Pain: Is it normal to have severe pain on the... - LUPUS UK

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royalsmom7 profile image
7 Replies

Is it normal to have severe pain on the bottom of my feet? It feels like they're burnt.......hard to walk as well.

Anyone else get a burning sensation like I'm describing?

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royalsmom7 profile image
royalsmom7
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7 Replies

Yes - i have been getting this for years - it was how my autoimmune arthritis disease started - when I got up in the mornings it was like treading on a floor of broken glass.

When I started to get more widespread peripheral neuropathy my GP said he thought this was connective tissue related - probably Raynauds. After eight months of this problem I was started on Nifedipine - a vasodilator drug which opens up blood vessels. It has taken a lot of the edge off my symptoms including burning feet.

But then I saw my podiatrist last week and he said that burning soles is often caused by tarsal tunnel syndrome - exactly same as carpal tunnel does to the wrists. So he is trying to manipulate my legs and feet now to help release the trapped nerves. He feels in my case I have some systemic widespread neuritis so is not that confident he can help as it might start higher up in the sciatic nerve or be due to a cervical problem in my neck or shoulders and must be from inflammation in my connective tissue. But he sorted out my friend's problem with a burning foot by manipulating her knee where the problems were coming from. Hope this helps. Twitchy

BellaC79 profile image
BellaC79

Hi there, I suffered from this burning sensation in both my hands and feet after activities. Only relief was a cool tiled floor- mine is caused by small fibre neuropathy as I am coeliac possibly due to nutrient deficencies. Another condition called erythromelalgia could be the culprit. Do you have numbness/ tingling or pins and needles at other times too? This is how my case started!

sazzyb profile image
sazzyb

Yep, mine started 20 years ago. I've always gone barefoot in my home but one day I discovered my feet were too painful, the soles felt as though I was walking on raw flesh. I often had to get up during the night and run the cold shower on them because they were burning so much. GP ran the usual blood tests, results 'normal' and so I've just lived with it. But I did some googling and found this site (interesting facial rash photo here as well - just like a butterfly!) erythromelalgia.org/WhatisE...

notoverthehill profile image
notoverthehill

I have the same and have had a vascular ultra sound and next week see a vascular consultants as I may have blocked arteries I take Pregabalin for the pain which I am told is for Fybromyalgia but since the redness and swelling it doesnt really help. Hopefully it will get sorted as I am not able to have full surgery .I think you should contact your rheumatologist.I have had a stroke and siezures and have assumed it was Vasculitis

EOLHPC profile image
EOLHPC

Sounds like me. I'm diagnosed with simultaneous erythromelalgia & raynauds (as well as SLE etc etc). The TEA org site does have great archives, and the Raynauds & scleroderma assoc website also has info about erythromelalgia. In fact, the latest R&S Hot News journal issue includes a v good explanation of erythromelalgia in the Doc Spot section p6-7.

gwesler profile image
gwesler

Is there some numbness too? I've experience something very similar and it moved up my feet to above my ankles. I've found Hydrocodone eases the symptoms by about 50-80% and zolpidem by 100%.. Good luck

Titch1971 profile image
Titch1971

Hi can't believe someone has the same symptom's as me.i have had it for the last 3/4 years it has reached a peak i can't control even with alot of meds.it goes in my toes and has deformed my feet.the joint's actually sting no shoes or boots feel comfortable,can't walk far .recently i have been diagnosed with a weak lupus.dr sent me to a rheumatologist who is doing more blood tests.perhaps you should ask your dr to do a blood test for lupus.wishing you well and good luck

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