly blood monitoring. If my liver goes up again she’ll send me for a scan to have a look.
She’s going to push my physio referral again as I’m still waiting.
She’s given me nifedipine to try and help with the raynaurds. Struggling at the moment with it.
Maybe 2019 will be filled with good appointments now !
Another one booked for 3 months nurse in 6-8 weeks 🙂🙂🙂
Hurrah for good rheumy appointments. Really pleased for you LouLamb. Hope the liver holds up okay (or perhaps I should I say doesn't go up again).
Hope the new meds bring relief and that physio finally appears.
It's great to hear when someone has a good day...even better when someone has a good rheumy appointment 👏👏👏👏😀
Glad you had a good appointment with your rheumy. My son who has lupus was told twice that he was being referred to physio and it was never done !! At his last app in January he asked about it again as he is now seeing the physio tomorrow, it’s worth checking up and pushing about referrals . Good luck with all Lou , I hope the job is still going well , best wishes x
Thank you.
Job is going well now I’m in the other class. I’m far less tired. I’m in bit of pain at moment because I had to stop my leflunomide. My steroids end this week😬😬 so I’m taking 500mg naproxen at the moment as well.
Only 3 days left at work then it’s half term.
I’m off to Benidorm on Monday 🙂🇪🇸✈️ xx
I hope you get the pain under control before Benidorm , have a lovely holiday ☀️☀️🏝⛱ xxx
Hi loulamb
Lovely to read you had a good Rheumy appt. Do hope your liver behaves and lefufamide works now your back on it. I take nifedipine for Raynauds and it's improved my symptoms. It's been difficult to get it at pharmacies but my surgery keeps coming up with different brands of it but same drug so just something to be aware of. Also I take the slow release preparation as it gives better graded relief throughout the day!. Hope it does for you and you enjoy Benidorm!. Keep us postedXx
Thank you .
They owe me some tablets for both leflunomide and nifedipine which I can pick up Saturday .
Doc told me I shouldn’t have to wait 6 weeks ago for it to kick it because I’ve only been off it for 2 weeks 🙂🙂
Hi LouLamb,
Glad to hear things are going well, hope liver ok.
I saw my consultant last week for Myositis/Scleroderma and he was pleased with me. I told him I had a painful hip and it was getting much worse, it hasn’t helped having a slight trip up a couple weeks ago where I knocked my grabber stick into the wall with my foot, the wall didn’t move so the hip took the brunt. He said I have bursitis and that sitting in chair doesn’t help all the time, he knows it’s difficult to move around a lot but very sympathetic. He suggested a steroid injection but will see how it goes for a bit longer, got more cushions on the recliner which is helping and doing my exercises.
Hope the driving is going ok.🚘
Enjoy Benidorm ⛱
Thank you !
Sorry to hear about your hip. I hope it’s better soon. I could of had steroid injection back in November but went for tablets. Only because I’m a bit of plonker sometimes in the moment.
Driving is going good. Did have a battery problem last month. I left a light on and I’m drained. Thankful a great friend jumped started it in the snow.
I then had to buy a new tyre because I had a slow puncture!! 😱
Everything is working at the moment 😂
Have a lovely, relaxing holiday and hoping your liver behaves...thanks for sharing good appt news! Made my day already! xxx
A day of mixed emotions!
A bad week 
A Bad Day
