Thank you for letting me join this group
Iam 36 year old female I was diagnosed with Mtcd in Nov 2016 after a long battle with fatigue , joint pain and anemia Numbness in my arms and legs
It has been a rollercoaster with frequent flare ups despite being on a range of treatment with Hydroxychloroquine
It is very hard to accept the difficulties and how this completely changes your life to a halt and the worst is to try and get people to understand your illness which appear to be invisible to them but very real for me worst of all your own treating physicians !
Iam glad to have joined this and hopefully I will learn from anyone and be able to provide any experiences
All I can say we should remain strong and refuse to be seen as invisible