I attended my appointment yesterday with My Rheum Consultant and after he increased my CellCept or MMF wef 17th May, ( I am now on 2000mg per day), my Lupus levels and immune system is now back in the black. In laymans terms they are keeping the Lupus and it's actions at bay from doing any serious damage.
However, I still have the SS to contend with and my aching, often painful legs have been playing up the past 2 weeks - I swear it is to do with the hotter more humid weather. Truth be told I think I am better in the winter months than the summer months - has anybody noticed this also?
My Consultant has now prescribed me Planquil 200mg once per day stating from today, he said that any side affects are relativley mild - can anyone vouch for that?
I will still be taking 5mg steroid - but if I tolerate the Planquil, when I go back in Nov my Consultant is going to reduce my steriods. His aim is then to increase the Planquil. If all my blood work etc still comes back showing good results then I will be weaned off the steroids. So in affect will ne on Cellcept and Planquil. Fingers crossed.
However, I have read the side affects in the medicine box - which has put me off a little, but hey cant be worse than steroids?
He advised that over a period of time (5 yrs) they will then start to reduce the Cellcept to a lower level and see how I get on.
The Pharmacist advised that should I have any side affects from the Planquil I would know about them within the first 2 weeks - is this the case?
Any advice would be helpful!