Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for December 2016

November's Topic of the Month - Getting the Most from Your Medical Appointments

We have just published our (slightly belated) blog article for November about getting the most from your medical appointments....

We have just published our (slightly belated) blog article for November about ge...

Paul_Howard

Partner•7 years ago

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👣👣👣👣👣👣👣👣👣👣👣👣Experimental lupus treatment 👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi All: Yesterday I had a lupus treatment with a new trial medication. I had to stay over night at the research center. As if...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi All: Yesterday I had a lupus treatment with ...

Tiras

•7 years ago

25 Replies

Chest/back pain + wind + breathlessness????!!!

Hi all, This is my first time on HealthUnlocked. It's pretty hard to summarise what's been happening but here we go... I am a 39 year-old woman with lupus...

Hi all, This is my first time on HealthUnlocked. It's pretty hard to summarise w...

MeelyMc

•7 years ago

11 Replies

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Blood test

Anyone know long does it usually take for the sjogren blood work to come back?

Dalollies

•7 years ago

3 Replies

Squeaky sounds on in-breath

Hello everyone, Hope you are well. For the past week I have been experiencing a squeaky sounds at the end of my in-breath, it's quite musical actually!...

Hello everyone, Hope you are well. For the past week I have been experiencing a...

Tripitaka

•7 years ago

7 Replies

CHEST PAIN

Hi all have not been on for a while, was just wondering if anyone gets bad chest pain. I have had it a few times now and actually thought I had a heart attack...

Hi all have not been on for a while, was just wondering if anyone gets bad chest...

julie1234

•7 years ago

10 Replies

Constipation and Bloating

Hi, I'm not suffering,my wife is SLE diagnosed every post on here is so personal having helped her go through many of them. Our problem at the moment is...

Hi, I'm not suffering,my wife is SLE diagnosed every post on here is so personal...

geodoug

•7 years ago

16 Replies

Anyone play sport at a high level?

How to cope ? Is it possible

Tay171

•7 years ago

8 Replies

Color of my fingers😩

Here's a photo of my fingers about a minute after I put it on the floor. It took that long for the color to come back. Anyone experience this????

Here's a photo of my fingers about a minute after I put it on the floor. It took...

LucyK5821

•7 years ago

39 Replies

ESA assessment.

I wrote a while ago saying I had written to my local MP about the waste of time ,money, and stress of long term illness sufferers being recalled to...

I wrote a while ago saying I had written to my local MP about the waste of time ...

johare

•7 years ago

20 Replies

Does anyone know who this person is don't like someone following me without knowing who they are ???? ( zaccmburu).

Attatched pic of name at top

Skid

•7 years ago

20 Replies

Meet my mate

May he grant all your wishes 🎅⚽️

Footygirl

•7 years ago

2 Replies

First Post :) Cyclophosphamide to treat CNS Lupus/ Kidneys- Advice please?!

Wondered if anyone could help by sharing there experiences with Cyclophosphamide? I have SLE and now Lupus Nephritis, I have had bad illness this year first...

Wondered if anyone could help by sharing there experiences with Cyclophosphamide...

HannahLupus

•7 years ago

17 Replies

New to all this....Advice?

Hi all, I'm going to try to be really to the point behind this because my intentions are very specific. Long before I really knew my wife she was diagnosed...

Hi all, I'm going to try to be really to the point behind this because my inten...

MattyDavis

•7 years ago

10 Replies

Bath problems...Part 2

I wrote a wailing post a few weeks ago about not being able to get out of our large bath. Well I bought a blow up bath seat at half price from e Bay. It has...

I wrote a wailing post a few weeks ago about not being able to get out of our la...

bones-bones

•7 years ago

4 Replies

Univeristy student looking for research participants

I posted on here two months ago to make some initial enquiries and many of you were kind enough to respond. I am looking to now recruit three participants to...

I posted on here two months ago to make some initial enquiries and many of you w...

SonyaNME

•7 years ago

2 Replies

Anybody else get this?

It's always scary when a new symptom pops up. I woke this morning and the first thing I noticed was my knees and elbows were burning and itching, I looked to...

It's always scary when a new symptom pops up. I woke this morning and the first...

stacieann1989

•7 years ago

5 Replies

Thinking of moving into my GP surgery

I've been in 5 times in the last fortnight. This morning, another urgent appointment after I spent all night awake, nauseous, sweating and shaking with the...

I've been in 5 times in the last fortnight. This morning, another urgent appoint...

whisperit

•7 years ago

13 Replies

Nails

Does anyone have red patches on their nails? Most of my fingernails have them now but they're more noticeable on my right hand

Does anyone have red patches on their nails? Most of my fingernails have them no...

Suecon

•7 years ago

7 Replies

Clarelux 500.

Good morning to you all. I saw my dermatologist this week & I mentioned that my hair is falling out quite badly, especially around the hair line. I'm beginning...

Good morning to you all. I saw my dermatologist this week & I mentioned that my ...

smudge1980

•7 years ago

2 Replies

Not from the UK....hope that's OK.

Hi, my name is Janae. ::waves:: I've been having major health problems for a little over four years, but the sun reactions are relatively new (about six...

Hi, my name is Janae. ::waves:: I've been having major health problems for a lit...

JanaeRadford

•7 years ago

7 Replies

What could this be?

Hi everyone, just looking for some insight into something that has been plaguing me lately and I haven't gotten any answers yet, so for a little while now I've...

Hi everyone, just looking for some insight into something that has been plaguing...

Linorandthewolf

•7 years ago

4 Replies

Lupus and SINUS PROBLEMS

Iv had 5 sinus ops,going back into ninewells hosp in jan,to get biopsy and catheter tubes stitched into sinuses again,had same procedure dun in aug,this time...

Iv had 5 sinus ops,going back into ninewells hosp in jan,to get biopsy and cathe...

Jeffscott69

•7 years ago

2 Replies

Saga update: Brand new practice. New GP. I've only got ten minutes...

But, lasted 25. Very good first impression. Wont throw my knickers in the air just yet but very promising. I asked for, copy of lastest Hospital blood tests....

But, lasted 25. Very good first impression. Wont throw my knickers in the air ju...

Footygirl

•7 years ago

12 Replies

High CA-125 blood test again?

I had to have a ca -125 blood test done 6 weeks ago now due to abdominal pains and feeling uncomfortable in my stomach that come back 70, my scans was...

I had to have a ca -125 blood test done 6 weeks ago now due to abdominal pains a...

Hidden

•7 years ago

3 Replies

Needing a bit of a talking to...........

Hi, fellow Lupies, Hope everyone is feeling ok and coping well? I've got myself into a state and need a bit of advice that only you will understand. I had a...

Hi, fellow Lupies, Hope everyone is feeling ok and coping well? I've got myself ...

Nurseladybird

•7 years ago

26 Replies

PIP update

I'm. Coming to the end of my PIP journey, having had my assessment today. It really wasn't too bad at all. The lady who assessed me was really nice and quite...

I'm. Coming to the end of my PIP journey, having had my assessment today. It rea...

maurice1

•7 years ago

2 Replies

Prednisalone and Depot Medrol alternatives anyone?

Hi Folks, I am between a rock and a hard place at the moment and wondered if anyone out there was horribly sensitive to prednisalone . I am sero negative with...

Hi Folks, I am between a rock and a hard place at the moment and wondered if any...

cuttysark

•7 years ago

19 Replies

Fed up with doctors.

Hi everyone. I've never posted before but I've been so sick of doctors lately. I am about ready to just start trying homeopathic ways instead of seeing them....

Hi everyone. I've never posted before but I've been so sick of doctors lately. I...

Boxxietrolls

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2016

November's Topic of the Month - Getting the Most from Your Medical Appointments

👣👣👣👣👣👣👣👣👣👣👣👣Experimental lupus treatment 👣👣👣👣👣👣👣👣👣👣👣👣

Chest/back pain + wind + breathlessness????!!!

Blood test

Squeaky sounds on in-breath

CHEST PAIN

Constipation and Bloating

Anyone play sport at a high level?

Color of my fingers😩

ESA assessment.

Does anyone know who this person is don't like someone following me without knowing who they are ???? ( zaccmburu).

Meet my mate

First Post :) Cyclophosphamide to treat CNS Lupus/ Kidneys- Advice please?!

New to all this....Advice?

Bath problems...Part 2

Univeristy student looking for research participants

Anybody else get this?

Thinking of moving into my GP surgery

Nails

Clarelux 500.

Not from the UK....hope that's OK.

What could this be?

Lupus and SINUS PROBLEMS

Saga update: Brand new practice. New GP. I've only got ten minutes...

High CA-125 blood test again?

Needing a bit of a talking to...........

PIP update

Prednisalone and Depot Medrol alternatives anyone?

Fed up with doctors.

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for December 2016

November's Topic of the Month - Getting the Most from Your Medical Appointments

👣👣👣👣👣👣👣👣👣👣👣👣Experimental lupus treatment 👣👣👣👣👣👣👣👣👣👣👣👣

Chest/back pain + wind + breathlessness????!!!

Blood test

Squeaky sounds on in-breath

CHEST PAIN

Constipation and Bloating

Anyone play sport at a high level?

Color of my fingers😩

ESA assessment.

Does anyone know who this person is don't like someone following me without knowing who they are ???? ( zaccmburu).

Meet my mate

First Post :) Cyclophosphamide to treat CNS Lupus/ Kidneys- Advice please?!

New to all this....Advice?

Bath problems...Part 2

Univeristy​ student looking for research participants

Anybody else get this?

Thinking of moving into my GP surgery

Nails

Clarelux 500.

Not from the UK....hope that's OK.

What could this be?

Lupus and SINUS PROBLEMS

Saga update: Brand new practice. New GP. I've only got ten minutes...

High CA-125 blood test again?

Needing a bit of a talking to...........

PIP update

Prednisalone and Depot Medrol alternatives anyone?

Fed up with doctors.

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Univeristy student looking for research participants