Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2013

Lupus is real!!

Yep Lupus is real not something we imagine,,,look us up,,we here to support each other ,,need one another .We stronger in numbers x

Yep Lupus is real not something we imagine,,,look us up,,we here to support each...

•11 years ago

boooooooooo.

today is not a good one, damed neuro stuff, visibly twitching hands, twitchy eyelids, every where twitchy..... my left ankle/ lower leg is painfull as hell,...

today is not a good one, damed neuro stuff, visibly twitching hands, twitchy eye...

•11 years ago

Hydroxychloroquine / Plaquenil (HCQ)– retinal damage

Latest research (2016) on eye tests for Hydroxychloriquine retinal toxicity. Note that the tests not recommended only identify the damage when it is too late...

Latest research (2016) on eye tests for Hydroxychloriquine retinal toxicity. Not...

•11 years ago

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amitriptyline 10mg

hello you lovely people on lupus uk I am taking 20mg of these pills before bed. at first I was out like a light within minutes now its taking me longer to get...

hello you lovely people on lupus uk I am taking 20mg of these pills before bed. ...

•11 years ago

Calling on men with Lupus

Hi guys I am a post graduate student at De Montfort University, Leicester and looking for men with Lupus who are willing to participate in my research...

Hi guys I am a post graduate student at De Montfort University, Leicester and...

•11 years ago

Anyone managing mortons neuromas?

Have them in both forefeet + inflammed bursae at same sites. Ouch, big time! And ironic cause have spent adult life taking ultra good care of my flippers!...

Have them in both forefeet + inflammed bursae at same sites. Ouch, big time! A...

•11 years ago

question if any one knows

My Anti Nuclear blood test has come back positive the last 3 times any ideas , my soles of my feet hurt more so when walking so do my ankles , wrists and palms...

My Anti Nuclear blood test has come back positive the last 3 times any ideas , m...

•11 years ago

Abit of advice for ESA

I recently said I applied for esa and I got a letter saying my payment will start on the 10th of June so long as I got my sick note. Well I got my sick note...

I recently said I applied for esa and I got a letter saying my payment will star...

•11 years ago

June's Guest Blog - Tamsin Campbelton (LUPUS UK Contact)

This month's guest article has been written by Tamsin Campbelton. Tamsin is a member of the Dorset Lupus Group committee and is a telephone contact for LUPUS...

This month's guest article has been written by Tamsin Campbelton. Tamsin is a m...

Partner•11 years ago

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Good news!

Just thought I'd share some good news: had a birthday party on Saturday- (organised by family- i stayed in bed for 2 days & saved spoons!) got teenage daughter...

Just thought I'd share some good news: had a birthday party on Saturday- (organi...

•11 years ago

APS, lupus and high INR

Hi everyone just wanted to know your experiences when your INR is high (mine has shot up to 7.3). I've just done a test as my INR had been stable the last few...

Hi everyone just wanted to know your experiences when your INR is high (mine has...

•11 years ago

Has anyone found love after Lupus?

I am feeling a little disheartened today after my ex flew back from NZ to take me away for 3 weeks but we only lasted 4 days in Paris before he decided to go...

I am feeling a little disheartened today after my ex flew back from NZ to take m...

•11 years ago

Is lupus something we need to 'beat'?

Someone here recently wrote about a method they had found to beating lupus. It got me thinking not just because the post 'inflamed' (sorry naughty pun) a...

Someone here recently wrote about a method they had found to beating lupus. It g...

•11 years ago

Rash on hydroxychloriquine

I've been taking hydroxychloriquine for about 4 weeks now. I think I'm starting to feel a little bit better which is exciting! I'm certainly not quite as...

I've been taking hydroxychloriquine for about 4 weeks now. I think I'm starting ...

•11 years ago

Managing Lupus and Atrial Fibrillation does anyone have the two conditions and how do you manage?

Hi all, I just wondered if any of you have AF as well as Lupus? I am a bit unsure of whats going on with me at the moment and could really do with some advice....

Hi all, I just wondered if any of you have AF as well as Lupus? I am a bit unsur...

•11 years ago

Esa

Make people aware of LUPUS.let's fight dwp and the government

Make people aware of LUPUS.let's fight dwp and the government

•11 years ago

Have to go back to work

good morning. I have just recently had my assesment for my ESA. They have decided i am fit enough to go back to work. I see my rhummi every month has they are...

good morning. I have just recently had my assesment for my ESA. They have decide...

•11 years ago

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