Azathioprine! Hints and tips!: Hi everyone! I'm... - LUPUS UK

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Azathioprine! Hints and tips!

Kelihunt41 profile image
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Hi everyone! I'm about to be put on azathioprine after being diagnosed with lupus (7+ years). I have resisted so far but failed to keep my flares and symptoms under control. Does anyone have any advice or warnings about azathioprine. Many thanks! Keli x

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Kelihunt41 profile image
Kelihunt41
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Wenwen profile image
Wenwen

I was allergy to Azo with WBC dropped to very low and caught pneumonia.... Would suggest to monitor the blood WBC.

Best

Rubylu profile image
Rubylu

I've been on it for a year now, and have just had a further increase in dose. I was nervous to start with but feel quite a bit better on it. It took several weeks to feel a difference, and my neurologist and rheumatologist both said it could take up to a year for it to really get max benefit (which seems to be true!). You'll have to be patient! Good luck

misty14 profile image
misty14

Hi kelihunt

Good luck for starting Azathioprine. It's a helpful drug but has to be monitored for blood count changes!. You'll probably start fortnightly for a while and then if ok will do it monthly!.

I do hope it improves your symptoms but you have to allow three months for it to start working!. Keep us posted and fingers crossed. X

tallytutu profile image
tallytutu

Hi kelihunt Azathioprine has given me my life back! I had no side effects . It takes a while to get in your system. I was monitored fortnightly for a month then monthly, now 6 weekly with blood test.

I still have occasional flare ups but that usually because I've completely overdone it.

Good luck and make the most of the good days. Take care

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