Anyone play sport at a high level?: How to cope... - LUPUS UK

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Anyone play sport at a high level?

Tay171 profile image
8 Replies

How to cope ? Is it possible

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Tay171
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8 Replies
charls profile image
charls

I go long run - 10 plus on Sundays and classes, spin, swimming or smaller running during the week. I have days when I'm feeling pain after stretching for days and others not. But I am a lot worst if I don't exercise

ferhana profile image
ferhana in reply tocharls

This was great to read - wish you very best!

Since diagnosis I've kind of put in a self-limitation "no I can't do that" is usually my response. I love the idea of being able to run - currently I would get puffed out after 30 seconds I'm sure. Not sure how to start to be honest as feel pretty fatigued most days

Tay171 profile image
Tay171 in reply tocharls

I would run a lot of long distances too . But recently my muscles and joints seize up right after . Definitely worse when I don't exercise too though .

Nikki246 profile image
Nikki246

I do dressage, we are working Grand Prix at home and competing at Prix Saint George (which is a couple of levels below GP. I really struggled in the summer with the sun and was trying to ride in the evenings, but difficult with 2 children as well. I have 3 of my own to look after and do my friends 4 in the evenings sometimes as well. When I'm having a flare up, I struggle as it affects my hands and I have trouble closing my hands round the reins.

Vbutton profile image
Vbutton

I was doing martial arts and competing in it for 3 years after diagnosis. I stopped being able to keep up but that's due to fatigue and the emphasis being on work. I had to just manage it carefully and take breaks if I was having a flare. I personally think the regular exercise helped me at the time.

charls profile image
charls

I do classes, swimming, running, gym. If I do not even walk at my lunch break that is when I feel pain! Sometimes I'm like some one who has never exercised before but I keep going pushing and trying. I've put on weight because tablets and under active thyroid. I always recommend exercise - walking 🚶 is brilliant!

Tay171 profile image
Tay171 in reply tocharls

Iv been playing football at a high level in the US and wanted to play pro someday . So I'm finding it difficult to accept right now.

quirkytizzy profile image
quirkytizzy

I can't wait till I'm fit enough to get on the treadmill. Right now, walking the two flights of stairs TO get to the apartment gym (let alone BE on the treadill itself) wipes me out for 15 or 20 minutes straight. They keep saying it gets better. *fingers crossed*

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