How to cope ? Is it possible
Anyone play sport at a high level?: How to cope... - LUPUS UK
Anyone play sport at a high level?
I go long run - 10 plus on Sundays and classes, spin, swimming or smaller running during the week. I have days when I'm feeling pain after stretching for days and others not. But I am a lot worst if I don't exercise
This was great to read - wish you very best!
Since diagnosis I've kind of put in a self-limitation "no I can't do that" is usually my response. I love the idea of being able to run - currently I would get puffed out after 30 seconds I'm sure. Not sure how to start to be honest as feel pretty fatigued most days
I do dressage, we are working Grand Prix at home and competing at Prix Saint George (which is a couple of levels below GP. I really struggled in the summer with the sun and was trying to ride in the evenings, but difficult with 2 children as well. I have 3 of my own to look after and do my friends 4 in the evenings sometimes as well. When I'm having a flare up, I struggle as it affects my hands and I have trouble closing my hands round the reins.
I was doing martial arts and competing in it for 3 years after diagnosis. I stopped being able to keep up but that's due to fatigue and the emphasis being on work. I had to just manage it carefully and take breaks if I was having a flare. I personally think the regular exercise helped me at the time.
I do classes, swimming, running, gym. If I do not even walk at my lunch break that is when I feel pain! Sometimes I'm like some one who has never exercised before but I keep going pushing and trying. I've put on weight because tablets and under active thyroid. I always recommend exercise - walking 🚶 is brilliant!
I can't wait till I'm fit enough to get on the treadmill. Right now, walking the two flights of stairs TO get to the apartment gym (let alone BE on the treadill itself) wipes me out for 15 or 20 minutes straight. They keep saying it gets better. *fingers crossed*