Cold Feet : I have SLE lupus and my feet stay cold... - LUPUS UK

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Cold Feet

Nita40 profile image
2 Replies

I have SLE lupus and my feet stay cold have been doing so for about a month now and if I sit to long my knees hurt any suggestions

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Nita40
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Puska profile image
Puska

There’s no real solution other than keep mobile as much as possible. Trust you are seeing a specialist? Unless you are having signs of skin breakdown they don’t seem to think cold hands and feet are clinically important and just tell you to keep moving and wear warm clothes.

Paul_Howard profile image
Paul_HowardPartnerLUPUS UK

Hi Nita40 ,

Cold feet and problems with circulation can sometimes suggest secondary Raynaud's phenomenon. You can read more about this with tips for managing it at lupusuk.org.uk/coping-with-...

Regarding your knees; have you discussed this with your consultant? Have you had an occupational therapy (OT) assessment in your home? They may be able to advise you about adaptations to your seating which may help you be more comfortable.

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