Have them in both forefeet + inflammed bursae at same sites. Ouch, big time! And ironic cause have spent adult life taking ultra good care of my flippers!
Whatever, my MN/Bs have been recently fully diagnosed by a top nhs orthopedic surgeon via MRI. although actually, I am 7 years into managing my MN/Bs conscientiously & conservatively (bespoke full food langer orthotics with big met domes, arnica gel, exercises, anti-inflamation diet & supplements, rationed weigh bearing, sensible foot wear etc etc).
only got this definitive NHS diagnosis last year. Meanwhile, my osteopath, podiatrist & pain consultant had already got to this diagnosis years earlier, so the final nhs diagnosis was anticipated...although previous NHS ortho surgeons had told me i was imagining things etc...argh...am trying not to remember the way I was treated! Anyway, even last year, the final v senior nhs Ortho surgeon was vvvvv negative: told me no alternative treatments due to my sle. And I should '/stay off my feet'!. But i persevered: did full research re treatments online & privately saw my pain consultant. Am now on second of a series of pain consultant's steroid injections..
Would be glad to know am not alone. My SLE, global hypermobility & osteopenia are amongst my complicating factors.
Anyone taking Benlysta in the UK?
Has anyone had their diagnosis taken away?
Toothpaste makes me cough/gag. Does anyone else have this? If so how have you managed it.
New to this - anyone have lupus attacking liver?
