I am between a rock and a hard place at the moment and wondered if anyone out there was horribly sensitive to prednisalone .
I am sero negative with suspected Sjogrens but also with a host of other medical problems seemingly all related. I am also extremely drug sensitive making controling symptoms very difficult. So far only regular steroids have kept the worst of my symptoms at bearable level but now even they have become problems themselves.
Fot almost four years I have been on Depot Medrol Injections 80 mg every twelve weeks, plus 2.5 Pred dailly, plus hydrocortisone usually 15 mg as I need ,as I also have Addisons which thankfully is still mild. That mix has been what is keeping me ticking over albeit not wonderfully at all!
I have now developed a horrid sensitivity to the Depot Medrol injection with soaking sweating , no sleeping and blurred vision for three weeks every time I get it. After three weeks symptoms subside a little. When I say sweating, I am having to change all under clothes three times a day and the bed is soaked every night.
I do have chronic autoimmune pancreattis and biliary disease and kidney problems so maybe my sytem just cant cope with the injection. The Prednisalone oral is not great either. I have to take the enteric coated 2.5mg as the ordianary ones give me gastritis.
Once I live through the weeks of side effects after the Depot injection I reach a plateau where I reach the anti inflammatory benefits which gives me just a few weeks of life being more bearable, then it is time for another injection and the drenching sweating again. Worryingly I also have glaucoma and I do notice the injections are giving me blurred vision in my worse eye,
I am due a visit to my GP next week and want to talk it over with her but wondered if any of you out there have tried different steroids other than prednisalone with less side effects. I hoped a wee tweak with the steroids might bring some relief.