Posts - LUPUS UK | HealthUnlocked

LUPUS UK

32,210 members•28,555 posts

All posts for August 2012

BAD HAIR DAYS! :(

Hi, how are you doing guys? I am having a problem with my hair. Since I was diagnosed with Lupus last year, i've got allopesia, i almost loss my hair. Now, I'm...

Hi, how are you doing guys? I am having a problem with my hair. Since I was diag...

mitchie

•12 years ago

5 Replies

3D images

As a young child I was amazed by 3D (I was in Disneyworld, Fla age 15) them the craze came years later for those 3D art things & I couldn't see a thing. NOW we...

As a young child I was amazed by 3D (I was in Disneyworld, Fla age 15) them the ...

Nanuuk

•12 years ago

4 Replies

I just got a lot of new lupus bruises. Is it safe to take a six hour air flight?

Jonathansgirlfriend

•12 years ago

3 Replies

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London Marathon

I am pleased to inform you all, i have a place in next years London Marathon, running in aid of LUPUS UK.x

I am pleased to inform you all, i have a place in next years London Marathon, ru...

tracey_edey

•12 years ago

8 Replies

Books to really express to the masses about how lupus makes you feel

I've recently come across a book called "If you have to wear an ugly dress, learn to accessorize." If anyone has recently been diagnosed (or even if you...

I've recently come across a book called "If you have to wear an ugly dress, lear...

karlyt

•12 years ago

10 Replies

Can't find my words....

Just wondering if anyone else sometimes struggle to get their words out or think of the right word??? Or am I going slowly crazy with being so poorly?!! I...

Just wondering if anyone else sometimes struggle to get their words out or think...

purple-lou

•12 years ago

32 Replies

Can anybody recommend an Insurance company who covers Lupus at responsbile costs?

MiaMunch

•12 years ago

1 Reply

plequnil-anyone eva re-started taking it ?

my rheumy stopped my plequnil weeks back after many years as he felt my fibro was more problematic and wanted to see how i was with out it (i have non specific...

my rheumy stopped my plequnil weeks back after many years as he felt my fibro wa...

moss

•12 years ago

8 Replies

A Little Scared....

I have had trouble breathing the last couple of months and my doctor did some blood tests, apparently I have high cholesterol 6.5 and very low vitamin D...

I have had trouble breathing the last couple of months and my doctor did some bl...

janeway24

•12 years ago

11 Replies

Some Good News at Last!

I attended my appointment yesterday with My Rheum Consultant and after he increased my CellCept or MMF wef 17th May, ( I am now on 2000mg per day), my Lupus...

I attended my appointment yesterday with My Rheum Consultant and after he increa...

Lulabelle

•12 years ago

8 Replies

Another Poem...

This is for the words I can't say today, the worst one so far. I've titled it "Thank You James" because James Blunt helped me find the words. What can...

This is for the words I can't say today, the worst one so far. I've titled it "...

SLE15

•12 years ago

11 Replies

iv got disc lupus an have had it 4 many ov yrs,my face is really bad i have the butterfly wings under both my eyes and a lot ov red circles

on my face i get make up off the brc 4 this and dermavate cream but it does not work 4 me,was asked the last time if i wld lyk 2 start a anti-malaria drug,is...

on my face i get make up off the brc 4 this and dermavate cream but it does not ...

lorraine31

•12 years ago

8 Replies

mmmmmm-maybe

my rheumy stopped my plequnil weeks back after many years as he felt my fibro was more problematic and wanted to see how i was with out it (i have non specific...

my rheumy stopped my plequnil weeks back after many years as he felt my fibro wa...

moss

•12 years ago

2 Replies

Heart Problems

Ok just got back from doctors, I have been having problems with high blood pressure, so doctors made me have ECG on friday. Just been told that I have an...

Ok just got back from doctors, I have been having problems with high blood press...

ebril

•12 years ago

11 Replies

Hello from clairebear. I'm back

Well hello all. Haven't been on for a while as being back at work then getting home and doing jobs around the house, I'm just shattered and want to sleep.( and...

Well hello all. Haven't been on for a while as being back at work then getting h...

Clairebear

•12 years ago

4 Replies

Hi, I am very confused my old G.P thought had lupus, he is now retired and I have a new one, who I find rather intimidating.

at the moment, I am really poorly, have been in bed since Saturday and am so fed up. I just want to know what is wring with me, I feel like I have flu. In the...

at the moment, I am really poorly, have been in bed since Saturday and am so fed...

AngieD122

•12 years ago

5 Replies

Lupus, Diet and Lifestyle. Free Information

Hi Everyone! Many of you may have seen my previous posts on the topic of lupus, diet and lifestyle. For a while I was offering my scientific review paper...

Hi Everyone! Many of you may have seen my previous posts on the topic of lupu...

Ani-

•12 years ago

5 Replies

132 inflammation levels very high

I wonde if anyone can help on Tuesday felt really I'll started shaking and my joints and muscles were all sore. Saw the doc who took blood and advised my...

I wonde if anyone can help on Tuesday felt really I'll started shaking and my jo...

Busbynat

•12 years ago

7 Replies

Caught in the middle

I am feeling quite stuck in the middle, between feeling a lack of trust in the doctors, and a lack of trust in any alternative therapies too. As you know I...

I am feeling quite stuck in the middle, between feeling a lack of trust in the d...

Maya23

•12 years ago

3 Replies

COLD / FLU - HELP

Hi All, I have been suffering from a Cold / Flu thng now for over 2 weeks, I feel very low now as this has gone on soooooo long, one day i feel marginally...

Hi All, I have been suffering from a Cold / Flu thng now for over 2 weeks, I fee...

Kellyleg

•12 years ago

6 Replies

Hello. Has anyone had problems with teeth and gums or no if there is any connection to lupus? Thanks :)

Lyndsy3

•12 years ago

17 Replies

Sickness

Been off sick for about 6/7 weeks now, not able to maintain my iron levels & waiting for a bone marrow test. I've been told that the Azathioprine I've been...

Been off sick for about 6/7 weeks now, not able to maintain my iron levels & wai...

alyj

•12 years ago

6 Replies

How to get SSD for Lupus?

One of my very dear friend has lupus for over 20+ years and she has been disabled since 1991, she has been in and out of the hospital for severe lupus flares,...

One of my very dear friend has lupus for over 20+ years and she has been disable...

ROSCHELLE

•12 years ago

2 Replies

Some last minute help

Hi there, this petition only has a few days left to run, and we need it to reach 1000 signatures. If you can help please sign AND pass it on to others in...

Hi there, this petition only has a few days left to run, and we need it to reach...

MaryF

•12 years ago

9 Replies

Three miss carriages all empty sacs.misscariage clinic say azathioprin too toxic+likely to be causing them. Anybody been through this?

I went to my specialist after doing my own research about aza after my 2nd miscarriage.they said it was safe but I was on a high dose for my size etc. they...

I went to my specialist after doing my own research about aza after my 2nd misca...

Clemenceau

•12 years ago

5 Replies

ESA medical (ATOS) meeting cancelled for the second time!

I have been on ESA for approximately 40 weeks. The system of being seen within 13 weeks has not happened. Today my medical appointment was cancelled by phone...

I have been on ESA for approximately 40 weeks. The system of being seen within 1...

loopy-lou

•12 years ago

13 Replies

LUPUS UK is now a member of 'Benefits & Work'

If you are having difficulty making a claim or appeal for Disability Living Allowance (DLA) or Employment Support Allowance (ESA), we can now provide you with...

If you are having difficulty making a claim or appeal for Disability Living Allo...

Paul_Howard

Partner•12 years ago

6 Replies

hi,do any of you lupus sufferers have jaw and ear problems as well? i have been diagnosed with tmj and suffering really bad.

rockchic

•12 years ago

8 Replies

Have I got lupus? in limbo and fed up :(

This is my first time on here, I stumbled across this site whilst desperately looking for an answer to what is wrong with me. For the last year I have been...

This is my first time on here, I stumbled across this site whilst desperately lo...

megs_tom

•12 years ago

8 Replies

Currently awaiting blood test results, but in denial.

I'm brand new on the board today after spending a few days reading everyones posts in search of some answers. During the few days of good weather we had in...

I'm brand new on the board today after spending a few days reading everyones pos...

geordieshaun

•12 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2012

BAD HAIR DAYS! :(

3D images

I just got a lot of new lupus bruises. Is it safe to take a six hour air flight?

London Marathon

Books to really express to the masses about how lupus makes you feel

Can't find my words....

Can anybody recommend an Insurance company who covers Lupus at responsbile costs?

plequnil-anyone eva re-started taking it ?

A Little Scared....

Some Good News at Last!

Another Poem...

iv got disc lupus an have had it 4 many ov yrs,my face is really bad i have the butterfly wings under both my eyes and a lot ov red circles

mmmmmm-maybe

Heart Problems

Hello from clairebear. I'm back

Hi, I am very confused my old G.P thought had lupus, he is now retired and I have a new one, who I find rather intimidating.

Lupus, Diet and Lifestyle. Free Information

132 inflammation levels very high

Caught in the middle

COLD / FLU - HELP

Hello. Has anyone had problems with teeth and gums or no if there is any connection to lupus? Thanks :)

Sickness

How to get SSD for Lupus?

Some last minute help

Three miss carriages all empty sacs.misscariage clinic say azathioprin too toxic+likely to be causing them. Anybody been through this?

ESA medical (ATOS) meeting cancelled for the second time!

LUPUS UK is now a member of 'Benefits & Work'

hi,do any of you lupus sufferers have jaw and ear problems as well? i have been diagnosed with tmj and suffering really bad.

Have I got lupus? in limbo and fed up :(

Currently awaiting blood test results, but in denial.

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