Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2014

Pain

Is it normal to have severe pain on the bottom of my feet? It feels like they're burnt.......hard to walk as well. Anyone else get a burning sensation like...

Is it normal to have severe pain on the bottom of my feet? It feels like they'r...

royalsmom7

•10 years ago

7 Replies

Tight chest

I wonder if anyone can throw any light on this one for me. I have several criteria that would be strong indicators for lupus but no diagnosis as yet. My chest...

I wonder if anyone can throw any light on this one for me. I have several criter...

kyliesinead

•10 years ago

9 Replies

Dla refused my decision today after 10weeks of reconsideration of my application. I posted a couple of days ago after a phone call

Thursday just gone suddenly I got my decision..i feel really annoyed at the whole process a waste of time..i don't want to take it further as I have no energy...

Thursday just gone suddenly I got my decision..i feel really annoyed at the whol...

jeevan05

•10 years ago

12 Replies

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sjogren's syndrome and sore swollen tongue???

I have sle and a handful of other auto immune disorders and have recently been diagnosed with sjogren's. My question is does anyone else suffer from a swollen...

I have sle and a handful of other auto immune disorders and have recently been d...

sezzie

•10 years ago

18 Replies

How is your ANA titre calculated?

I have blood results back and they just say "ANA Panel = positive"

Bonnie39

•10 years ago

6 Replies

Swimming with lupus

Hi. I am feeling a little bit adventurous and I will like to take up swimming. I did not learn to swim when I was young and I would like to start now. The...

Hi. I am feeling a little bit adventurous and I will like to take up swimming. I...

nass361

•10 years ago

23 Replies

I seem to be adding autoimmune issues daily to (IMO) obvious SLE. When will someone start treating me for my illnesses? What will it take? :

OK, so lupus suspected and a +ve ANA last summer. APS identified at same time and treatment started for that last November. Kidneys are unhappy and I seem to...

OK, so lupus suspected and a +ve ANA last summer. APS identified at same time an...

Bonnie39

•10 years ago

13 Replies

Middle back pain

I wake up with this pain most mornings. I don't know if it's arthritis, my stupid mattress that's sinking in (foam) or some internal organ problem I should be...

I wake up with this pain most mornings. I don't know if it's arthritis, my stupi...

Natura

•10 years ago

4 Replies

Having a 'Why me?' day :-(

Having a bit of a wobble so just want to let vent in the safety and anonymity of this forum! I was diagnosed a year ago with MCTD overlapping with SLE after...

Having a bit of a wobble so just want to let vent in the safety and anonymity of...

tcogb

•10 years ago

10 Replies

I feel such a mess right now

Hi all. My general joint pain is barely under control at the moment and I hardly feel the effects of taking the plaquenil. My rheumatologist has said step it...

Hi all. My general joint pain is barely under control at the moment and I hardly...

bestbuddy

•10 years ago

12 Replies

How can I persuade my rheumy to take me seriously?

It's been a 6 year battle, I'm in constant pain now, I can't go out in the sun at all (even when overcast it's bad), I have a positive ANA of 1:640, I get...

It's been a 6 year battle, I'm in constant pain now, I can't go out in the sun a...

happyp

•10 years ago

23 Replies

Holy leg cramps!!!! I've had serious tightening of the lower leg all night.....hard to sleep! Anyone else get this? What helps you?

royalsmom7

•10 years ago

6 Replies

Methotrexate and headaches

Happy Easter everyone. i was prescribed methotrexate 4 wks ago, i am increasing the dose every 2 weeks for 6 weeks. I seemed ok at first but took my dose...

Happy Easter everyone. i was prescribed methotrexate 4 wks ago, i am increasing ...

Newloop

•10 years ago

12 Replies

Prednisolone seems to have stopped the war in my body but still very fatigued not tired just worn out can anybody tell me how long till thes

E symptons go any advice would be appreciated thanks alan

Alan55

•10 years ago

15 Replies

I applied for dla lastyear October,2013 I was refused in February this..because I had 7 points and I needed 8 to qualify..

They wrote to me telling me that they may change their decision but need to speak to me first. I was called on February the 14th I told them how the sle...

They wrote to me telling me that they may change their decision but need to spea...

jeevan05

•10 years ago

4 Replies

Anyone ever joined slimming world with lupus?

Hi all I wanted to ask if anyone has joined slimming world with a diagnosis of lupus? I did lose weight with slimming world years ago before diagnosis, but...

Hi all I wanted to ask if anyone has joined slimming world with a diagnosis of ...

esky

•10 years ago

17 Replies

Dose anyone know anything about ESA appeals after you have been awarded it.

Had my Incapacity stopped about 12 months ago I appealed and was awarded ESA after going to court on the 13/3/14 I gave it two weeks and had no contact from...

Had my Incapacity stopped about 12 months ago I appealed and was awarded ESA aft...

Kedaco

•10 years ago

3 Replies

Hi could someone please tell me how much it would cost to go private; as I think it is time for me to take another route .

maggied54

•10 years ago

6 Replies

Psoriasis arthritis

Hi. Recently been to the rhumy and he got quite animated this time. He has referred me to a rhumy nurse as he now wants me to go on methotrexate, he now thinks...

Hi. Recently been to the rhumy and he got quite animated this time. He has refer...

tmh66

•10 years ago

2 Replies

What sunscreens are available on prescription & which are best?

MrsNewfy

•10 years ago

12 Replies

Getting a mortgage and live insurance

Morning all, my partner and I really want to move to a more practical house, but I was concerned whether we would even be offered a joint mortgage and life...

Morning all, my partner and I really want to move to a more practical house, but...

tiredmum

•10 years ago

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Can Gabapentin be taken with wafrin

I got told off today for not taking my pain killers gabapentin does anyone else take this on wafrin ? Does it affect ur levels don't know why I am worried...

I got told off today for not taking my pain killers gabapentin does anyone else ...

lennox

•10 years ago

3 Replies

Stopped taking Tramadol.

My night sweats have been reduced by 80% but what can I take for the pain? I have tried all the over the counter pain killers they do little to help, Tramadol...

My night sweats have been reduced by 80% but what can I take for the pain? I hav...

Kedaco

•10 years ago

5 Replies

Can anyone please tell me what a high urate level in my blood means?

I have been suffering with blood in my urine for some time, and always have a UTI a week before each period. My nephrologist is concerned I may have LN and...

I have been suffering with blood in my urine for some time, and always have a UT...

Bonnie39

•10 years ago

13 Replies

Can someone Tell me abit more about interstitial cystitis?

Hello I recently wrote a page on frequent urination and how it affects me I can hold my toilet for around 3-5 hours so have no problem but the symptoms of...

Hello I recently wrote a page on frequent urination and how it affects me I ca...

Danielle2419

•10 years ago

9 Replies

Hi everyone at last after 2 years drs are now taking me seriously are referring me to rheumatologist and because I am having trouble with my

Eyes have asked me to go to eye hospital also have kept me on prednisolone ibuprofen codeine and diazepam does anybody else have eye problems caused by lupus?...

Eyes have asked me to go to eye hospital also have kept me on prednisolone ibupr...

Alan55

•10 years ago

9 Replies

Significance of negative antibodies

Hi folks. My name is Bethany, and I have been tentatively diagnosed with Behcet's, however, I have a positive ANA speckled, at 1:80. I wonder if it is not...

Hi folks. My name is Bethany, and I have been tentatively diagnosed with Behcet...

Hidden

•10 years ago

12 Replies

Hello. I am new to all this and find this site very helpful, I too have been having probs for ages mainly joint ache and fatigued,

It all came to a head end Nov last year when I was in so much pain with my right knee I could not walk, went to the Docs who was new to practise (mine retired)...

It all came to a head end Nov last year when I was in so much pain with my right...

bodyache

•10 years ago

8 Replies

I use dermablend dark 7 to cover my discoid Lupus

I use Dermablend Dark 7 to cover my Lupus Discoid skin looks better but people still stare sometimes and it gets on my shirt. Also cannot just wipe sweat, etc...

I use Dermablend Dark 7 to cover my Lupus Discoid skin looks better but people s...

mikrhodz

•10 years ago

Be the first to reply

Lupus and Flu

Just for everyone's information.. I was told, by a nutritionist in training, that elderberry would be good to take to combat the flu. He knew I have Lupus. I...

Just for everyone's information.. I was told, by a nutritionist in training, tha...

Natura

•10 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2014

Pain

Tight chest

Dla refused my decision today after 10weeks of reconsideration of my application. I posted a couple of days ago after a phone call

sjogren's syndrome and sore swollen tongue???

How is your ANA titre calculated?

Swimming with lupus

I seem to be adding autoimmune issues daily to (IMO) obvious SLE. When will someone start treating me for my illnesses? What will it take? :

Middle back pain

Having a 'Why me?' day :-(

I feel such a mess right now

How can I persuade my rheumy to take me seriously?

Holy leg cramps!!!! I've had serious tightening of the lower leg all night.....hard to sleep! Anyone else get this? What helps you?

Methotrexate and headaches

Prednisolone seems to have stopped the war in my body but still very fatigued not tired just worn out can anybody tell me how long till thes

I applied for dla lastyear October,2013 I was refused in February this..because I had 7 points and I needed 8 to qualify..

Anyone ever joined slimming world with lupus?

Dose anyone know anything about ESA appeals after you have been awarded it.

Hi could someone please tell me how much it would cost to go private; as I think it is time for me to take another route .

Psoriasis arthritis

What sunscreens are available on prescription & which are best?

Getting a mortgage and live insurance

Can Gabapentin be taken with wafrin

Stopped taking Tramadol.

Can anyone please tell me what a high urate level in my blood means?

Can someone Tell me abit more about interstitial cystitis?

Hi everyone at last after 2 years drs are now taking me seriously are referring me to rheumatologist and because I am having trouble with my

Significance of negative antibodies

Hello. I am new to all this and find this site very helpful, I too have been having probs for ages mainly joint ache and fatigued,

I use dermablend dark 7 to cover my discoid Lupus

Lupus and Flu

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