Anyone managing mortons neuromas?: Have them in... - LUPUS UK

LUPUS UK

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Anyone managing mortons neuromas?

Barnclown profile image
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Have them in both forefeet + inflammed bursae at same sites. Ouch, big time! And ironic cause have spent adult life taking ultra good care of my flippers!

Whatever, my MN/Bs have been recently fully diagnosed by a top nhs orthopedic surgeon via MRI. although actually, I am 7 years into managing my MN/Bs conscientiously & conservatively (bespoke full food langer orthotics with big met domes, arnica gel, exercises, anti-inflamation diet & supplements, rationed weigh bearing, sensible foot wear etc etc).

only got this definitive NHS diagnosis last year. Meanwhile, my osteopath, podiatrist & pain consultant had already got to this diagnosis years earlier, so the final nhs diagnosis was anticipated...although previous NHS ortho surgeons had told me i was imagining things etc...argh...am trying not to remember the way I was treated! Anyway, even last year, the final v senior nhs Ortho surgeon was vvvvv negative: told me no alternative treatments due to my sle. And I should '/stay off my feet'!. But i persevered: did full research re treatments online & privately saw my pain consultant. Am now on second of a series of pain consultant's steroid injections..

Would be glad to know am not alone. My SLE, global hypermobility & osteopenia are amongst my complicating factors.

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Barnclown
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JJKANE profile image
JJKANE

Yes I have them and can hardly walk so painful .. had steroid injections and they made them worse.!

Barnclown profile image
Barnclown

Oh my gosh! Had given up hope! Thanks so much: wouldn't wish this on anyone, but am so glad to find you!

How would you feel about telling me your MN story? Do you have the bursitis associated with your MN/s too?

Am v happy to do this by personal message on here, if you like...

Am v happy to share my story too

But no hard feelings if you'd rather not

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