I went to my first rheumy appointment today. I saw such a nice doctor who explained loads and asked lots of questions. She's not 100% sure it's Lupus although it's 'Lupus-like'. Not sure I understand what that means, but I don't feel I need a name for what's wrong as long as they're looking after me. She's started me on hydroxychloriquine so see how I get on and I have to go back in 3 months. I had a load of blood tests and am feeling quite positive. After years of being ignored I feel that someone cares how I feel. I'm praying that the hydroxychloriquine helps me to feel a bit less exhausted, then I might feel able to do some of the things I've had to put to one side while I feel so knackered.
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