Ulcers ulcers ulcers : Bloody ulcers. Back of my... - Behçet's UK

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Ulcers ulcers ulcers

Papapickle profile image
13 Replies

Bloody ulcers. Back of my nose, back of my mouth and in my throat.

So sore, so painful.

Tried difflam already and now some throat lozenges.

Still sore. Hurts to swallow. Even just naturally without drinking.

Miserable.

Tell me something about your day.

Thanks

C

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Papapickle
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13 Replies

Great day! I have the preliminary approval for my electric wheelchair and talked to Social Security. Lady went say outright but said I have nothing to worry about and if I don’t have my letter by Thursday to call I. And they will let me know for sure. So my husband and I can start the process to buy the single story house that we so desperately need. This is really the best day I’ve had in a long time and I’m so sorry yours is plagued by ulcers. It wasn’t long ago I read your post and you had good energy. I’m hoping you have one of those better days soon!!!!

Papapickle profile image
Papapickle in reply toLovingdragonflies

That’s fantastic news! I am really pleased for you.

Not sure how things work in the US sounds similar to here in the UK just with different names.

I am feeling amazingly better in myself, counselling working very well and so pleased to be back at work.

Can’t seem to shake these ulcers though - although in the grand scheme of things I can’t really complain.

They just hurt. But will pass.

Which part of the US are you in?

Take care

c

Expectthebest profile image
Expectthebest

My esophagus was littered with ulcers for 2 years. Nothing worked until we tried Rituxan infusions. Within 2 weeks I was able to eat solid foods again and my voice returned.

Papapickle profile image
Papapickle in reply toExpectthebest

I am sorry to hear that.

What’s rituxan? Is it a steroid?

Hope your are doing well.

C

Number4 profile image
Number4

You just explained the bloody nose I kept getting with my first flare. I had ulcers in my throat at or below the swallow sphincter. Can’t describe the pain when those tissues dried and stuck together but many that are on this site understands. I used Chloreseptec or magic mouthwash. (Lidocaine, 2%, benedryl and Maalox).

Stevi profile image
Stevi

I feel your pain I'm the same got them in the nose, lips, mouth, throat, and skin at the moment and I feel horrible. Steroids make me Bloat so much and like weight on so I'm yet to find a solution. I've tried same as you different mouth washes and lozenges but nothing helps 😪

SCMW profile image
SCMW

Hi, I had horrendous oral ulcers across the throat, tonsils etc, nothing worked except for colchicine which has reduced frequency and magic mouthwash. Honestly if you’ve been getting by do at least see if you can get the triple mouthwash, it’s such a relief! Best wishes

FrancisB profile image
FrancisB in reply toSCMW

Hey there what's in triple mouth wash?

SCMW profile image
SCMW in reply toFrancisB

Hi, it’s betamethasone, nystatin and doxycycline. Literally, magic, if you’ve suffered with the ulcers this actually brings relief or certainly a good degree of. Hope that helps, best wishes

FrancisB profile image
FrancisB in reply toSCMW

Thanks for the reply. Do you have to mix it your self or does the pharmacy do it for you?

SCMW profile image
SCMW in reply toFrancisB

Hi, you’re prescribed all the items to mix yourself, so 2 tablets, the nystatin is a liquid and 10ml of water. Best wishes

FrancisB profile image
FrancisB in reply toSCMW

Thanks for that info I will chat with my doc!

FrancisB profile image
FrancisB

Poor bloke, I bloody hate ulcers, particularly ones in your throat and nose. The nose ones give me epic headaches and throat ones make it impossible to talk or eat. Depending on how bad they are, my first line of defence is steroid nasal spray and topical steroid paste. Then if they are out of control I have no choice but to start with the Pred, which is bloody awful stuff and a trap that I'm sure everyone is aware of. Wishing you a speedy recovery :)

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