Anybody else get this?

Anybody else get this?

It's always scary when a new symptom pops up. I woke this morning and the first thing I noticed was my knees and elbows were burning and itching, I looked to find what resembled multiple mosquito type bite bumps and the areas inflamed, itchy and hot to the touch. The picture is my knees , and it's the same on my elbows.

I've been feeling unwell for the past week with horrid headaches and generally aching , you know the day to day kind of issues, but this is new for me. I get the malar rash, but only mild.

I had a bath and it seems to have calmed down a bit.

My next rehumy app isn't for another three months, but I'm seeing a neurologist at the end of this month becuase of my headaches and muscle twitches.

Anyone else get rashes just in joint areas or a rash that sounds similar to this ?

Thanks guys, hope everyone is well x

5 Replies

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  • Nasty....I do get something similar...especially on areas where the skin is more over bone than flesh eg joints including wrists, elbows, ankles, knees, also the front of legs down the bone, shins, all over topside of feet, down the arm bone. My medics tell me these are due to my vascular-type SLE..and this is why am being treated at a Lupus & Vasculitis clinic. My current oral combined therapy treatment plan mostly prevents these rashes, but when I do get them treatment starts with the strongest version of the prescription topical steroid betnovate ointment, moving onto the ultra strong topical steroid dermovate in ointment form (creams make me itch) if necessary.

    Hope something in there is useful to you

    Please let us know what your medics say

    🍀🍀🍀🍀 coco

  • Thanks for the reply, sorry to hear you experience rashes also :( but sounds like you have a good treatment plan in order. They're all over the place with me, I haven't been given any kind of medication yet. The strange thing with this rash is, it's faded a few hours after it started but the area is still red and itchy, it began on my palms about an hour ago and was limit and itching like crazy and now it's gone :/ so weird.

  • Hi there,

    I am sorry to hear you are experiencing these issues.

    As your next appointment with your rheumatologist is 3 months away, it might be a good idea to ask your GP to refer you to a dermatologist who will be able to help with this.

    Or you could also try to contact your rheumatologist's secretary to see if your consultant can see you sooner than planned.

    We have a leaflet on lupus and the skin that you might find useful that you can download at lupusuk.org.uk/wp-content/u... and also a blog article about rashes that might be of interest lupusuk.org.uk/coping-with-...

    All the best.

  • Thanks so much for the informative reply. I'll take a look at the leaflet x

  • I have been getting headaches and muscle twitches but it's always when I'm anxious

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