Also, anyone else uber hypersensitive to sound wh... - LUPUS UK
Also, anyone else uber hypersensitive to sound when in a flare?
Totally..........was in Costa coffee shop last week and totally lost track on what I was saying because of complete sensitivity to background noise.....particularly the hissing of the coffee machines. It's as though everything is completely hypersensitive.
Hi. I have only been diagnosed with fairly mild SLE for the past year and I'm still not sure of what is and isn't a flare! I definitely get days though when I am very hypersensitive to noise. It tends to happen when I have had a busy couple of days. My main SLE symptom is brain fog. If I have to spend some time talking/mingling in a group, I need to have some time later that day where I can shut off the world. It happened today and I needed to take time out this afternoon so that I could function for the rest of the evening. I don't really have any answers but I hope it is comforting to know you are not alone. Take care.
Hi, thanks for your responses....I understand what you mean by needing a 'time out'....my worst time for noise is dinner...clanging and clanking of cutlery and plates, then continual loud talking...torture!
I love dinner when I'm not hypersensitive!
Hi I get hypersensitivity to noise as well, unfortunately I work in an open plan office so there is no where quite. I found it helped if I could control the noise so I stared to listen to music through some earphones when it was really bad, it acted like a distraction and gave me some control back. Although it seemed strange to use noise to cancel the background it seemed to work. Fortunately my office allows this otherwise it's unbearable!!
Hiya, this is one of the things that totally cracks me up, its like sensory overload and I have to leave the room! I simply can not function! I too notice it at dinner time! Usually when my family all come together (usually on a Sunday) as we sit down the noise can just build up, to the point were I do have to leave the room and give myself a minute. We are a very loud family!! But thankfully it doesn't happen all the time! When it happens when we are in the car, I obviously can't leave the car, so we play the quiet game!!!! ha ha my youngest child is 18 (although I do have Grandaughter of 5) and they just laugh at me, but funny, it still works!!! 
Yes and in fact thought at one point extended loud noise brought on flares for me! I used to flare after going to the cinema and thought it was the stress from the volume. Not sure anymore but find I am very very noise sensitive.
Hi, me too - I only have diagnosis of connective tissue disease (lupus like!) but however I'm so noise intolerant that if there's more then one person talking around me it feels like I've had a lobotomy! I find it exhausting and then it causes other problems - I've recently been put on Gabbapentin which has enabled me to at least connect my thoughts to my speech but is making me feel low!! Noise intolerance is one of my biggest problems atm xxx
Wow, didn't realise so many other people experienced this!...Jo883 sounds great that gabapentin helps connects your thoughts to your speech (I struggle with that) but I have heard that it slows people down too....everytime something helps there always seem to be side-effects!
My mum's on it for cervical spondulitus...but pretty sure she actually has Lupus (doc doesn't want to retest her)
Hope you start feeling better soon
xxx
Yes, and hypersensitive to almost everything - traffic fumes, all electricity, light, etc. so turn off as much as possible regarding the electricity and keep away from traffic and bright sunlight, etc. It is just a case of listening to the body and doing what it needs - not easy at all!
Sound really gets to me too - before, during and after(!) a flare. Even when a 'mild flare' ..so a lot of the time. Have stopped cinema and theatre visits ..just can't cope - and at home, I'm constantly fiddling with the remote-thingie... So yes, freakin' out about sound seems to be just another of our many symptoms. xxx 
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