Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,937 members • 28,267 posts

All posts for June 2013

Also, anyone else uber hypersensitive to sound when in a flare?

steadilymovingforward

•11 years ago

10 Replies

Claiming for DLA

It has been suggested that due to my symptoms I may be able to claim DLA. Anyone else had any success with this?

It has been suggested that due to my symptoms I may be able to claim DLA. Anyon...

daphers

•11 years ago

12 Replies

Anyone else feel terrible next day (fatigue/pain) if they've had just a few drinks?

My heart will pound all night too and I won't sleep?

steadilymovingforward

•11 years ago

23 Replies

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Broken bones?

Hi I just wondered if anybody has broken any bones but not realised at the time. The reason I ask is because I found out a year ago whilst in hospital I had a...

Hi I just wondered if anybody has broken any bones but not realised at the time....

mum-two

•11 years ago

4 Replies

AntiCoagulation Europe (charity no. 1090250) needs your help with a major new survey

http://www.surveymonkey.com/s/57LMJSW AntiCoagulation Europe want you to tell us about your experience of being on an anticoagulant. From how you felt when...

http://www.surveymonkey.com/s/57LMJSW AntiCoagulation Europe want you to tell...

warfarin1

•11 years ago

2 Replies

One step at the time!!!!

Thought you might like this!!

janiceray

•11 years ago

7 Replies

Increase in immunosuppressants having some good results.

4-5 weeks ago my rheumy upped the azathioprine to the highest dose I've been on (200mg per day) , slowly but surely I'm able to do more than I have done for...

4-5 weeks ago my rheumy upped the azathioprine to the highest dose I've been on ...

Slowmo

•11 years ago

9 Replies

von willebrands

Does anyone have a bleeding disease that may be related to lupus? Anyone had a muscle MRI looking for lupus?

Does anyone have a bleeding disease that may be related to lupus? Anyone had...

westlife1

•11 years ago

4 Replies

Fluid filled swellings on both legs below knee on inside then also under ankle bone! Whats this about?

any ideas? Feeling generally worse each day at the moment!

saranne

•11 years ago

11 Replies

What is polymyositis?

misty14

•11 years ago

9 Replies

ANA speckled and titre of 80

Hello fonts of all knowledge. Having already been told I am positive to Ro and La antibodies I now know my ANA result is speckled and a titre of 80 (which...

Hello fonts of all knowledge. Having already been told I am positive to Ro and L...

Hidden

•11 years ago

2 Replies

Awaiting diagnosis

Hi all am new around here, and am currently awaiting diagnosis. I had some blood tests a month or so ago and because the tests didnt indicate I have lupus...

Hi all am new around here, and am currently awaiting diagnosis. I had some bl...

ronson

•11 years ago

11 Replies

pins and needs and numb arm and chest pain

Hi everyone I went to the gp yesterday as im experiencing chest pain with numbness down my left arm and my fingers are prickling with pins and needles....It...

Hi everyone I went to the gp yesterday as im experiencing chest pain with num...

LULU85

•11 years ago

12 Replies

Diagnosis

I'm totally confused have been seeing rheumy for past yr and last wk she staryed me on prednisole orally even though 6mths ago i was injected into the joint...

I'm totally confused have been seeing rheumy for past yr and last wk she staryed...

dawsden

•11 years ago

10 Replies

Need help

Been told I've got raynaulds that there's no test or medication for it also suffering dry eyes and very dry mouth but its not diabetic cant see a doctor at my...

Been told I've got raynaulds that there's no test or medication for it also suff...

suemac

•11 years ago

7 Replies

Numbs Lips

Anyone get numb lips? Been having trouble spitting words out for ages as mouth ceazes up a bit (and dry sjogrens mouth) Lately however been getting tingly...

Anyone get numb lips? Been having trouble spitting words out for ages as mouth ...

steadilymovingforward

•11 years ago

2 Replies

lupus, pain in the you know what !!

I can honestly say from reading the posts and talking with people who have lupus and my own experience, that this condition is a pain in the a**. on one hand...

I can honestly say from reading the posts and talking with people who have lupus...

scoobydoo1

•11 years ago

11 Replies

Currently going through diagnosis

Hey folks, i was told 2 weeks ago that i was to stay out of the sun at all costs and that i may have an auto immune disease known to all of you as Lupus. I had...

Hey folks, i was told 2 weeks ago that i was to stay out of the sun at all costs...

starwalker

•11 years ago

8 Replies

Sore spine?! Does anyone experience this..

I have this area on my spine that is so tender. Hurts to touch even gently. For years I've had this but put up with it. I have finally been referred back to...

I have this area on my spine that is so tender. Hurts to touch even gently. For ...

trueman

•11 years ago

7 Replies

Memories

hi all put blogg on here before about losing it couldn't remember how to lock my front door which was quite funny,as is losing/misplacing things frustrating at...

hi all put blogg on here before about losing it couldn't remember how to lock my...

letslaugh63

•11 years ago

11 Replies

Rheumy appointment

I went to my first rheumy appointment today. I saw such a nice doctor who explained loads and asked lots of questions. She's not 100% sure it's Lupus although...

I went to my first rheumy appointment today. I saw such a nice doctor who explai...

Chicklette

•11 years ago

14 Replies

Be positive with a positive attitude and positive things will happen

I am a person who suffers with lupus trace that has affected my kidney function and ive suffered from kidney failure i was diagnosed when i was just 18 years...

I am a person who suffers with lupus trace that has affected my kidney function ...

brandy28

•11 years ago

7 Replies

Pre-menstrual mini-flare!!

Hi just wondered if anyone else is experiencing this? I am feeling very tired, my legs and abdomen are definitely swollen. I have a constant headache and I...

Hi just wondered if anyone else is experiencing this? I am feeling very tired, m...

yasmine

•11 years ago

4 Replies

Has anyone developed shingles while on prednisolone ?

Voutton

•11 years ago

5 Replies

gabapentin

Ive just been prescribed this medication for pain and was wondering if anyone else has taken it and if there are any side effects Thank you.xxxxx

Ive just been prescribed this medication for pain and was wondering if anyone el...

lillyanne

•11 years ago

13 Replies

decisions.

today is not a good day, now finished my prednisolone and feel like total crap. pain is back under ribs and now short of breath, especially on exertion, dammed...

today is not a good day, now finished my prednisolone and feel like total crap. ...

scoobydoo1

•11 years ago

7 Replies

London lupus clinic

has anyone been here and is it any good, seriously considering forking out to see a lupus specialist and hopefully get a formal diagnosis by a lupus...

has anyone been here and is it any good, seriously considering forking out to se...

scoobydoo1

•11 years ago

12 Replies

Cold feet ....if only

I know many on here suffer with cold feet as I do to as I'm not diagnosed and really don't have anyone to ask questions thought I'd asked the real...

I know many on here suffer with cold feet as I do to as I'm not diagnosed and re...

letslaugh63

•11 years ago

13 Replies

How many blokes are registered on here?

Since being diagnosed, I keep being told I'm quite a rare specimen each time I see a new doctor or consultant at clinic or A&E. Or should that be "speci-man"...

Since being diagnosed, I keep being told I'm quite a rare specimen each time I s...

Diagnosed2012

•11 years ago

18 Replies

Apology for May's Blog

We would like to take this opportunity to thank the Chester Lupus Group for their excellent fundraising and awareness towards the LUPUS UK National Conference...

We would like to take this opportunity to thank the Chester Lupus Group for thei...

Paul_Howard

Partner•11 years ago

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Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2013

Also, anyone else uber hypersensitive to sound when in a flare?

Claiming for DLA

Anyone else feel terrible next day (fatigue/pain) if they've had just a few drinks?

Broken bones?

AntiCoagulation Europe (charity no. 1090250) needs your help with a major new survey

One step at the time!!!!

Increase in immunosuppressants having some good results.

von willebrands

Fluid filled swellings on both legs below knee on inside then also under ankle bone! Whats this about?

What is polymyositis?

ANA speckled and titre of 80

Awaiting diagnosis

pins and needs and numb arm and chest pain

Diagnosis

Need help

Numbs Lips

lupus, pain in the you know what !!

Currently going through diagnosis

Sore spine?! Does anyone experience this..

Memories

Rheumy appointment

Be positive with a positive attitude and positive things will happen

Pre-menstrual mini-flare!!

Has anyone developed shingles while on prednisolone ?

gabapentin

decisions.

London lupus clinic

Cold feet ....if only

How many blokes are registered on here?

Apology for May's Blog

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