mortons neuroma: Has anyone had mortons neuroma? I... - LUPUS UK

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mortons neuroma

suzannah16 profile image
16 Replies

Has anyone had mortons neuroma? I had an ultrasound on my feet which showed no neuromas but I have all the pain and symptoms for it. My doctor has dismissed it because it wasn't visible in the US. I have had no other testing for it or anything else.

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suzannah16 profile image
suzannah16
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16 Replies
Foggyme profile image
Foggyme

Yes...I have a Morton's Neuroma.

It was very large (visible on ultrasound) and I narrowly avoided surgery by permanently wearing bespoke orthotic insoles. Also have collapsed ankles and deformity in the large metatarsal phalanges joint (the one where bunions often occur - not that Imhave one of those 😖)...the thinking was that the poor position of my foot put pressure on the nerve, cause inflammation and hence the Morton's neuroma. (Extremely painful - burning, shooting, stabbing, agonising nerve pain).

No idea if this has any connection to autoimmune disease (I have UCTD), so I need to look at this (so many things to be researched 📚📚📚).

Here in the UK, some GP's are not alway good at feet (and other things too, sadly 😉). No idea what the position is in the USA but have you thought of seeing a chiropodist or a podiatrist. They might be able to help with a diagnosis and treatment for your symptoms and the pain.

Fairly new to this so perhaps some will be able to leave you a more informed answer.

Good luck.

suzannah16 profile image
suzannah16 in reply toFoggyme

Yes I saw the podiatrist yesterday, she said because it didn't show up on ultra sound I couldn't have it but couldn't explain why I have all the other symptoms. told me to stretch my calf muscles.

Foggyme profile image
Foggyme in reply tosuzannah16

Hmm...not quite sure why calf muscle could give you the symptoms of Morton's neuroma...but also not sure how this can be present and not show on ultrasound.

So, I'm stumped. Perhaps there are other 'feet' conditions that can cause similar symptoms?

So...perhaps do the exercises and see what happens? See another podiatrist - perhaps they'll have a better idea of what's happening (like doctors, must be poor ones and better ones).

Hopefully some else will pop along and offer up other possibilities...'cause, as I say...I'm stumped. 🤔🤔😀

I have one of these. Mine doesn’t hurt because my feet are broadly numb but it feels like I have a quishy marble under my foot/ feet. It’s actually where I got my name, Twitchytoes, from as it can make my affected toes twitch.

My podiatrist showed it to me by squeezing my toes together at base and we both saw it pop out. Never needed an ultrasound but if I don’t wear strong insoles he made for me and the soles are too hard then it can very annoying. X

Gizmo81 profile image
Gizmo81

I have had one diagnosed in the UK and had surgery to remove it this was about 10 years ago and now I am starting to feel pain again so not sure if it’s growing back

AgedCrone profile image
AgedCrone in reply toGizmo81

Ditto.....11 years ago....had ultra sound guided injections in both feet last October & they don't seem to have worked.

Foot surgeon says the "stumps" left after surgery do regrow & can be removed.

I'm dubious about having more surgery ......so for now I am just wearing supporting footwear & putting up with the discomfort.

Kass_Bruni profile image
Kass_Bruni

Good morning suzannah. I also have Morton’s neurona. My gp said i stumped my toe at first (she couldn’t understand why there was no bruising) and should rest it for 6 weeks. After that diagnosed it myself and asked my rheumatologist to refer me for an ultrasound which was then confirmed. I had the injection but unfortunately it’s still very much there. Worse on colder days and there’s shoes I cannot wear anymore. Got insoles made but they don’t fit any of my shoes.

I got little foot pads to relieve pressure on the front of my foot and toes when walking at first which helped a lot

Good luck ✨

Gcart profile image
Gcart in reply toKass_Bruni

I have one , doc thought it was part of my bone in foot !

Confirmed on US after I ' suggested' what it might be 🙄

Havent had anything done having been offered operation .

However I just wear very sensible shoes which allow to cope very well . Not a good look in my best frock though 😄

Kass_Bruni profile image
Kass_Bruni in reply toGcart

I wonder what surgery involves. I got the cortisone injection directly into the nerve.

The right footgear makes such a difference

Gcart profile image
Gcart in reply toKass_Bruni

Not sure but I know its very difficult after for some tome due to the location . Getting around would be not a choice for me . So footwear is ok at present.

shaunalouise26 profile image
shaunalouise26

Hi yes I have a mortons neuroma seen on MRI. I also have ruptured AFTL ligament in same foot ankle weakness and my toes are curling under on both feet. Not a lot they can do for me had a few steroid injections but it's caused guttering. Have the insoles now. I test positive for scleroderma so don't know if it's linked but had flat feet from childhood x

Horsewhisper profile image
Horsewhisper

Me too on the Morton’s Neuroma front - it was discovered via ultrasound whilst having investigations into very painful feet, inflammed joints in the feet etc years ago, way before I was diagnosed with UCTD. It doesn’t cause any problems, I just have to wear very supportive, cushioned footwear both in and out of the house (including my wellies!) My feet are a complete car crash anyway, double bunionectomy 4 years ago, followed by big toe fusion and shortening of toes on left foot last January. Told surgeon of UCTD when diagnosed last April and he had a complete lightbulb moment - “that explains all the inflammation and knackered tissues in your feet!” Doh! If only the specialty’s in the UK were more joined up instead of us unicorns joining the dots up ourselves!! Sorry Susannah, just had a mini rant on your post. Physio is good along with padded footwear, if you can tolerate it, try some Voltarol on the affected area? My days of wearing killer heels are sadly long gone! 👠 😢 Hope you find some respite from the pain soon, foot pain is so not nice x

Mean-time profile image
Mean-time

You may have arthritis in your feet. I asked my foot doctor why my feet hurt so bad as I couldn’t go bare footed at all. He said I had arthritis in my feet and should take care and make sure I had enough cushioning in the soles of shoes. The cushions available in stores work for me.

suzannah16 profile image
suzannah16 in reply toMean-time

I know I have osteoarthritis in them but i'm sure there are other things as well. The pains are different.

debbied09 profile image
debbied09

My Podiatrist just went by the symptoms and the location of t he pain. It wont hurt for you to seek a second opinion, I didn't have an ultrasound. She gave me shots in both feet and I could walk with out pain again the next day.

suzannah16 profile image
suzannah16 in reply todebbied09

thanks that's helpful. I will do the exercises I've been told to do and if there's no improvement I will pester my doctors until they do something. The pain is too bad for me to ignore anymore.

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